AnCan Keynote at Houston Methodist, Aug 2024 – Can you hear us? Amplifying the patient voice.

AnCan Keynote at Houston Methodist, Aug 2024 – Can you hear us? Amplifying the patient voice.

AnCan Keynote at Houston Methodist, Aug 2024 – Can you hear us? Amplifying the patient voice.

Can You Hear Us?? How AnCan helps patients make their voice heard – amplifying the patient voice!
Rick Davis gives keynote address at Houston Methodist Neal Cancer Center 12th Annual Cancer Symposium. August 2024.
AnCan GU ASCO26 survivorship poster: participants strongly endorse our Groups

AnCan GU ASCO26 survivorship poster: participants strongly endorse our Groups

AnCan | Virtual Support Calls

AnCan GU ASCO26 survivorship poster: participants strongly endorse our Groups

For release on Monday, Feb 23, 2026

AnCan Foundation strongly believes we run the best support groups available!! We can now release the first results of our 2024 AnCan Participant Survey that confirms that our participants think so too. This first batch of results is taken from almost 300 prostate cancer responses at all levels of disease.

  • 99% of respondents would recommend AnCan Groups
  • 66% improved Quality of Life – 83% noted reduced stress; 62% improved nutrition; 56% increased exercise
  • 88% advocated better for themselves and AnCan influenced over half (54%) the treatment paths
  • 47% made new friendships – AnCan’s personal favorite since this extends support well beyond our Groups

If you’re attending GU ASCO26 , please stop by our poster on Friday, Feb 27 to meet Dr. John Antonucci, discuss these astonishing results and the AnCan method, and pick up a flyer of the poster.

CONTACT

 

 

 

ABSTRACT

Evaluating the impact of virtual peer-led support groups on prostate cancer survivorship: the AnCan experience.

John Antonucci*, Boykin B. Jordan, Anita Oppong, Richard Davis

  • Abstract Number: 265
  • Poster Board Number: A23
  • Session Title: Poster Session B: Prostate Cancer and Urothelial Carcinoma
  • Date and Time: February 27, 2026, 11:30 AM-12:45 PM; 4:45 PM-5:45 PM (PST)

Background: Comprehensive prostate cancer (PCa) survivorship requires more than just clinical care, including education, psychosocial support, self-advocacy, and lifestyle guidance—needs often unmet by traditional oncology visits. Virtual peer-led support groups, such as those offered by the AnCan Foundation, offer accessible, real-time platforms for patients to share experiences, receive guidance, and foster community, regardless of geography. This study evaluates the impact of AnCan participation on factors known to be associated with a better quality of life (QOL) among PCa survivors.

Methods: A web-based survey was administered in 2024 to PCa survivors who attended or expressed interest in AnCan meetings. Respondents (N=294) provided demographic information and rated AnCan’s impact on QOL, peer support, self-advocacy, and satisfaction. Data were analyzed to assess the subjective influence of AnCan’s virtual support model on survivorship.

Results: (2021 results are in brackets for comparison.) Most respondents were in their 60s–70s (75%), highly educated (82%), and 55% had incomes over $100,000. Eighty-three percent had someone in their lives they could rely on and with whom they maintained regular contact.
Nearly all (97%) found AnCan meetings helpful for disease understanding, learning options, and well-being. Sixty-six percent reported improved QOL; 83% [50%] noted reduced stress; 62% [38%] improved nutrition; and 56% [58%] increased exercise. Satisfaction was high, with 99% recommending AnCan.

AnCan involvement enhanced self-advocacy (88%), improved patient-provider communication, and improved decision-making. Seventy percent brought information from AnCan to their providers, 49% added new providers, and 40% changed their lead provider. Over half (54%) reported that AnCan influenced their treatment path.

Socially, 55% [43%] connected with peers outside meetings, and 47% made new friendships.

Conclusions: Survey responses indicate that the AnCan virtual peer-led model, to be described in the poster, meaningfully increases patient knowledge, empowers self-advocacy, reduces stress, and fosters healthy behaviors, improving quality of life for PCa survivors. We advocate for integrating such peer support into NCCN, AUA, and ASCO survivorship guidelines.

POSTER

 

 

Telehealth gets extended through 2027!

Telehealth gets extended through 2027!

Telehealth gets extended through 2027!

As some of you may know, the liberal telehealth rules to conduct medical appointments remotely that were enabled during Covid, sunsetted  late last year. AnCan was upset and vocal that many of our patient advocacy organizations active on The Hill did not campaign more widely to extend it. Organizations like ZERO (prostate cancer) have significant and expensive government relations groups precisely to address such issues on behalf of us patients. AnCan had to bring it to ZERO’s attention to move the ball at a time when ZERO’s high paid CEO was self-admittedly sleeping on the switch.

Telehealth was temporarily extended for those living in rural areas. Then one of our newly minted prostate cancer Moderators, David Sharpe, brought it to AnCan’s attention that legislation was passed on Feb 3, 2026 that has extended comprehensive telehealth through the end of 2027. We asked David to blog its welcome return to wider availability and tell his story around telehealth – thank you Mr. Sharpe!

Medicare Telehealth Coverage Is Extended

The federal government has restored Medicare coverage for telehealth until the end of 2027. That means you can now possibly consult with your doctors online rather than having to meet with them in-person.

Why did I say possibly? Because state medical licensing laws still apply. Often, they can undermine your doctor’s ability to join you on the call. Here’s why: (Don’t construe the following comments as legal or medical advice. This is general information only.)

Telehealth consultations are easiest to arrange when a patient and doctor are in the same state. For instance, if you live in Springfield, Illinois, and want to have a virtual chat with an oncologist in Chicago, no legal impediments are likely to stand in your way.

