Hi-Risk/Recurrent/Advanced PrCa Video Chat, 3/10/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 3/10/26

by | Mar 11, 2026 | High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, mCRPC, mHSPC, Prostate Cancer, Recorded Groups, Uncategorized

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 3/10/26

 

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Two men recur from low levels, one younger, while a much younger man is denovo metastatic.

Topics Discussed

Fit 87 yr old seeks more treatment ideas; younger man recurs post-LDR brachy for 3+4; – cud be a NCI candidate; 3+3 comes back after 5 yrs as 4+5; PSA stays high but stable after 9 months of doublet – change docs!; Clomid causing heart issues; Long Game candidate gives update; Axumin goes AWOL; another very young Newbie with multiple 5+5 cores needs a GU MO; Gent switches care at MSKCC

Chat

  • AnCan – Ricksent: 3:14 PM

    877 582 7011 – GoTo Technical Help Room # 222 583 973

  • Bob Schwartz, USN, Venice, FL. sent: 3:30 PM

    Dr. Elizabeth Guancial, 1970 Golf St. Sarasota, FL. 34236, (941)957-1000. https://flcancer.com/en/physician/elizabeth-guancial-md/

  • AnCan – Rick sent: 3:31 PM

    Cabazitaxel/Jevtana should be discussed

  • Steve L sent: 3:34 PM

    Thanks Jeff

  • Jeff Marchi – San Francisco sent: 3:51 PM

    orgovyx

  • Answercare sent: 3:51 PM

    Mach Roach at UCSF. Is he good?

  • Jeff Marchi – San Francisco sent: 3:52 PM

    roach is radiation oncologist

  • AnCan – Rick sent: 3:52 PM

    Rahul Aggarwal http://cancer.ucsf.edu/people/profiles/aggarwal_rahul.7339

  • Jeff Marchi – San Francisco sent: 3:52 PM

    he needs a GU oncologist

  • Bill Franklin sent: 3:55 PM

    https://ancan.org/?s=playing+the+long+game

  • AnCan – Rick sent: 3:56 PM

    Terry Friedlander https://www.ucsfhealth.org/terence.friedlander

  • AnCan – Rick sent: 4:00 PM

    Rohit Bose https://www.ucsfhealth.org/providers/rohit-bose

  • Steve L sent: 4:09 PM

    No time needed, Thank you.

  • Morgan Brooke sent: 4:17 PM

    I will share my journey if there is time. I don’t know if I was supposed to provide anything prior to the call

  • AnCan – Rick sent: 4:21 PM

    Morgan – you need to be here in the first 10 minutes as a Newbie. come back next week.

  • John Maxwell – Chicago sent: 4:22 PM

    John A, I do not need time tonight.

  • Steve Roux, Up North, Michigan sent: 4:26 PM

    I need to run – Great meeting guys!

  • Damon sent: 4:28 PM

    I need to drop off. Thanks for the advice on my case. I have a lot to think about. Hope to see you next time.

  • Jim Marshall, Vet Support Grp. Moderator sent: 4:31 PM

    Dr Channing Paller, GU Med Oncologist https://profiles.hopkinsmedicine.org/provider/channing-judith-paller/2706765

  • Alfredo in Wimberley, TX sent: 4:33 PM

    Good luck John B. I must ring off for tonight, best wishes to one and all! — Alfredo

  • Morgan Brooke sent: 4:36 PM

    Okay. I thought I was here in the first 10 minutes. I’ll be sure to join earlier next week. Thank you

  • Jim Marshall, Vet Support Grp. Moderator sent: 4:36 PM

    Jack. – welcome to the CLUB!!!!!

  • Jeff Marchi – San Francisco sent: 4:38 PM

    morgan too many new people today

  • Morgan Brooke sent: 4:38 PM

    Understood

  • Jeff Marchi – San Francisco sent: 4:40 PM

    get here 10 minutes before the meeting

  • Danny sent: 4:50 PM

    you looking for folks to speak?

