On June 30th, we hosted a fascinating and informative webinar titled “Advocating for Rare Diseases“.
We had Katelyn Laws (Rare Disease Legislative Advocates Program Coordinator) give a great outline of what advocacy is, what types of advocacy there are, and how to do it. AnCan’s Sarcoidosis virtual support group moderator Cathleen Terrano moderated and sparked fascinating conversation with our panelists Ritchie Johnson (Renal Medullary Carcinoma), Charles Mickles (Young Onset Parkinson’s Disease), and Trina Massey Davis (Sarcoidosis).
I had the pleasure of jumping in for the Q&A segment, which was a wonderful (and real!) discussion many topics, such as discouragement when advocating, how to write out your story, and more.
Watch this phenomenal presentation here:
Special thanks to Myovant Sciences – Pfizer, and Foundation Medicine for sponsoring this webinar.
Ritchie Johnson is in the dictionary for “turning pain into purpose“. She founded the Chris “CJ” Johnson Foundation in honor of her son Chris, with the goal of ending Renal Medullary Carcinoma. We are so humbled to have her as lead moderator for the RMC virtual support group.
It’s no surprise that Ritchie is very popular in the Kidney Cancer community, and is only getting more popular! She was invited to be on Good Morning America’s GMA3 to share her story and how she is actively helping the RMC community.
We’re also pleased to have Ritchie as a panelist for our upcoming webinar “Advocating for Rare Diseases” on June 30th. She’ll discuss her own advocacy journey, and you’ll hear from other amazing members of the Rare Disease community as well. (click image for pdf)
For information on our peer-led video chat RENAL MEDULLARY CARCINOMA VIRTUAL SUPPORT GROUP, click here.
To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.
AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborateevery 4th Wednesday of the month for Solo Arts Heal! It just so happens to be the 4th Wednesday today, so be sure to check out a can’t miss SAH with The Marsh founder, Stephanie Weisman TONIGHT at 7:30 PT!
On May 26th, we had the pleasure of having Jimmy Greenfield!
Jimmy is a professional guitarist, singer and teacher from Washington, D.C. He has performed in many combinations as a soloist and bandleader in many different genres of music.
Jimmy performed jazz standards that are close to his heart. His mother exposed him to jazz daily from his earliest years. His fondest memories of her live on through these songs.
Watch this incredible performance here:
To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.
COMPLETELY FREE, you’ll find fun activities (trivia, dance party, scavenger hunts, prizes), meet new friends, and hear from top experts about topics relevant to you. Fertility, dating, mental health, and so much more.
You’ll also see AnCan’s own Wendy Garvin Mayo at the Practical Resources for Caregivers session on Sunday, and Alexa Jett(me) will be out and about representing any and everything AnCan. Don’t forget to say hi!
AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborateevery 4th Wednesday of the month for Solo Arts Heal!
On April 28th, we had the pleasure of having Elizabeth McLachlan!
Elizabeth shared excerpts of how she uses creative pursuits like tap dancing and singing to express herself, undeterred by the challenges that multiple sclerosis (MS) has brought into her life. MS is a debilitating disease that attacks the brain and central nervous system.
Afterwards, Rick Davis and Elizabeth discussed how important creative expression is. We’re certain you’ll fall in love with Elizabeth too.
Watch this incredible performance here:
To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.
