AnCan respectfuly notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: It’s important to work with a Veterans Service Office (VSO) that has your best interest in mind and is working on your behalf. (bj)
Topics Discussed
Claims for Prostate Cancer (PCa) and Chronic Kidney Disease (CKD); PSTD; pension for surviving spouse; problems with VSOs; VA decision process; staying on top of your claim paperwork after submission; submitting a claim for prostate cancer; how to get a second opinion; lessons learned using VA community care — keep your paperwork for bills management; understanding VA appeals; living with Parkinson’s disease and secondary conditions.
Chat Log
Alexa Jett – AnCan Foundation
That’s considered High Risk
Bill O’Brien, Northern VA
Mark, good info! Thanks so much!
Bob Schwartz, USN, Venice FL
Good Mtg., have to go, take care.
Carl Friedrich
A great meeting but I will take my leave. See you next time and many thanks for all the help. Fantastic! Many thanks to all
AnCan – rick
Going to leave you Gents – hope to see you again later in the month. Watch this space for our Vets Speaking Freely. O&U
Hi-Risk/Recurrent/Advanced PCa Video Chat, March 3, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: What’s the evidence to switch HT treatment after several years? (rd)
Topics Discussed
“Get thee to a GU med onc” – before further Tx errors!; nausea from Pluvicto may be the norm; – get ahead of it; when another recurrence is suspected, when’s the time to do a PSMA scan; same 4+5 Gents asks.” should ADT accompany RT on 2nd recurrence?”; is urinary retention a side effect of Mx PCa with a prostate?; recalcitrant VA MO rejects RT on recurrence – get 2nd opinion; chemo side effects , esp. nausea need meds; after 3 years, time to switch HT?; addressing hot sweats; pay no attention to the fantasy numbers on your Medical bills
Chat Log
AnCan – rick sent: 6:14 PM
rd@ancan.org rick
Luther Blake sent: 6:18 PM
OHSU patients are well represented in this group.
AnCan – rick sent: 6:32 PM
Matt Rettig https://www.uclahealth.org/providers/matthew-rettig
Wes – San Diego sent: 6:40 PM
Got a question for you all: 2. What kinds of hormone therapy are available?
Frank sent: 6:46 PM
Zofran is the medication that helps me Marc
Luther Blake sent: 6:48 PM
You can get big bags of ‘Gin-Gins’ on amazon
Brian Haack – Eagle, ID sent: 6:50 PM
My PSA went from 0.12 to nearly 20 before mets were seen on PSMA-PET/CT
Wes – San Diego sent: 6:52 PM
I buy fresh ginger, cut it, and squeeze it using a garlic press, and use it as the incredient for tea. Most chews have more sugar than ginger; be careful with them.
There are also wrist pressure bands, used for sea sickness that might also work. V credible; I keep them in my backpack for random trips out to the SD bay.
Wes – San Diego sent: 7:30 PM
A new sleeping pill Belsomra, creates a good sleep architecture (deep, REM, etc).
Alicia Morgens study of the Embr wave 2: “66% of participants rated the thermal device as effective for management of daytime and nighttime hot flashes, while 77% of participants reported being somewhat to very satisfied with the device.”
AnCan – rick sent: 8:00 PM
Good memory Len…..
Wes – San Diego sent: 8:04 PM
My PSMA via UCSD was $34K.
Good point for my uninsured brother.
Brian Haack – Eagle, ID sent: 8:07 PM
Private insurance sets their prices based on Medicare reimbursment
Wes – San Diego sent: 8:09 PM
Taking about the range of costs, so we know what is possible is good, including flying to France, Cuba, etc.
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Medicare patients can receive telehealth services for non-behavioral/mental health care in their home through March 31, 2025. (bj)
Topics Discussed Decision point for transitioning from active surveillance to treatment; DECIPHER; DECIPHER Grid Report; Medicare stopping telehealth on March 31, 2025; PROMISE STUDY; BRCA1 mutation; BRCA patients have increased radiation sensitivity; PSA bumps; biochemical recurrence; weaving is therapy; 2025 ASCO GU update.
Chat Log
Michael – TN
If having trouble getting response via email from Dr Epstein: —- Gabriella Deliguori, MHA Administrative Supervisor 516-280-7930
Michael – TN
gdeliguori@imppllc.com
Mark Perloe
https://advanceduropathology.com/ gdeliguori@imppllc.com
Bill Nieusma (VA)
will Dr. Epstein require imagery or just a report?
