Active Surveillance Prostate Cancer Virtual Support Group
Active Surveillance (AS) for low-risk prostate cancer presents its own challenges that are very different from other treatment protocols. This virtual group is for men and caregivers on or considering AS to treat their condition. New participants are given priority to discuss their situation. Click here for detailed information.
Wednesday evening of each month at 8 pm EST/EDT (US)
Active Surveillance Prostate Cancer Virtual Support Group
Active Surveillance (AS) for low-risk prostate cancer presents its own challenges that are very different from other treatment protocols. This virtual group is for men and caregivers on or considering AS to treat their condition. New participants are given priority to discuss their situation. Click here for detailed information.
1st, 2nd & 3rd Wednesdays & 4th Thursdays of each month at 8 pm EST/EDT (US)
Come float away with us, as we create colorful butterflies in this art class! Watercolor pencils can be found at Dollar Tree, Michaels, Hobby Lobby, any craft supply store. You can also use regular watercolor paints, crayons, and colored pencils. Don’t feel like you need to go out and purchase an entirely new set of supplies!
What you’ll need
Paper – watercolor paper if you are using watercolor pencils or paints
Art medium of your choice – watercolor pencils, watercolor paints, crayons, or colored pencils (if using watercolor pencils or paint)
Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 14, 2023
AnCan is grateful to the following sponsors for making this recording posssible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s pick: Prostatectomy and recurrence…in a Gleason 3+3. (bn)
Topics Discussed
Rug pulled out on his Xtandi and Orgovyx financial support; two great docs to choose from in Houston; options if you’re de novo, living on Maui, and have Kaiser insurance; 2016 prostatectomy for a Gleason 6 — and now PSA is climbing; nighttime leg cramps as radiation treatments end — try Theraworx, Caleb Treeze, pickle juice; EmbrWave still hot topic; Gleason 10 a decade ago and he’s still going strong; hyperbaric chamber report — ear issues and blood pressure but cystitis is improved; still battling fatigue 9 months post-ADT, though testosterone is back and he’s active; Antanorakis OKs a 6-month ADT shot; mailman won’t stop bringing pills; bladder bleeds during clinical trial but he’s sticking it out; for neuropathy, Voltaren and/or bumpy sandals; half-gallon-a-day drinker of corn silk tea for cystitis; radiation therapy might be OK with colitis.
Chat Log
Peter Kafka-Maui HI · 6:24 PM Dr. Eleni Estathiou at Houston Methodist or Dr. Paul Corn at MD Anderson
Rick · 7:14 PM No gents …. maybe micro Mx.. Pelvic girdle RT stilstan
Rick · 7:16 PM Still Standard
Rick · 7:17 PM High volume 3+3 can warrant surgery
Peter Kafka-Maui HI · 7:19 PM Theraworx
Harry Spila · 7:20 PM therworx is great stuff
Harry Spila · 7:20 PM it’s like a foam
George Wesoloski · 7:22 PM Epson salt (Magnesium sulfate) and soak in the bathtub
Ravi · 7:23 PM I have to leave now. All I wanted to report on was regarding what I am doing for my severe radiation cystitis. I am undergoing hyperbaric oxygen therapy 2 hours every day at 2.5 atm pressure of 100% oxygen. Had 10 treatments so far, about 1.5 more months to go.
Richard Tolbert · 7:26 PM For Leg and Foot Cramps: Proven Old Amish Formula.Caleb Treeze Organic Farms. 818.247.9600. Some health food stores carry , also try amazon.
Rick · 7:34 PM Stay away from 6 month shots
Rick · 7:35 PM Just check T in last 2mo N t hs
Pat Martin · 7:39 PM Capivasertib
Jim B · 7:49 PM Pat, What was the name of the arthritic cream that you use to relieve neuropathy?
George Wesoloski · 7:49 PM I could do an update.
David Muslin · 7:50 PM Prostotectemy praa · stuh · tek · tuh · mee
Pat Martin · 7:52 PM Volteran…diclofenac sodium topical gel 1% I’ve talked with a pharmacist that has concocted up to 5%
Jim B · 7:54 PM Thanks Pat! I’ll be giving that a try for the same neuropathy issues that I’m experiencing from chemo.
Frank Fabish Columbus OH · 7:55 PM got to go guys see you next week
Pat Martin · 7:56 PM I usually get the generic, usually right beside name brand, 10% discount
WEBINAR – ‘The Invasion of the Prostate Snatchers: 13 years Later’: An Evening with Dr. Mark Scholz
By Howard Wolinsky, Peter Kafka and Ben Nathanson
Dr. Mark Scholz, author of Invasion of the Prostate Snatchers, drew a record audience to his AnCan webinar on January 30, 2023.
Registration worldwide was close to 1,000 — nearly double the previous record — with more than 600 watching live.
Scholz’s talk, “Invasion of the Prostate Snatchers: 13 years later” discussed how prostate cancer treatment — and overtreatment — has progressed since the book’s original publication in 2010. The book took aim at a urological-industrial complex performing surgeries on hundreds of thousands of low-risk patients, leaving many impotent and incontinent.
Half those men, he argued, could safely have been followed without aggressive treatment. Scholz, a medical oncologist, coauthored the book with patient Ralph Blum. A new edition was issued in 2021.
While urologists today still unnecessarily “snatch” prostates, Scholz said, the number is far fewer since active surveillance was endorsed in 2007 as a safe and effective strategy. And he said radiation therapy, which he had criticized in the past, also has become safer and more effective.
Still, men come to him thinking they have only two options: surgery or radiation. In fact, they have more than a dozen options, based on the severity of their disease and their preferred balance of treatment and side effects. He urges patients to “obtain facts and apply principles” — replacing assumptions about cancer with informed decisions.
Even for the smaller, but significant segment of men diagnosed with more serious grades of prostate cancer including metastatic, Scholz explained that there has been so much progress in new treatment modalities with limited side effects that many men are living long productive lives living with their disease and not dying from prostate cancer. Dr. Scholz stressed that unlike other cancers, prostate cancer is much slower growing and the rush for treatment in most instances is not necessary.
After the talk, Scholz answered 40 minutes of audience questions.
AnCan moderator Joe Gallo produced the webinar, and moderators Peter Kafka, Howard Wolinsky, and Ben Nathanson relayed questions. Alexandra Scholz, CEO of Prostate Cancer Research Institute, the nonprofit education initiative run by Scholz, edited the video, and she and Peter Scholz lent production assistance.
