Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 20, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 20, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 20, 2023

AnCan is grateful to the following sponsors for making this recording posssible:

Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

IF YOU HAVE NOT YET WRITTEN TO THE FDA ABOUT THE PLUVICTO SHORTAGE – PLEASE DO. DIDN’T RECEIVE OUR REQUEST … LMK rd@ancan.org

UPCOMING WEBINAR What is a Pelvic Floor Physical Therapist – & why you need one Wed, 3/39 8pm Eastern Dr. Rachel Rubin + Pelvic PT Tracy Sher Register https://tinyurl.com/4sdhzucf

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/       Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/      Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: What’s to fear about hormone therapy when intermittent is an option? (rd)

Topics Discussed

Recurrent gent from 2013 has not yet had HT .., and fears it; successful hyperbaric Tx for RT cystitis; update on capaversitib trial; ‘young’ man starts IHT after 10 years; how many chemo cycles??; more IHT; what’s the right HT combo with heart issues? … and the right SPOT RT?; very low level recurrence after 6 years; Herb’s brief update; Next Generation Sequencing; dispelling the fear of HT

Chat Log

David Muslin sent · 5:41 PM also Joe, attending these Ancan meetings educated me enough to no longer fear our disease. We welcome your attendance.

AnCan- rick sent · 5:53 PM UPCOMING WEBINAR What is a Pelvic Floor Physical Therapist – & why you need one Wed, 3/39 8pm Eastern Register https://tinyurl.com/4sdhzucf Dr. Rachel Rubin + Pelvic PT Tracy Sher Wed, Mar 29, 2023 8:00 PM – 9:30 PM EDT

AnCan- rick sent · 6:05 PM capavasertib + docetaxel

Richard Tolbert sent · 6:11 PM Jim, I was able to receive $3500 from the Co-Payment Assistance Fund which covered my Feb Orgovyx and Xtandi. Earlier today I received some fiunding support from a private healthcare company which will help. Thanks for asking Jim!

Peter Kafka-Maui sent · 6:14 PM See you all next week. Got to drive my grandchildren down to beach volleyball practice.

George Rovder, Arlington VA sent · 6:14 PM Thank you Gentlemen for your wisdom and caring. Gotta go now.

Jim B sent · 6:15 PM Great to hear that worked out for you! I think that I may have mentioned that I had success with the Mark Cuban Cost Plus web site which gave me access to medications at remarkably low costs.

Richard Tolbert sent · 6:23 PM You did mentioned Mark Cuban Cost Plus. I checked and Orgovoyx and Xtandi are not available since there is no generic. I am also still working to gain co-payment support from Astellas and Myovant.

Henry sent · 6:38 PM What about orgovyx? Just one pill per day, + 2nd line.

Henry sent · 6:39 PM ok Hey Prof. Herb — what do you have to lose from ADT + abi? Everyone cares about you, Prof. Herb!!

AnCan- rick sent · 6:50 PM UPCOMING WEBINAR What is a Pelvic Floor Physical Therapist – & why you need one Wed, 3/29 8pm Eastern Register here https://tinyurl.com/4sdhzucf

Frank Fabish Columbus OH sent · 6:52 PM Got to go guys. Praying for you Herb.

Len Sierra sent · 6:53 PM Continuous vs Intermittent ADT: https://jamanetwork.com/journals/jamaoncology/fullarticle/2436836 Conclusions and Relevance Intermittent androgen deprivation was not inferior to continuous therapy with respect to the overall survival. Some quality-of-life criteria seemed improved with intermittent therapy. Intermittent androgen deprivation can be considered as an alternative option in patients with recurrent or metastatic prostate cancer.

AnCan- rick sent · 7:00 PM peterk@ancan.org

Peter M sent · 7:02 PM Good night gents!

Bob G sent · 7:02 PM Goodnight all.

Michael Wyn, Colorado Springs sent · 7:15 PM thx. g nite

gary peters sent · 7:19 PM Thanks, guys. Take care. G

AnCan Art Friends Art Class – March 16, 2023 – Sunset Clouds

Art Friends

Hey Friends! If you missed last Thursday’s art class, then I have the recording for you right here! Share it far and wide, and don’t forget to email your pictures to Alexa (Alexa at AnCan.org).

