Hi-Risk/Recurrent/Advanced PCa Video Chat, June 5, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 5, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 5, 2023

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant & Telix

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

Apologies to all who attended live last night! GoTo issued a massive update over the weekend and did not advise their customers. Some folks couldn’t even open their rooms – in our case we lost video. Citrix support was less than honest, causing even more grief. As you saw we had to shut down the room and restart after they reset our settings. It put me in a very grumpy mood … :-(( – apologies if I offended anyone!

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/     Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/  Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/       Veterans Healthcare… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: I could go for the very end with ice cream and Capt Joe’s tips on koi – BUT how about somatic testing?! It’s so important, many docs don’t test, and when they do, forget to repeat!

Topics Discussed

Dx at a young 80, denovo Nx; time to switch from the VA?; Gents wants to add abi but doc reluctant; chemo fails – nothing sticks… what next but somatic testing!; multiple treatment modes at one time;…and another without answers who needs testing and a GU med onc; retention issues from RT damage – back to rad onc; our foamy gland guy holds steady; switching to Metformin for diabetes … and cutting out the ice cream!; all you ever wanted to know about keeping koi!

Chat Log

rd sent · 5:31 PM DELMARVA gents… organize a lunch!!!

rd sent · 5:48 PM somatic testing

Julian – Houston sent · 6:31 PM good evening everyone – see you next week! Thanks!!!

TonyFig sent · 6:53 PM https://www.urmc.rochester.edu/people/31825023-peter-van-veldhuizen

Peter sent · 7:09 PM Good night gents!

Steve Schuler sent · 7:22 PM Thanks folks, have to go

Mike Yancey – Oklahoma sent · 7:26 PM Great Meeting. Early morning of more treatments. Gotta drop

Chip & Jane sent · 7:29 PM G’Nite Gents. THANK YOU! Seems I found a ” home” here . Much appreciated.

Frank Fabish Columbus OH sent · 7:37 PM I’m off. Thanks guys.

Jack G. sent · 7:37 PM Good night and thanks. See you next week. Jack G.

Veterans Appreciation Art Class Announcement!

art class

We have a very exciting announcement about our first of two upcoming art classes:

Veterans Appreciation Art Class, sponsored by Myriad Genetics and Myovant! 
This will be a free art class offered to Veterans of all branches of the US armed forces, their family, and their friends.
When? Wednesday June 28th at 8pm ET / 5pm PT
And when we say free, we mean that in addition to the lesson being free, the supplies will also be free, too!! We are SO happy that we are able to offer this class – especially because it will benefit a community of individuals that is much more in need of mental health benefits than they might realize.
Last day to register is June 19th. We want to make sure everyone receives their supplies on time!
Your instructor, Hannah Garrison, currently works with the VA hospital system in San Antonio, TX, as a creative arts instructor for their psychiatric units. She has been there to witness the incredible mental health benefits of a creative arts practice in the individuals she works with. We’re here to provide space for a community of like-minded individuals. Starting a new hobby can be intimidating, so that’s why we are so  happy to be able to provide your supplies completely free.
PLEASE send this class registration to any and all Veterans you know, that may be interested.
We’ll be using watercolors and watercolor pencils! You’ll be receiving everything needed to complete this project in our class time – minus any napkins and water, of course.
Are you a Veteran in need of some virtual support? Whether you have chronic illness, cancer, mental health concerns, etc; we welcome you with open arms. We’re a virtual support group filled with other peers who have a lot of advice and support to offer.
Next meeting is June 22nd at 8pm ET / 5pm PT. Drop in HERE. No need to register.
Looking to make some art a little sooner? We have our next general art class on June 8th at 8pm ET! It’s free, and it’s BYOAS (Bring Your Own Art Supplies). We’re making an acrylic painting on canvas!
Please email Hannah@ancan.org or Alexa@ancan.org with any questions! Happy painting!
Hi-Risk/Recurrent/Advanced PCa Video Chat, June 5, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 23, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 23, 2023

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

AnCan Foundation deeply mourns our dear Board & Advisory Board Member, Moderator and Brains Trust Brother, Herb Geller. To read more click https://ancan.org/herbert-herb-miles-geller-phd-1945-2023/ 

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern
https://ancan.org/men-speaking-freely/
Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Handcuffed by HMO, making the best of it. (bn)

Topics Discussed

Memory issues, but HMO won’t allow him darolutamide — try monotherapy abi?; tumors block TURP surgery, hoping ADT will ease surgeon’s job; AnCan pushes for better Orgovyx pricing; acupuncture and hot flashes; abi first, then enzalutamide — not the reverse; doing well on daro doublet after chemo; Orgovyx probably won’t thin the fog; mulling DEXA scan report; daro monotherapy addresses heart issue; filling the need for exercise with an e-bike; how much vitamin D?; grateful after switching to a GU oncologist; keep alert to side effects in Xgeva and Prolia; AnCan’s prostate cancer forum is back (https://ancan.org/forums); Embr Wave outdoors; landing an appointment with Oliver Sartor.

Chat Log

Harry Spila · 7:58 PM gotta go, take care everyone
AnCan – rick · 7:59 PM Happy riding!
Harry Spila · 8:00 PM 🚴
Mike Yancey – Oklahoma · 8:06 PM Gotta run
julian – houston · 8:06 PM great conversation, as always. Enjoy your Memorial Weekend!

AnCan Friends May Art Class – Twilight In The Pines

art class

Hello friends! We have yet another recording for art class! This time we have May’s art project: Twilight In The Pines! Last week we got to use acrylic paint for this serene piney scene at the twilight hour. We had a great time, and we even celebrated longtime participant, Karen Broder’s birthday!

