Active Surveillance Prostate Cancer Video Chat, May 28th, 2025
Special Participant – hear from a man with a very rare case… intraductal prostate cancer cells alone
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, and Blue Earth Diagnostics.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
Link to Eggener https://surgery.uchicago.edu/faculty/scott-e-eggener-md
Hugh -Houstonsent: 9:01 PM
Link to Helfman https://www.northshore.org/apps/findadoctor/physicians/brian-t.-helfand
AnCan Barniskis – ricksent: 9:01 PM
Helfand
Georgesent: 9:07 PM
gdiaz8@hotmail.com
AnCan Barniskis – ricksent: 9:19 PM
So George… technically intraductal has no Gleason score although it heightens risk significantly. Some pathology soceties have recommended it should be assigned a Gleason. I always thought it was automatically assigned a 4, I expect the other men who had had intraductal had sufficient other cores to give them a Gleason score. I would ask Dr. Epstein to assign you a Gleason.
Rick (Atlanta)sent: 9:21 PM
https://connect.mayoclinic.org/group/prostate-cancer/ Forum discussion
Georgesent: 9:21 PM
Thanks, Rick. I hope to get more clarity from Dr. Epstein.
Marty Keoughsent: 9:23 PM
Thanks Everyone! Marty K
Dan Gifford, Pensacola, FLsent: 9:30 PM
But you can view it NOW at The Active SUrveillor YouTube channel: https://youtu.be/aoyReZwU5v8?si=Baa5O4JJzQYeFdDy
AnCan Barniskis – ricksent: 9:31 PM
Guys – I have to run over to check another meeting. Will try to return before you close.
Maxsent: 9:55 PM
greatmaxx@gmail.com in case don’t have my email-Max
Maxsent: 9:56 PM
Boakye
George sent: 9:58 PM
Thank you, gentlemen. I truly appreciate your time and knowledge. New to this and it can be overwhelming at times.
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Seeking a definitive answer from multiple information sources is a problem. (bj)
Topics Discussed Questions about transitioning from active surveillance when treatment is needed; importance of getting a second opinion on biopsy results; understanding mortality studies related to orgovyx (relugolix); preparing for post-treatment exams when you participated in study, what questions should be asked; when you are on active surveillance, how to interpret cribriform patterns and what concerns should have about metastasis; the importance of following best practices; failing to make a decision about who you are going to trust for medical care can become a bigger issue than the treatment itself; prioritizing medical treatment when you need treatment for prostate cancer and BPH (Benign Prostatic Hyperplasia); micro ultrasound vs MRI in guided biopsies.
Chat Log
Eric- Atlanta
2nd Opinions for Biopsies -Jonathan Epstein, MD Contact:jonathaniraepstein@gmail.com https://advanceduropathology.com -Ming Zhou, MD, PHD Now at Mount Sinai Health System in New York City. If you have questions for him, please contact him directly at Email: Ming.zhou@mountsinai.org) -John Hopkins Pathology https://pathology.jhu.edu/patient-care/second-opinions Biopsy Videos/Links topics: Master pathologist Zhou continues his primer on prostate biopsies https://howardwolinsky.substack.com/p/master-pathologist-zhou-continues Second Opinion Diagnosis in Prostate Pathology Grand Rounds in Urology https://www.youtube.com/watch?v=rTjOED_da1I Should You Get a Second Opinion on Gleason 6 Pathology Slides? Expert Laurence Klotz, MD https://www.youtube.com/watch?v=J9DE6xhKQ_4
Stuart
Dr. Ming Zhou
Mount Sinai Health System Department of Pathology
Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029
Email: Ming.zhou@mountsinai.org
Telephone: (212)241-8881
Send the following material to the above address
a. Glass slides (or images on a CD disc)
b. A copy of the outside pathology report
c. Insurance information. For Self-pay, the hospital charge USD250 for each review.
After I review the case, I will contact you to discuss your diagnosis if you wish. Thank you and let me know how I can be of further help.