AnCan – rick
uro… David Penson at Vanderbilt https://www.vanderbilthealth.com/doctors/penson-david
Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 25, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Will estradiol replace the hated ADT?
Topics Discussed
After a few rounds of, “Hmm, this is worse than we expected,” he aims to get ahead of the curve; off ADT, and waiting apprehensively for his bloodwork; exciting news from Dr. Wassersug about estradiol — no hot flashes, preserves bone density, the patches are cheap, and they’re already available (but for women); surgery or cortisone for his trigger-finger syndrome — and is it ADT-related?; was PSA spike due to a faded 6-month Eligard shot?; doc sees results and says, “Let’s start the drug holiday now!”; what’s a crosslink collagen test?; Pluvicto trial’s four-month survival gain feels troublingly small; doc wanted to keep chemo in a back pocket — is it time?; “what’s impacting my life most now is a shortness of breath” — a cardio-oncologist might help; after a week of Orgovyx he feels no change…but ADT’s side effects develop over time.
Chat Log
Steve Roux, North Michigan · 6:49 PM
Matthew – sign up for the reminder emails for meeting reminders and a lot of other good stuff.
Jim Marshall, Alexandria, VA · 6:49 PM
1st & 3rd Mondays at 08:00pmET and 2nd & 4th Tuesdays at 06:00pmET High Risk Group
Jerry Grimes, Brighton, MI · 6:56 PM
I am on estradiol, through informed consent. I feel great. Can confirm Dr. Wassersug’s comments about symptom relief.
Jerry Grimes, Brighton, MI · 7:00 PM
I was paying approx $140 per 3 months for two 0.1mg/day patches, changed twice weekly.
Jerry Grimes, Brighton, MI · 7:01 PM
My insurance did not cover this.
John M · 7:05 PM
Robert: Which ADT drug were you on?
Matthew L · 7:09 PM
the names are gone. at each person on the main screen how what happen
AnCan – rick · 7:10 PM
Make the window larger
Steve Roux, North Michigan · 7:10 PM
👍
Steve L · 7:11 PM
names gone if one person has enlarged image but names present if all small images.
AnCan – rick · 7:42 PM
David Smith, GU MO at Uof M (Go Blue)!! https://www.rogelcancercenter.org/physicians/david-c-smith-md
AnCan – rick · 7:47 PM
👍
Jim Marshall, Alexandria, VA · 7:49 PM
Pluvicto and ATM mutation says it works very well. jim marshall
AnCan – rick · 8:14 PM
Effie Andrikopoulou, MD
AnCan – rick · 8:14 PM
https://www.uwmedicine.org/bios/effie-andrikopoulou
Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 17, 2025
(Apologies for late posting… still catching up from GU ASCO25: rd)
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Catch weaver, Jose Picayo speaking to AnCan’s Hannah Garrison in Solo Arts Heal about how his weaving has helped him and others heal. Next Wed, Feb 26th at 7.30 pm PACIFIC https://themarsh.org/soloartsheal
Editor’s Pick: Listen to Al L’s 30 yr survival story with a G5+4 (rd)
Topics Discussed
starting on Pluvicto; can a ctDNA test reveal disease – and how do you get it?; photon =proton; can you biopsy a rib – generally not; debulking the primary with radiation; spot RT to T10; do you have to give up alcohol on abi?; good small cell NE like markers.; 30 yr. 5+4 survivor tells his story!
Chat Log
Al L sent: 6:16 PM
biotene
AnCan – rick sent: 6:20 PM
Heh Gents… just back from SF – literally
Len Sierra sent: 6:20 PM Welcome back, Rick!
Jim Marshall, Alexandria, VA sent: 6:33 PM Internet connect tonight is BAD!!!! Will catch all on the recording
Steve L sent: 6:34 PM Compassionate Care Program If a patient is uninsured or is concerned about their ability to pay for Natera genetic testing, they can contact us at Tel:+1.650.489.9050 option 2 | oncologybilling@natera.com
Joel Blanchette, Reston, VA sent: 6:43 PM Try unplugging your headphones
Wes – San Diego sent: 6:44 PM Sorry, yes. Looks good now; question of if there is anything I do to rule out the rib, after an xray was not definitive in identifying an old break.
AnCan – rick sent: 6:57 PM FDG PET scan, Axumin scan
Steve L sent: 7:14 PM I understand that Abiraterone isn’t Chemo, however mine arrives in a bag labeled ” chemotherapy drug ”
Wes – San Diego sent: 7:25 PM No, if a drug is not on a formulary, then deduction does not apply.