If you’d like to give it a try for yourself, check out the video below:

Check out supplies here:

  • Canvas 9x12in OR your size preference
  • Acrylic paints: Two types of Blues (I’ll show you how to make more blues if you don’t have another)/ Orange / Pink (I used a dark pink; can use red if needed) / Yellow / White / Black
  • Brushes: Flat 3/4in or similar / Fan brush small size OR Round brush if you don’t have a fan brush
  • Water
  • Napkins
  • Option: something to cover up anything you don’t want paint splatters to get on

 

Know someone who wants more information about our art classes? Send them over to our Art Class FAQ HERE

You can also check out past class there, too!

Our next class will be held a little bit earlier than usual: Thursday June 8th at 8pm ET

Ready to sign up for that one? Click here to register!!

Don’t forget you can always email Hannah@ancan.org OR Alexa@ancan if you have any questions about our art classes.

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 5, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 15, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 15, 2023

AnCan is grateful to the following sponsors for making this recording posssible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

AnCan Foundation deeply mourns our dear Board & Advisory Board Member, Moderator and Brains Trust Brother, Herb Geller. To read more click https://mailchi.mp/ancan/remembering-…

All AnCan’s groups are free and drop-in … join us in person sometime!    You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/     Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/       Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Controversial Death with Dignity discussion starts – and Keytruda shows up more than once at the back end … after passing Dude Wipes along the way! (rd)

Topics Discussed

Talking ‘Death with Dignity’ with AnCan Advocate; urologist refuses Provenge – get a GU med onc!; pros & cons of treating the primary; timing of RT; handling multiple QBs; Bx find no NEC; salvage RT commenced; clean up with Dude Wipes; brain fog/short term memory loss – drug and non-drug remedies; Flomax and brain fog; some Gents take just 2.5mg/daily prednisone with abi; Eligard & ukuleles; another Gent looks to pembro/Keytruda; proteomics; wean off Prolia; pembro vs chemo decision

Chat Log

Ben Nathanson sent · 5:14 PM As the End Nears: Dying with Metastatic Cancer https://join.compassionandchoices.org/a/end-nears-dying-metastatic-cancer Compassion & Choices https://www.compassionandchoices.org   States where medical aid in dying is authorized, and dates when it took effect: Oregon 10/27/1997 Washington 3/5/2009 Montana 12/31/2009 Vermont 5/20/2013 California 6/9/2016 Colorado 12/16/2016 Washington, D.C. 2/18/2017 Hawai‘i 1/1/2019 New Jersey 8/1/2019 Maine 9/19/2019 New Mexico 6/20/2021

Joe Comanda (Philadelphia) sent · 5:21 PM I don’t want to cause trouble, but I am troubled by the advocacy of Compassionate Choices, formerly the Hemlock Society. I would hope that men would not take that way out.

Len Sierra sent · 5:23 PM Everyone has to make that decision for themselves. No one else should make it for them.

rd sent · 5:24 PM We think it’ s each person to his own… AnCan believes everyone has a choice, Joe.

Jim B sent · 5:36 PM Hi Bob, I just had a Pluvicto treatment this morning. No side effects so far but I’m sure that dry mouth, nausea and slight fatigue will continue. How is your WBC coming along?

Joe Gallo sent · 5:47 PM Genito Urinary (GU) Oncologist Dr. Eleni Efstathiou

John Madden & Meiying Hu (May) – Houston TX sent · 5:49 PM https://www.houstonmethodist.org/doctor/eleni-efstathiou/

sent · 5:49 PM Eleni Efstathiou, MD, PhD Genitourinary Medical Oncology, Medical Oncology

John Madden & Meiying Hu (May) – Houston TX sent · 6:15 PM Open/Ongoing: https://www.swog.org/clinical-trials/s1802

John A sent · 6:15 PM https://reference.medscape.com/medline/abstract/31082943?icd=login_success_email_match_norm

Henry sent · 6:15 PM https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9173627/

John A sent · 6:15 PM kinda old

sent · 6:15 PM https://www.pcf.org/c/more-evidence-for-benefits-of-radiation-therapy-in-metastatic-prostate-cancer/?utm_source=NewsPulse&utm_medium=email&utm_campaign=SEPT22NP

sent · 6:16 PM http://www.stampedetrial.org/participants/about-stampede

Henry sent · 6:19 PM https://www.sciencedirect.com/science/article/pii/S1047279723000042

Peter K sent · 6:37 PM I have had 3 med oncs for over a year now. 2 up to a year ago. They are all valuable and I keep them all informed and they all have vaulable input

rd sent · 6:38 PM MDA – maybe the best cancer hospital … but not the best prostate cancer hospital

Peter K sent · 6:42 PM They are doing MRidian SBRT with View Rayt in Michigan- low toxicity in trials

Henry sent · 6:56 PM https://dudeproducts.com/

John Madden & Meiying Hu (May) – Houston TX sent · 6:59 PM Lions Mane: https://www.amazon.com/dp/B09FD8C16B?psc=1&ref=ppx_yo2ov_dt_b_product_details

Frank Fabish Columbus OH sent · 7:04 PM Got to go guys. See you next week.

Jack sent · 7:05 PM Have to go. See you next time.

Bob G sent · 7:09 PM https://pubmed.ncbi.nlm.nih.gov/29971698/

Pat Martin sent · 7:15 PM I appreciate all you. You are great source of strength an encouragement. see you next Tuesday

Bob G sent · 7:23 PM Info on stopping Xgeva: https://www.myeloma.org/videos/it-safe-stop-xgeva-denosumab

sent · 7:32 PM Time to go. Thank you for the Good information.