  • Danny sent: 4:53 PM

    Jun 2022 PSA=4 (no actions taken) Nov 2025 PSA=13 Nov 2025 MRI PiRADs=5 Nov 2025 Biopsy Gleason 10 (5+5) Nov 2025 PSMA PET Local pelvic mets Nov 2025 No Genetic germline or somatic adaptations to treat Dec 2025 Started ADT (Nubeqa 1200mg + Orgovyx 120mg) daily Jan 2026 Blood Panel (PSA=0.45 T=11)

    Urology: R. Jeffrey Karnes, MD Onc: Elisabeth Heath, MD RadOnc: Anne Rajkumar, MD

  • AnCan – Rick sent: 4:58 PM

    Dr. Antonarakis https://med.umn.edu/bio/dom-a-z/emmanuel-antonarakis

Gay & Bisexual Men Prostate Cancer Group

by | Oct 13, 2025

 

Gay or bisexual men diagnosed with prostate cancer have particular concerns. Addressing them with your peers is far easier!
AnCan Foundation, the innovator of virtual support groups, addresses special interests in special groups. We gather peers who easily relate and can support each other.
Moderated by Gay & Bisexual peers with prostate cancer, this group addresses your specific questions. Our moderators are both technically expert and supportive.
The group is open to all levels of prostate cancer no matter where you are in your journey. AnCan offers specific prostate cancer groups at all levels. This group will focus on gay and bisexual issues less comfortable to raise in open groups rather than treatment questions.
TODAY ONLY we’ll start at 6pm ET
Next month and onward: 2nd Tuesdays of every month at 5:30pm Eastern/ 4:40pm Central/ 3:30pm Mountain/ 2:30pm Pacific always in the AnCan Schmier Room.
Meetings are free and drop-in – no sign up or pre-registration required.
Sign up to receive a Reminder before each meeting at https://ancan.org/contact-us/
Other virtual AnCan Groups include stage-based prostate cancer, art and creative writing classes, Veterans programs and mental health support.

AnCan Foundation dedicates this group in loving memory of Ken Mason

Gay & Bisexual Men Prostate Cancer Group

by | Oct 1, 2025

 

Gay or bisexual men diagnosed with prostate cancer have particular concerns. Addressing them with your peers is far easier!
AnCan Foundation, the innovator of virtual support groups, addresses special interests in special groups. We gather peers who easily relate and can support each other.
Moderated by Gay & Bisexual peers with prostate cancer, this group addresses your specific questions. Our moderators are both technically expert and supportive.
The group is open to all levels of prostate cancer no matter where you are in your journey. AnCan offers specific prostate cancer groups at all levels. This group will focus on gay and bisexual issues less comfortable to raise in open groups rather than treatment questions.
2nd Tuesdays of every month at 5:30pm Eastern/ 4:40pm Central/ 3:30pm Mountain/ 2:30pm Pacific always in the AnCan Schmier Room.
Meetings are free and drop-in – no sign up or pre-registration required.
Sign up to receive a Reminder before each meeting at https://ancan.org/contact-us/
Other virtual AnCan Groups include stage-based prostate cancer, art and creative writing classes, Veterans programs and mental health support.

AnCan Foundation dedicates this group in loving memory of Ken Mason

MRI 2nd Opinions: ProstateID

by | Sep 3, 2025

MRI 2nd Opinions: ProstateID

In our prostate cancer world, getting 2nd opinions is critical. It’s easy to find a medical 2nd opinion, and you can get your pathology reread by the best! But MRIs – that’s been challenging. Now there’s an affordable AI-validated option that’s proven very reliable* – ProstateID

*Sensitiviy and Specificity in the mid-90% range

Founder and Developer, Randall Jones, PhD explains the technology and its uses. Hosted by AnCan Advisory Board Member and prostate cancer peer, Dr. Mike Crosby.

No need to register ahead. Drop in and join us for this webinar.

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 3/10/26

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 16, 2024

by | Sep 17, 2024 | High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, Recorded Groups

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 16, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
Doctor of Nursing, Wendy Garvin Mayo says, “Every patient should watch this!” View Clinical Trials 101: Common Myths and Facts – find it at https://ancan.org/webinar-clinical-trials-101-common-myths-and-facts/
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/   Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editor’s Pick: Germline BRCA2 Dx may impact treatment decisions (rd)
Topics Discussed
Younger high risk Gent with germline BRCA; is singlet enough for T3c (SVI); retrying daro; drug holiday endures for CHEK2 Gent; FINALLY starting HT 11 yrs after RP; HT effective; persevering w. Kwon… at least until next decision point; Testosterone discussion
Chat Log