Wes – San Diego sent: 7:26 PM I found Blue Cross honors my 3 expensive drugs; medicare B does not.
Dr. Jeff sent: 7:26 PM https://pmc.ncbi.nlm.nih.gov/articles/PMC11116681/ At times rib biopsy can be performed. (Ed: This citation is grossly misleading and should not be considered evidence that a rib Bx is possible in a fragile location: rd)
Len Sierra sent: 7:27 PM Medicare B does not cover any drugs
Wes – San Diego sent: 7:27 PM True, so it would be me adding B, D.
George Wesoloski sent: 7:29 PM My Alt & AST are three times normal. Believe it is due to the Rheumatoid Arthritis drugs, Methotrexate & Arava. Developed a serious body itch & now on Claritin and Zantac for the itch & ceased the Arthritis drugs. Waiting for another blood test in a month.
AnCan – rick sent: 7:30 PM As I said Dr. Jeff – anecdotally most docs will NOT biopsy a rib spot. Especially if it is round the front. It depends where the spot is. You posted a case study, so that is also anecdotal.
Len Sierra sent: 7:40 PM Neuroendocrine biomarkers: Chromogranin A (CGA) and neuron-specific enolase (NSE) levels are biomarkers for NEPC. Also, synaptophysin positive. DLL3 (Delta-like Ligand 3) is positive in 76% of NEPC.
Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 11, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: A long discussion on dealing with ADT-induced edema. (bn)
Topics Discussed
Swollen ankles and face, “incredible pain in my hips,” spiking blood pressure — these are common with ADT, and the medoc should be taking charge; a fruitful exchange follows about blood pressure, bone strengtheners, and edema; radonc we like surprises us by treating 7 tumors with spot radiation; osteoarthritis doesn’t seem a likely cause for a positive PSMA; Tennessean likes Dr. Antonarakis, who’s great — but Dr. E’s closer; what are the right questions to ask his radoc before starting treatment?; you can’t know how much ADT will affect you — but exercise definitely helps.
Chat Log
Steve Roux, North Michigan · 6:26 PM
abiraterone and prednisone can both raise blood pressure.
AnCan – rick · 6:31 PM
Boniva or Reclast are the injectable bisphosphonates
Gary V Portland, Oregon · 6:35 PM
Would recommend Sectral as Beta blocker much more effective at controlling heart rhythm issues.
Jim Marshall, Alexandria, VA · 6:37 PM
For my heart Bypass follow on and the Edema in the legs there are Compression Socks.
Wes – San Diego · 6:43 PM
Yes, elevation above the heart, which can be hard to do even at night, or hard on the hips. But compression socks or anklets are both helpful.
Wes – San Diego · 6:45 PM
Good compression socks are expensive, $30 each. But well worth it. Huge door I did not know after 10+ years of eroding my foot bones and pain via gout, with near constant edema, especially in my lower left leg.
Jim Marshall, Alexandria, VA · 6:45 PM
Compression socks from the VA come from “Ames Walker” retailing for around $34. Be sure to get the meausrement right. They work well. Jim
Dr Jeff · 6:46 PM
$30 for a good pair is on target. Have your family and friends buy them for you for your birthday. Well worth the $
Dr Jeff · 6:48 PM
You probably need 20-30 mm Hg
Jerry Grimes, Brighton, MI · 6:53 PM
Search Dr. Richard Wassersug online for information about estradiol therapy for recurrent/advanced prostate cancer.
He has spoken here before:
AnCan – rick · 7:08 PM
Estradiol Session recording with Richard Wassersug https://ancan.org/talking-estradiol-e2-for-recurrent-and-advanced-prostate-cancer/
david opp · 7:25 PM
I was attacked by a cow and had bruised and 1 cracked ribs, 2 weeks later a PSMA scan lit up those bruised ribs but the radiologist did not give a suv number saying this should be confirmed by patient information.
Michael – TN · 7:41 PM
I had trouble getting in touch with Dr E and noticed there was a typo in the email address provided in the emails and other groups.
Here is the right contact gdeliguori@imppllc.com
Craig Christensen · 7:51 PM
Recommended rad oncs at Irvine City of Hope for MR guided RT?
