AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: The most important thing is having a medical team that you trust. (bj)
Topics Discussed Transitioning from active surveillance and having issues with flomax; post-prostatectomy at 6-weeks and learning to deal with incontinence, work on pelvic floor physical therapy — kegel exercises; germline genetic screening — Prostate Cancer PROMISE Test; new diagnosis and getting a second opinion based on biopsy results, currently learning more to choose a treatment path — active surveillance is is a possibility, be wary of taking focal treatment outside of a trial, TULSA Pro, SBRT, HIFU, PROTON, Cyber Knife; DECIPHER gtest and GRID report; SBRT treatment update — got a DECIPHER test and GRID report; update using ArteraAI to confirm DECIPHER results in deciding a treatment option; important to have the information to chose a treatment plan; learning the in and outs of Veterans benefits; dealing with a “blind” biopsy and seeking a second opinion on biopsy result — consider starting over with a MRI to get a diagnosis; PROTON (IMRT) (gets a lot of hype) but it is older technology than PHOTON (SBRT); PROSTOX test provides information on radiation toxicity; Focus on getting the right doctor to help you make a decision versus laboring over the differences between radiation treatment options.
Chat Log
AnCan – rick
Promise https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
AnCan – rick
rd@ancan.org
AnCan – rick
Send Bx for 2nd opinion to either Dr. Epstein https://advanceduropathology.com/ or Dr. Zhou https://profiles.mountsinai.org/ming-zhou
Eric- Atlanta
15 year outcome study: https://www.nejm.org/doi/full/10.1056/NEJMoa2214122
AnCan – rick
Check results of the PACE-B Study
AnCan – rick
Pace-B abstract https://www.redjournal.org/article/S0360-3016(23)07822-7/abstract
AnCan – rick
Five-year BCF free rates are high in PACE-B participants. After median follow-up of six years, five-fraction-SBRT is non-inferior to CRT for BCF. SBRT reduces pts attendances, shortens treatment time and 5 fraction SBRT should be a new standard of care for pts with low/favourable intermediate risk LPCa.
Bill Allen
Tim- are you willing to share the contact at Vericyte?
Eric- Atlanta
A Veracyte Sr. Genomic Specialist contact:
Eric- Atlanta
toby.harrell@veracyte.com
Bill Allen
Thank you Eric.
Eric- Atlanta
Welcome. He’s very helpful.
AnCan – rick
AnCan Vets programs https://ancan.org/veterans/
James & Emily Anders
we are back on. We were bumped off
Bill Allen
Hi All- thanks for tonight. I have to go- have a good two weeks.
Eric- Atlanta
Andrew & Mark!! https://www.youtube.com/watch?v=nEuj4IjAQ3I
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: When deciding on a treatment plan, the most important thing a patient can do is having a medical team that you trust. Be wary of letting anxiety and uncertainty push drive selection of a treatment plan. Use the time you have to make an informed decision. (bj)
Topics Discussed New diagnosis and trying to decide between active surveillance and treatment based on high PSA and biopsy results; the importance of getting a second “reading” opinion on biopsy results; recommendations for genetic tests — to include the Prostate Cancer PROMISE, DECIPHER, and ArteraAI; seeking an opinion on a treatment plan after getting a random biopsy — getting a biopsy before the MRI; dealing with the anxiety and uncertainty associated with selecting a treatment plan; the importance of having a medical team that you can trust; EpiSwitch prostate screening; when to get a PSMA Pet Scan?; thiabendazole utility — better treatment options exist; healthy habits include diets that emphasize plants (i.e. low- or no meat) and exercise (150 – 210 minutes a week spread across 5 – 7 sessions, minimum session of 30 minutes).
Chat Log
AnCan – rick
PROMISE test https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
AnCan – “Col” Boykin Jordan
Artera – https://artera.ai/for-patients
AnCan – “Col” Boykin Jordan
DECIPHER https://decipherbio.com/decipher-prostate/patients/decipher-prostate-overview/
Mark Perloe
Yes
AnCan – rick
FYI… Ep-STINE
Mark Perloe
just two retgurns
Mark Perloe
just one more.
AnCan – rick
Here’s the microultrasound article Friends, and I’ve sent it to Michael https://jamanetwork.com/journals/jama/fullarticle/2831985
AnCan – “Col” Boykin Jordan
EpiSwitch Prostate Screening https://www.urologytimes.com/view/episwitch-prostate-screening-blood-test-launches-on-us-market
Bill Allen
Mark- just to be clear-mI should speak w Dr D’Amico regarding Artera AI – is that spelling correct ?
Steve R
Regarding the Promise test: Did I understand your preference was to not share results with the doctor? Why or why not?
Bill Allen
Thank you Dr John.