Things can get tougher if the doctor practices in another state. Physicians are typically required to be licensed in the state where the patient is physically located during the consult. Therein lies a common problem: the doctor is licensed in one state, and you’re in another.

But loopholes exist. According to the Center for Connected Health Policy (CCHP), “A few states have licenses or telehealth-specific exceptions that allow an out-of-state provider to render services via telemedicine in a state where they are not located, or allow a clinician to provide services via telehealth in a state if certain conditions are met (such as agreeing that they will not open an office in that state). Still other states have laws that don’t specifically address telehealth and/or telemedicine licensing, but make allowances for practicing in contiguous states. . . .” For specifics about your state’s rules, explore CCHP’s handy state-by-state guide: https://www.cchpca.org/topic/cross-state-licensing-professional-requirements/.

Despite those exceptions, many physicians and medical centers require patients to be in the same state as the doctor during telehealth appointments. I wish I’d known that last year, before trying to set up virtual consultations from my home in Portland, Oregon, with Fred Hutch (Washington), UCSF, City of Hope (both California), and MD Anderson (Texas0—all of whom turned me down.  Oregon Health & Science University (OHSU, Oregon)) would have refused, too, if I had been in any other state.

But some physicians and hospitals were more relaxed about it. Despite remaining in Portland, I wrangled a telehealth visit with a UCLA specialist. Two AnCan buddies of mine in Oregon and Arizona did so as well. I had even better luck with out-of-state doctors in community practices. Two agreed to confer with me online, and one declined.

If you live near—but not in—the state where your doctor practices, perhaps the easiest option is to make a run for the border. One AnCan member has adopted that strategy as a convenient means of communicating with his faraway medical team in an adjacent state while also satisfying the legal requirements. To have that meeting, he travels a few miles from home to a casino just across the state line; the casino lets him conduct telehealth consultations there. That approach shaves hours off what would otherwise be a protracted road trip to talk with his doctors face-to-face.   # # #

David Sharp  davidsharp1@me.com

Living with Visual Snow – a Therapist’s Perspective with Dr. Paula Hechinger – January 20th, 2025

Living with Visual Snow – a Therapist’s Perspective with Dr. Paula Hechinger

 

“My approach to Visual Snow Syndrome was born from my own journey from being a
depressed and isolated mother of two to becoming a resilient psychoanalyst. Today, I not
only help individuals navigate VSS but also support those facing a wide range of mental
health challenges, including depression, bipolar disorder, anxiety, borderline personality
disorder, trauma, and more. What once felt like a limitation became the foundation of my
purpose to guide others toward healing with empathy, depth, and lived understanding.” -Dr. Paula Hechinger

Join us for a special presentation with Dr. Paula Hechinger, a psychoanalyst who is living with Visual Snow Syndrome. She shares her personal journey, insights, and practical tips for managing VSS. Click here to view her personal testimony and presentation.

For a list of resources on Visual Snow Syndrome (VSS), click here.

Remembering Pat Washburn

Remembering Pat Washburn

AnCan Suffers a Significant Loss

Remembering Pat Washburn

 

Most AnCan’rs have never participated in our Advanced Cancer Care Partners Support Group. While relieved that you’re not counted in this group, you are missing a gem. The group is chock-full of compassion and practical suggestions. One of the reasons for that was our remarkable Co-moderator, Pat Washburn, GRHS.

Pat absolutely radiated love and compassion while being none too short of gumption. That’s a polite Britishism for “piss and vinegar,” defined as ‘shrewd or spirited initiative and resourcefulness. ‘ After her dear husband, Marlyn, died in 2017, 5 months after being diagnosed with breast cancer, Pat made it her mission in life to make the world aware of Male Breast Cancer.

She took Marlyn’s car, had it decorated with his photo and Male BCa awareness icons, then took to the road. North, south, east, and west she travelled – every year. People stopped her at gas stations and restaurants; she made the local newspapers and TV stations everywhere. And always it was the same message. “Men get breast cancer, too!”

The world was her oyster, and Pat took the campaign to Europe on several occasions, including Spain and Scandinavia. Her travels were not just about awareness – she visited ‘her men’ and their care partners wherever she went. She also went out of her way to meet the AnCan’rs she’d met through our Group, most recently Alexa and Brian, on her way to Houston. See who else you can recognize below…

By and large, Pat paid for all her advocacy on her own dime. A couple of the male breast cancer organizations with whom she was affiliated did not treat her well. AnCan first met Pat when she reluctantly co-moderated our now-defunct Male Breast Cancer Support Group, disembowelled by one of those groups. Reluctant because Pat thought she’d be intruding on the men, BUT they loved her. At the time of her passing, AnCan was working with Pat and Bill Harris to reinstate the group – we still hope to in Pat’s memory (anyone interested, please reach out to me at rd@ancan.org).

 

 

Except when travelling or attending one of her Grandies’ or Great Grandies’ school or sporting events, Pat was always present to support Her Majesty, The Queen of DeNile – our Care Partner Lead Moderator, Susan Lahaie. So when she failed to show at a meeting on Aug 18, we reached out. Pat had been hospitalized after fainting on her face, diagnosed with multiple pulmonary embolisms; she looked like the Lone Ranger. During her hospital stay, those clots travelled to her brain, and Pat suffered a second, fatal stroke last week, elected hospice, and died on October 2nd.

All of us at AnCan are deeply saddened and wish her entire family much comfort. Pat’s entire family doesn’t do it justice. She was truly a matriarch with 35-40 Grandies and Great-grandies. In time, Pat’s memory will always be a warm, embracing memory to all who knew her.
Pat Washburn’s obituary can be found here.

Below is the Virtual Celebration of Life for Pat Washburn, held on November 2nd, 2025