by Rick Davis | Aug 27, 2020 | Advocacy, Blood Cancers, Cancer Caregivers, Cancer Resources, Men's Breast Cancer, Webinars, Women's Breast Cancer
Dear Friends and Colleagues,
CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshops. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from the convenience of your home or office. Leading experts in oncology provide the most up-to-date information via phone and online.
Please feel free to forward to friends, family, partners, caregivers, colleagues, health care professionals and anyone affected by cancer.
For more information and to register, please visit www.cancercare.org/connect or email connect@cancercare.org. Health care professionals: please contact us with your name, address, and license type for additional information regarding continuing education credits. Requests must be received within two weeks of the live program.
CancerCare‘s Upcoming Workshops
Managing the Cost of Living Cancer
Wednesday, September 23, 2020 from 1:30 to 2:30 pm Eastern Time
What’s New in the Treatment of Hodgkin Lymphoma
Thursday, September 24, 2020 from 1:30 to 2:30 pm Eastern Time
Living with Metastatic Breast Cancer
Thursday, October 8, 2020 from 1:30 to 2:30 pm Eastern Time
Coping with Metastatic Triple Negative Breast Cancer
Part I of Life with Metastatic Triple Negative Breast Cancer
Wednesday, October 14, 2020 from 1:30 to 2:30 pm Eastern Time
New Perspectives in the Treatment of Peripheral T-Cell Lymphoma (PTCL)
Wednesday, October 21, 2020 from 1:30 to 2:30 pm Eastern Time
Preventing and Managing Infections in Adults Living with Cancer
Monday, October 26, 2020 from 1:30 to 2:30 pm Eastern Time
Caregiving for Your Loved One Living with Metastatic Triple Negative Breast Cancer
Part II of Life with Metastatic Triple Negative Breast Cancer
Wednesday, October 28, 2020 from 1:30 to 2:30 pm Eastern Time
Caregiving for Your Loved One Living with Cancer
Tuesday, November 3, 2020 from 1:30 to 2:30 pm Eastern Time
Progress in the Treatment of Lung Cancer
Part I of Living with Lung Cancer
Tuesday, November 10, 2020 from 1:30 to 2:30 pm Eastern Time
For Caregivers: Practical Tips for Coping with Your Loved One’s Lung Cancer
Part II of Living with Lung Cancer
Tuesday, November 17, 2020 from 1:30 to 2:30 pm Eastern Time
Update on Diffuse Large B-Cell Lymphoma (DLBCL)
Wednesday, November 18, 2020 from 1:30 to 2:30 pm Eastern Time
Updates from the San Antonio Breast Cancer Symposium (SABCS) on Triple Negative Breast Cancer (SABCS)
Tuesday, December 15, 2020 from 1:30 to 2:30 pm Eastern Time
by Rick Davis | Aug 23, 2020 | Cancer Resources, Cancer Caregivers, Health Resources, Maui, Men 'Speaking Freely', Prostate Cancer, Recent News
Peter Kafka’s musing this week are born in Maui amd quicky emanate to encompass medical and natural challenges all the way to the mainland. (rd)
Sometimes I feel like I have my hand on a “Mouse” and I am continually zooming in and out, changing perspective on my own issues and those of much larger pictures. I could easily focus in on my own challenges and the fact that our local hospital appears to be in the midst of a second serious Covid-19 outbreak effecting some two dozen patients and an equal number of staff this time around. Normally I would not care too much, but since this is our only community hospital and I need to access it on a regular basis for my own treatment protocol it puts me in an awkward position.
But when I zoom out a bit, I can easily be more concerned about the city and count of Honolulu on Oahu where one of the most rapid and significant increases in Covid-19 infection rates in the US is occurring at present. But then I expand my vision a bit and cross the Pacific and note that the many residents of the Western states, and most particularly California are in the midst of a second serious thereat to life and livelihood, the extreme heat and wildfire season.
Normally I could say that these fires are too far away from me to matter. But a very good friend of mine who I met 4-years ago at UCSF while doing radiation for our respective prostate cancers, lives smack dab in the middle of what is now one of the largest fires in California history. When I spoke to, he and his wife earlier in the week they had reported that their house was standing at that time, but that the fire was igniting some other structures on their property. I don’t have an update, but when I search Google Maps, I can follow their road up the mountain and see that they are indeed surrounded by fire.
I zoom out a bit further and see that we are in the midst of hurricane season, that our country has yet to adequately manage this pandemic and we lead the world in terms of disease and deaths. Then further afield there are many parts of the world suffering from financial ruin and food shortages on top of everything. And then the ultimate click of the mouse greeted me this morning to warn of a 0.5 percent chance of our Earth being hit by an asteroid on the day before election day in November!
All this kind of helps me see that my little struggle with Prostate Cancer is not the center of the universe. I think it is helpful to zoom out to the bigger picture from time to time and keep perspective. One of the reasons I stay so engaged with our AnCan virtual online support meetings is to remember that others have significant issues and concerns that need attention and that I am big enough to step outside and beyond my little world and help another.
by Rick Davis | Aug 19, 2020 | Cancer Resources, Blood Cancers, Maui, Men 'Speaking Freely', Men's Breast Cancer, nmCRPC, Ovarian Cancer, Prostate Cancer, Women's Breast Cancer
One of the video chat, virtual groups our factotum Board Chair, Peter Kafka, moderates, is a men-only, pan-cancer meeting on the island of Maui (& Malakai), where he lives fulltime. His recent reminder for tonight’s meeting makes worrisome reading and includes helpful advice ……
Aloha! ……. once again our local hospital is in the news due to very recent incidents of Covid-19 infections among some patients and staff. I don’t mention this to cause alarm, but rather to caution those of us who must out of necessity use the facilities of the hospital for treatment. I found myself at the hospital for the administration of an injection on the very morning when this “outbreak” was first reported last week. Of course it made me a little uncomfortable, but what to do? Those of us with cancer, and particularly those of us undergoing treatment find ourselves in the “most vulnerable” category when it comes to exposure to Covid-19. I suspect that many of you are paying particular attention to ways that you can stay safe. It turns out that there might be some things we can do.