AnCan – rick
Yup – just gets much more complicated and time consuming to get result. You can share when you get the results if needed
AnCan – “Col” Boykin Jordan
NCCN Prostate Cancer Guidelines https://www.nccn.org/guidelines/guidelines-detail?category=1&id=1459
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Does BRCA1/2 mutations put a prostate cancer patient at a greater risk for radiation toxicity or secondary cancers? (bj)
Topics Discussed BRCA1 and toxicity implications when choosing a radiation treatment option; PROMISE Registry; PROSTOX; DECIPHER is not a predictive test — it is a diagnostic test; NCCN and NCI certification; post prostatectomy update and the importance of PSA monitoring; diet and exercise is for controlling and managing PCa; encouraging update 2 years after radiation brachytherapy treatment
Chat Log
David
“The Implications of Genetic Testing on Radiation Therapy Decisions: A Guide for Radiation Oncologists,” Carmen Bergom et al., International Journal of Radiation Oncology, v. 105, No. 4, 2019. https://www.redjournal.org/article/S0360-3016(19)33530-8/fulltext
AnCan – rick
https://bmjoncology.bmj.com/content/4/1/e000592
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Medicare patients can receive telehealth services for non-behavioral/mental health care in their home through March 31, 2025. (bj)
Topics Discussed Decision point for transitioning from active surveillance to treatment; DECIPHER; DECIPHER Grid Report; Medicare stopping telehealth on March 31, 2025; PROMISE STUDY; BRCA1 mutation; BRCA patients have increased radiation sensitivity; PSA bumps; biochemical recurrence; weaving is therapy; 2025 ASCO GU update.
Chat Log
Michael – TN
If having trouble getting response via email from Dr Epstein: —- Gabriella Deliguori, MHA Administrative Supervisor 516-280-7930
Michael – TN
gdeliguori@imppllc.com
Mark Perloe
https://advanceduropathology.com/ gdeliguori@imppllc.com
Bill Nieusma (VA)
will Dr. Epstein require imagery or just a report?
AnCan – rick
uro… David Penson at Vanderbilt https://www.vanderbilthealth.com/doctors/penson-david
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Trust but verify a biopsy reading. Getting a second opinion is critical for choosing the correct treatment option for yourself. (bj)
Topics Discussed Weak stream; enlarged prostate — presumptive BPH; TURP; greenlight laser; DECIPHER; DECIPHER Grid Report; germline genetic test; PROMISE Test; gradually rising PSA; TULSA Procedure; CyberKnife; NCCN (National Comprehensive Cancer Network); PROSTOX genetic test; combination therapy; PSMA PET Scan make sure your insurance will pay for it first.
Chat Log
AnCan – rick
BPH webinar – Steve Kaplan https://ancan.org/special-presentation-it-aint-your-grandpas-bph/
Jim Marshall, Alexandria, VA
If there are Veterans in the group, there is a Veterans Group meeting 1st & 3rd Tuesdays. contact me for details, Veterans@AnCan.Org info at www.AnCan.org/Veterans Jim Marshall, USAF(Ret)
John S NY
Dutasteride is generally more potent and effective than finasteride for treating hair loss and BPH. However, it may also have a slightly higher risk of side effects. The choice between the two medications should be made in consultation with a healthcare professional based on individual factors such as the severity of hair loss or BPH symptoms, potential side effects, and halflife of Dutasteride is 40 days, Finasteride is around 12-18 hours if I remember correctly
AnCan – rick
PROMISE test https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Eric M- Atlanta
Dr. Epstein is back in biz this month consulting with Integrated Medical Professionals in NYC. Reach him through gdeliquori@imppllc
Michael – TN
gdeliquori@imppllc – Dr Epstein
Eric M- Atlanta
Dr. Ming Zhou, can be found at ming.zhou@mountsinai.org
Eric M- Atlanta
As I say, Trust but verify a biopsy reading.
AnCan – rick
gdeliguori@imppllc.com• Epstein
Eric M- Atlanta
If anyone wants to get their own PSA test with Labcorp here is a self ordered source for $31: https://www.lifeextension.com/lab-testing/itemlc010322/prostate-specific-antigen-psa-blood-test
David S.
Jesse McKenney interview on the topic of cribriform: https://www.urotoday.com/video-lectures/a-journal-club-for-patients-with-prostate-cancer/video/4452-unfavorable-histology-classification-aims-to-reduce-unnecessary-treatment-journal-club-jesse-mckenney-jane-nguyen-cornelia-ding.html
AnCan – rick
Here’s the NIH 2nd opinion clinic for PCa link https://ccr.cancer.gov/prostate-cancer-multidisciplinary-clinic
Michael – TN
Choyke, Peter (NIH/NCI) [E] <pchoyke@mail.nih.gov>