Dr. Ming Zhou
Professor of Pathology
Vice Chair of Oncological Pathology
Chief of Pathology at the Tisch Cancer Hospital
Mount Sinai Health System
Department of Pathology, Molecular and Cell Based Medicine
Box 1194 Annenberg Bldg. 15th FL New York, NY 10029
Email: Ming.zhou@mountsinai.org
Telephone: (212)241-8881 FAX: 212-876-4718
AnCan Barniskis – rick
@JillB… did you request time. This is a question for the Group, rather than the Chat Window.
AnCan Barniskis – rick
Stuart pointed out that DR. George moves. Dr. Palapattu is another good recommendation.
AnCan Barniskis – rick
The radiation oncology recommendation is Dr Jason Hearne.
Zolie C
Can you ple provide info for the Wednesday Meeting ThANK YOU
Stuart
Same room, same time
David – Jacksonville, FL
pls doublecheck I’m on the mailing list. Thank you.
Eric- Atlanta
Second Opinion Diagnosis in Prostate Pathology Grand Rounds in Urology https://www.youtube.com/watch?v=rTjOED_da1I
David – Jacksonville, FL
Men, need to go. Thank you for being here- David
Eric- Atlanta
Micro Ultrasound physician finder: https://www.exactimaging.com/physician-finder Micro Ultrasound vs MRI in guided biopsies: https://www.vumedi.com/video/microultrasound-vs-mri-guided-biopsy-for-prostate-cancer-diagnosis-the-optimum-trial-results/?token=3bdedd05-0b76-4ec4-a1c9-064cd0806a8f&link_data=eyJiZXRfbWFpbF9pdGVtX2lkIjozODE1MDM5MDMsImJldF9tYWlsX2FjdGlvbiI6ImJjIn0%3A1u8F17%3AIbndn9N2vzQ0eVXcd_RdjDyNPHn0JrOEullWh-uonuY
Eric- Atlanta
https://www.nccn.org/members/profile?groupid=13
Eric- Atlanta
MD Anderson
Eric- Atlanta
AS Group Schedule: https://ancan.org/series/active-surveillance-prostate-cancer/
Active Surveillance Prostate Cancer Video Chat, May 14, 2025
It’s GreatNonProfits time of year for AnCan participants!
Each year we need 10 new endorsements to retain our GreatNonProfits Seal, so if you’re relatively new &/or have not endorsed us previously, now’s the time. Just click https://greatnonprofits.org/org/ancan-foundation and tell the short version of why you love AnCan Foundation…. THANK YOU!
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, and Blue Earth Diagnostics.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
2nd Opinions for Biopsies -Jonathan Epstein, MD Contact:jonathaniraepstein@gmail.com https://advanceduropathology.com -Ming Zhou, MD, PHD Now at Mount Sinai Health System in New York City. If you have questions for him, please contact him directly at Email: Ming.zhou@mountsinai.org)
It’s GreatNonProfits time of year for AnCan participants! Each year we need 10 new endorsements to retain our GreatNonProfits Seal, so if you’re relatively new &/or have not endorsed us previously, now’s the time. Just click https://greatnonprofits.org/org/ancan-foundation and tell the short version of why you love AnCan Foundation…. THANK YOU
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Recognize when you are getting bad medical advice. (bj)
Topics Discussed Currently on active surveillance but feeling a sense of urgency because PSA is increasing; considering TURP to treat BPH before seeking active treatment; ADT concerns; using Artera AI to determine benefits of hormone therapy (ADT); importance of genetic testing, to include DECIPHER and PROSTOX; recovering from prostatectomy (less than a week ago) and want to understand what to expect going forward; random (i.e. without having a MRI first) biopsy is not a best practice and you need to get a second opinion on biopsy results; recognizing when you are not getting good medical advice and starting over with a new medical team; radiation cystitis can be treated with Hyperbaric Oxygen Therapy (HBOT); dealing with urge incontinence following radiation treatment.
Chat Log
Jon
Dalfampridine
AnCan – rick
https://greatnonprofits.org/org/ancan-foundation
Jon
I will google around to find it. I would love to do a testamonial
AnCan – rick
Jon – go to https://ancan.org and click the Testimonial tab
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us!
