UPCOMING PRESENTATION MRI 2nd Opinions….. ProstateID solves the challenge Getting 2nd opinions is critical. It’s easy to find a medical 2nd opinion, and you can get your pathology reread by the best! But MRIs – that’s been challenging. Now there’s an affordable AI-validated option that’s proven very reliable* – ProstateID Join us on Wed. Sep 17th at 6.30 pm Eastern in the AnCan Barniskis Room https://www.gotomeet.me/AnswerCancer Founder and Developer, Randall Jones, PhD explains the technology and its uses. Hosted by AnCan Advisory Board Member and prostate cancer peer, Cdr. Mike Crosby *Sensitiviy and Specificity in the mid-90% range … and hold Monday, Sept 29th 8 pm Eastern for Dr. Jonathan Epstein. Title TBD and webinar link to follow.
AnCan is grateful to Johnson and Johnson for making this recording possible.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Choosing military medical retirement or VA disability? (bj)
Topics Discussed Navigating VA claim process while living abroad; decision point – choosing military medical retirement or VA disability; downloading VA letters to verify benefits; VA compensation & benefits; Combat-Related Special Compensation (CSRC); Agent Orange and PACT Act; toxic exposure for Gulf War or Post-9/11 Veterans; ionizing radiation.
Chat
AnCan – “Col” Boykin Jordan sent a chat · 8:37 PM
boykin@ancan.org
AnCan – “Col” Boykin Jordan sent a chat · 8:54 PM
Dave – you can download or request your benefit summary and service verification letter from the VA
AnCan – “Col” Boykin Jordan sent a chat · 8:57 PM
Benefit Summary and Service Verification Letter
AnCan – “Col” Boykin Jordan sent a chat · 9:15 PM
Is it in the prostate bed?
AnCan Bill sent a chat · 9:30 PM
I have to drop and help with some homework for my son. Good meeting and everyone have a good night!
AnCan – “Col” Boykin Jordan sent a chat · 9:30 PM
Good night Bill!
Tyneal Edwards sent a chat · 9:33 PM
I also have to get ready to go to bed as I have duty tomorrow morning at 0500. Thank you all for having me and it’s a pleasure to meet you! Stay safe and until next time🙏🏾
AnCan – “Col” Boykin Jordan sent a chat · 9:33 PM
Good night Tyyneal! Thanks for coming!
Bruce Schrimpf sent a chat · 9:42 PM
HIPAA: Health Insurance Portability and Accountability Act
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Integrating VA Health Care with TRICARE and Medicare. (bj)
Topics Discussed
Understanding VA benefits and claims; VA disability claims for prostate cancer; integrating VA Health Care with other health care plans like TRICARE and Medicare for you and your family; toxic exposure and the PACT Act; personal stories and updates.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Understanding VA disability ratings and forms. (bj)
Topics Discussed
Submitting VA disability claims for hearing loss and obtaining VA healthcare; filing a prostate cancer claim after active treatment is completed; understanding the math behind VA disability ratings; which VA forms do I use to file a claim; receiving VA healthcare treatments for prostate cancer versus VA C&P (compensation & pension) exam; understanding the different types of special monthly compensation (SMC), especially for prostate and other reproductive cancers; what happens when the VA defers your claim and what are your next steps?; switching VA medical centers for healthcare treatment; Barrett’s esophagus and its relation to GERD; can a surviving spouse receive a VA disability pension and DoD Survivor Benefit Program (SBP) benefits at the same time?; esophageal disorders and their relationship to high PSAs (prostate-specific antigens)?
Chat Log
rd
GoTo Support number 877 582 7011
Dan Gifford, FL
Tapping out for the night. Thanks for all the support
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: DIC (Dependent Individual Compensation) for surviving spouses. (bj)
Topics Discussed
Veterans Affairs (VA) Benefits; DIC (Dependent Individual Compensation) for surviving spouses and the criteria for receiving it; interrelationship between military retired pay, federal civilian retired pay, and VA disability pay; PACT Act of 2022; documenting all of your medical issues while on active duty; intent to file; preparing your VA disability claim; prostate cancer submission & service connection; other AnCan support groups – Men Speaking Freely, Veterans Speaking Freely.
Chat Log
Alexa Jett – AnCan Foundation
overachiever!!!! 😂
Alexa Jett – AnCan Foundation
https://ancan.org/remembering-ken-mason/
Erika L
Thanks for that Alexa…. Gary, I’m so sorry for your loss!
AnCan – “Col” Boykin Jordan
https://www.choose.va.gov/family-members
Gary
Thanks for these.
Alexa Jett – AnCan Foundation
captjim@ancan.org
Gary
https://www.forevermissed.com/ken-mason/lifestory
Gary
Ken’s celebration of life site. The celebration will be live streamed.
Gary
Thanks, Erika.
Gary
Folks, you are providing great, helpful information. Jim, your knowledge is amazing. Thanks for answering my questions. Thanks for letting me join this meeting to learn more about Mason’s benefits. I have to cut out in a few minutes. Best to everyone.
AnCan – “Col” Boykin Jordan
Thanks for checking us out. Feel free to come back anytime.
Willie
Gary please continue to get the necesary information to get your benefits from your spouse.