When I was undergoing chemo infusions every three weeks at the Cancer Center I would don a disposable tyvek painter’s suit that I picked up inexpensively at the hardware store. I would step into this suit in the hospital parking lot and when I was done with my 4 hour protocol I would remove the suit and toss it. This would save me the hassle of thinking I needed to change out of my clothes right away and wash them. Of course it might not have done any good, but it did give me peace of mind that I was taking some kind of additional protection other than wearing a mask and disposable gloves.
Another thing that I read about recently is the benefit of an annual flu vaccine. I think there has been a study or two about the lower incidence of more serious incidence, side effects and death among some European populations who stayed up to date with their annual flu vaccines. I know that Covid-19 is a different beast than the annual flu, but there might be some benefit to keeping up protection to the flu that strengthens our immune system in regards to Covid-19. Don’t quote me on this theory, but since my cancer diagnosis some 6 + years ago I have made it a point to keep up with annual flu shots and pneumonia vaccines since I knew my immune system was compromised. You may have noticed that all the drug stores and supermarkets are now advertising that the “walk in” flu shots are available for this year. No need to see a doctor or clinic.
One of the ways that we tend to let our guard down is by thinking that there is no one that we know of that has caught Covid-19, been sick or in the worst case scenario has died from this disease. I know I have caught myself getting a little careless because of this way of thinking. But I remind myself that one of our regular participants on these bi-monthly calls got caught up in the first Maui Memorial Hospital outbreak last March when he unwittingly had to go to the hospital for treatment related to his cancer diagnosis. He did contract the virus and subsequently died very shortly afterwards.
So, again I am not telling you this to cause alarm. Just take some extra precautions. I am certainly not saying you should stay away from doctors or the hospital. I, myself have to utilize the hospital facilities several times a month and also get blood drawn at a local lab quite frequently. I am not going to skip out on my cancer treatment protocol. But I am going to take whatever steps I can to protect myself.
None of us need feel like we are alone on this journey! Remember that Information is Power and the more information we share about our experience – the more powerful we are and we no longer feel like victims of our circumstance but masters of them instead.
Be Well, Stay Strong and ENJOY!
by Rick Davis | Aug 17, 2020 | Blood Cancers, Cancer Resources, Complementary Medicine, Recent News, Webinars
Kenny Capps is a pretty remarkable individual … a runner his whole life, he was diagnosed with Multiple Myeloma in 2015. Only in his mid-40’s, Kenny was much concerned about Quality of Life during treatment. much like AnCan’s Founder, Rick Davis, Kenny returned to endurance exercise soon after the bone marrow transplants. In 2018, he ran the 1125 miles N. Carolina Mountain to Sea Trail in 54 days.
Kenny has now partnered with AnCan to establish our Blood Cancer Virtual Support Group with his non-profit, Throwing Bones. Throwing Bones is dedicated to improving quaity of life for people living with blood cancers through sponsoring healthy and active lifestyles. It recently launched an educational webinar series on Exrecise & Cancer, that you can hear at https://throwing-bones.org/cancer-active-education/ .
Just a few days later, Kenny recorded an intereview with Eshter Schorr, Patient Power Co-founder. While that has not yet been published, it is coming soon on http://www.patientpower.info/ I, for one, can’t wait!
by Rick Davis | Aug 6, 2020 | Blood Cancers, Brain Tumors, Cancer Caregivers, Cancer Resources, Health Resources, hospice and palliative, Men's Breast Cancer, Ovarian Cancer, Prostate Cancer, Recent News, Women's Breast Cancer
One of our earliest, and certainly most enduring, non-prostate cancer moderators has been nationally recognized caregiver advocate, Renata Louwers. In barely 12 months, if that, Renata lost her first husband, Ahmad, to bladder cancer back in 2014. Since that time she has tirelessly campaigned to establish the Caregiver perspective on the medical radar; not to mention all the fundraising she has done for BCAN and bladder cancer …. G-d Bless Her!
This past week Health Union published the second part of an article Renata wrote for their Bladder Cancer Page – both parts are linked below. And no, they are not specifically about bladder cancer but more about her experience of being a peer moderator for a videochat virtual group that AnCan runs for Advanced Cancer Caregivers.
Pt 1 – https://bladdercancer.net/caregiver/online-support-ancan/
Pt 2 https://bladdercancer.net/caregiver/volunteer-moderating-support/
The easiest way to find more of Renata’s articles …. and there are so many excellent ones, especially for The Philadelphia Inquirer, is to google ‘Renata Louwers, medical journalist‘; do it and you’ll have no regrets!
AnCan’s heartbeat thrives on helping peers; it races when our Volunteers, our lifeblood, find satisfaction in the work they perform for us at AnCan. We love our volunteers; we especially love you, Renata xox
To receive reminders for our Advanced Cancer Caregivers Group, or any others that are all free & drop-in, click here.