Supplies:

  • Canvas Size 12in x 12in or similar. Feel free to use a rectangle as well
  • Acrylic Paints: White, Blue (or whatever other Sky & sea color you want), Orange, Yellow, optional Purple
  • Palette Knife
  • Brush: 3/4in or similar
  • Optional tiny brush OR tooth pick OR cotton swab for optional birds
  • Water
  • Napkins

 

Watch here:

Have fun with this and please don’t hesitate to reach out to Hannah@AnCan.org with any additional comments & questions. Happy painting!

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 20, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 14, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 14, 2023

AnCan is grateful to the following sponsors for making this recording posssible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern
https://ancan.org/men-speaking-freely/
Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: Fateful turns: Belated PSA test, inappropriate focal ablation, diagnosing cancer as BPH. (bn)

Topics discussed
Bad news after 6-year pause in PSA testing; focal ablation to avoid side effects ends in regret; huge prostate but doctor keeps treating BPH; sudden passing of Dennis McGuire from brain aneurysm; taken “right to the edge” with painful BAT side effects; simultaneously treating two kinds of prostate cancer; complications (lung puncture?) after port insertion; are wild hormones signaling a neuroendocrine tumor?; how many PSMA PETs will insurance pay for?; trouble with statins and darolutamide; veteran of intermittent therapy starting ADT again; newcomer can’t find a niche in AnCan’s prostate groups.

Chat log

AnCan Barniskis Room · 6:13 PM Also Telix … who make Ga68 PSMA 11 Illucix

AnCan Barniskis Room · 6:36 PM https://pathology.jhu.edu/patient-care/second-opinions

Len Sierra · 6:37 PM Jonathan Epstein 410-955-5043

Julian – Houston · 6:42 PM Dr Walser at UTMD in Galveston does FLA

John A · 6:59 PM Going to another group, see you guys next week

Dave Fitch · 7:12 PM Oops, would a condom catheter help instead foley?

AnCan Barniskis Room · 7:24 PM Truly saddened to receive the news about my dear Chicago Booth Alum, Dennis McGuire

J. Ward · 7:26 PM I’m really heartbroken for Dennis and his family. He was such a good egg — a classic upper midwesterner who was just so kind.

Dave Fitch · 7:31 PM Leaving for PSMA Zoom presentation, by Dr Ryan

Harry Spila · 7:54 PM hang in there Herb.

AnCan Barniskis Room · 8:06 PM Bempedoic Acid https://en.wikipedia.org/wiki/Bempedoic_acid#:~:text=Bempedoic%20acid%2C%20sold%20under%20the,(high%20blood%20cholesterol%20levels).

Harry Spila · 8:10 PM I get cramps too. I’m on 80 mg Lipitor and darolutimide

AnCan Barniskis Room · 8:10 PM Bempedoic Acid = Nexletol

Herb · 8:14 PM i gotta go soon

Len Sierra · 8:16 PM Good luck, Herb.

Frank Fabish Columbus OH · 8:17 PM on your side Herb. Fight on.

Frank Fabish Columbus OH · 8:19 PM Have to go. Thanks guys for sharing.

Julian – Houston · 8:21 PM great conversations – Rooting for you Herb!

Active Surveillance Prostate Cancer

Active Surveillance Prostate Cancer

Active Surveillance Prostate Cancer Virtual Support Group

Active Surveillance (AS) for low-risk prostate cancer presents its own challenges that are very different from other treatment protocols. This virtual group is for men and caregivers on or considering AS to treat their condition. New participants are given priority to discuss their situation.  Click here for detailed information.

Wednesday evening of each month at 8 pm EST/EDT (US)

Moderators: Ken Mason, Howard Wolinsky, Alexa Jett, Hugh Idstein.

Active Surveillance Prostate Cancer

Active Surveillance Prostate Cancer

Active Surveillance Prostate Cancer Virtual Support Group

Active Surveillance (AS) for low-risk prostate cancer presents its own challenges that are very different from other treatment protocols. This virtual group is for men and caregivers on or considering AS to treat their condition. New participants are given priority to discuss their situation.

Wednesday evenings at 8 pm EST/EDT (US)

Moderators: Ken Mason, Howard Wolinsky, Alexa Jett, Hugh Idstein.