Gary
Thank you all, I will be contacting Ken’s point of contact in the VA office here in Lincoln.
Gary
And the link in the chat will also be very helpful.
Michelle
AGR
Michelle
Sounds like
Michelle
I go to the main hospital or satellite locations
AnCan – “Col” Boykin Jordan
Army Presence in Augusta, GA (formerly Fort Gordon)
Erika L
Yes AGR
Erika L
Thanks, Col, Michelle, Tyneal, Jim! Augusta and Columbus/Benning (nearest base facilities) are both 2.5 hours drive, so that’s what’s made this a bit trickier for us, esp because my kid does not tolerate long periods in the car…
Erika L
We tried to get phone support and spoke with her once and never heard again! We did send an email saying as much, and still didn’t hear back. I guess if the main benefit is just preventing transfer or move, it may not be worth greater effort. That in and of itself is useful information for us!
AnCan Barniskis – rick
Jim – join Veterans Speaking Freely
Alexa Jett – AnCan Foundation
https://ancan.org/speaking-freely/
Tyneal Edwards
I’ll check into it more and see if I can provide more details. Sometimes the information is a bit difficult to obtain from certain EFMP coordinators. However, once you get assigned to them, their goal is to get your primary care needs taken care of by a closer facility. Their primary goal is to find the closest care available and within the member’s capabilities. TRICARE, other EFMP coordinators at other commands, Military onesource, Family Readiness Groups (which can also be found on an MTF), or your commands CFL (Command Family Liaison. On your next PHA, you can also provide these concerns and issues to your provider about this problem. Also, you can provide this concern to the individual who’s in charge of helping you set up your PHA. (I know that was a lot but I hope this helps😅)
Michelle
Me too
AnCan Barniskis – rick
Hello Ms. Michelle
Alexa Jett – AnCan Foundation
https://visionsimulations.com/visual-snow.htm
Alexa Jett – AnCan Foundation
https://www.visualsnowsimulator.com/
Alexa Jett – AnCan Foundation
usually migraine, tinnitus, and visual issues = Visual snow syndrome
Alexa Jett – AnCan Foundation
https://www.visualsnowinitiative.org/doctors/
Alexa Jett – AnCan Foundation
We learned of a fabulous doctor in Cleveland
Alexa Jett – AnCan Foundation
https://my.clevelandclinic.org/staff/30308-devon-cohen
The Society for Integrative Oncology (SIO) is all about bringing evidence-based, comprehensive integrative healthcare to people affected by cancer, with the goal of making their lives better. SIO pushes for solid scientific research—both in the lab and with patients—while also advocating for big changes in oncology. They want to see complementary approaches that are backed by evidence fully integrated into cancer care.
This eBook was written by cancer survivors, patient advocates, and medical professionals, designed primarily as a resource for cancer patients and their caregivers. While it offers information relevant to all types of cancer and people globally, many of its listed resources are U.S.-based. The eBook explains what integrative oncology is, defines related terminology, and outlines the numerous benefits of this approach to cancer care. It provides evidence-based resources and practical tips to help patients afford and incorporate integrative practices into their lives.
Taking on the role of a care partner can feel overwhelming, but you don’t have to navigate it alone. Many experienced care partners will tell you that with a little guidance, it can also be a deeply fulfilling experience. To help you on your journey, we’ve compiled some helpful resources available online.
1.Leaning Into Grief: An Interview With Claire Bidwell Smith
Claire Bidwell Smith is a therapist, grief expert, and author. Click here for her interview about leaning into grief.
2. Cancer Today: Addressing Anger
Anger and Irritability are normal responses to a cancer diagnosis, and this article offers guidance for care partners of cancer patients.
3. NCCN Guidelines for Patients: Palliative Care
The National Comprehensive Cancer Network released an easy to read, patient-centric Palliative Care guidelines that you can view and download. Click here.
4. “Caregiver Life Hacks”
There’s no one-size-fits-all way to care for someone because every care partner and situation is different. What helps one person might not work for another, but many care partners deal with similar challenges. Click here for some simple “life hacks” that might make your day a little easier.
5. “Caregivers Need Care Too”
“However, primary care partners are also thrust into an unfamiliar world of medical treatments, terminology, and appointments. This is why mutual support between the patient and the primary care partner is important—it is a partnership through thick and thin because both the patient and primary care partner need to learn about the complexities of the disease and treatments needed, as well as make important decisions together.” Click here for the full article.
6. Triage Health Caregiver Resources
Click here for a full list of resources about legal and practical matters like taking time off from work, managing family finances and medical bills, replacing lost wages, estate planning, and other resources.
7. Cancer Straight Talk Podcast: Advice and Support for Cancer Caregivers
The podcast Cancer Straight Talk features host Dr. Diane Reidy-Lagunes speaking with Dr. Allison Applebaum, the founder of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center (MSK). This episode covers navigating the healthcare system and managing the emotions of caregiving.
8. Patient Power: Power of Care Partners: Who Has your Back?
This article is about the crucial role of care partners for people with chronic illness. It distinguishes a “care partner” as a full member of the care team, not just a caregiver. The article also provides advice on practical matters, like having a designated care partner with access to medical records, and emphasizes the importance of care partners looking after their own well-being.