AnCan – rick · 7:52 PM
Percy Lee GU RO https://www.cityofhope.org/percy-lee
AnCan – rick · 7:53 PM
Kishan UCLA RO https://www.uclahealth.org/providers/amar-kishan
TonyFig · 8:02 PM
Dr. Sholtz thoughts on radiation versus surgery https://www.youtube.com/watch?v=aGEVAWx2oNs
Craig Christensen · 8:04 PM
Decipher range is 0 to 10
Len Sierra · 8:04 PM
Just be aware that Scholz has a strong bias against surgery.
Wes – San Diego · 8:12 PM
Note should take K2 with D3; I take 5K-10K/day and finally got back to normal range, took years; and I live in SD and see the sun routinely.
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Trust but verify a biopsy reading. Getting a second opinion is critical for choosing the correct treatment option for yourself. (bj)
Topics Discussed Weak stream; enlarged prostate — presumptive BPH; TURP; greenlight laser; DECIPHER; DECIPHER Grid Report; germline genetic test; PROMISE Test; gradually rising PSA; TULSA Procedure; CyberKnife; NCCN (National Comprehensive Cancer Network); PROSTOX genetic test; combination therapy; PSMA PET Scan make sure your insurance will pay for it first.
Chat Log
AnCan – rick
BPH webinar – Steve Kaplan https://ancan.org/special-presentation-it-aint-your-grandpas-bph/
Jim Marshall, Alexandria, VA
If there are Veterans in the group, there is a Veterans Group meeting 1st & 3rd Tuesdays. contact me for details, Veterans@AnCan.Org info at www.AnCan.org/Veterans Jim Marshall, USAF(Ret)
John S NY
Dutasteride is generally more potent and effective than finasteride for treating hair loss and BPH. However, it may also have a slightly higher risk of side effects. The choice between the two medications should be made in consultation with a healthcare professional based on individual factors such as the severity of hair loss or BPH symptoms, potential side effects, and halflife of Dutasteride is 40 days, Finasteride is around 12-18 hours if I remember correctly
AnCan – rick
PROMISE test https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Eric M- Atlanta
Dr. Epstein is back in biz this month consulting with Integrated Medical Professionals in NYC. Reach him through gdeliquori@imppllc
Michael – TN
gdeliquori@imppllc – Dr Epstein
Eric M- Atlanta
Dr. Ming Zhou, can be found at ming.zhou@mountsinai.org
Eric M- Atlanta
As I say, Trust but verify a biopsy reading.
AnCan – rick
gdeliguori@imppllc.com• Epstein
Eric M- Atlanta
If anyone wants to get their own PSA test with Labcorp here is a self ordered source for $31: https://www.lifeextension.com/lab-testing/itemlc010322/prostate-specific-antigen-psa-blood-test
David S.
Jesse McKenney interview on the topic of cribriform: https://www.urotoday.com/video-lectures/a-journal-club-for-patients-with-prostate-cancer/video/4452-unfavorable-histology-classification-aims-to-reduce-unnecessary-treatment-journal-club-jesse-mckenney-jane-nguyen-cornelia-ding.html
AnCan – rick
Here’s the NIH 2nd opinion clinic for PCa link https://ccr.cancer.gov/prostate-cancer-multidisciplinary-clinic
Michael – TN
Choyke, Peter (NIH/NCI) [E] <pchoyke@mail.nih.gov>
Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 3, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Fire your medical oncologist when he won’t share your results! (rd)
Topics Discussed
Canadian care partner presents on behalf of de novo Mx dad who sets up for triplet; down to single distant tumor but rash and weight gain are bothersome; VA med onc won’t share patient’s own info or provide him a community referral – time to give him the royal boot; do restless leg and urinary frequency result from Cymbalta or Trazadone; what type of equipment for palliative spot RT ?; concordance means it’s time to move from chemo to Pluvicto; recurrence takes this Gent back to UCSD and Rana McKay; do you pre-load Orgovyx when switching vs starting?; time to switch up HT but debulk first; Dr. Guancial leaves our man on a drug holiday – & he’s a fan; our docs suggest testicular hydrocele be drained before surgery considered.
It’s AnCan’s Annual Fundraiser time – just once a year is the only time we ask for donations. If you watch these videos and find them helpful, please step up ad donate – https://ancan.org/donate/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: It is unwise to minimize needed prostate cancer treatment because earlier treatment generally leads to better outcomes. (bj)
Topics Discussed Refuse a blind biopsy, timing of radiation therapy and ADT, rationality for Decipher Pro genomic test, PROMISE germline study, running out of biopsy samples, radiation oncologist vs genitourinary oncologist, evaluating different treatment options, treat prostate or whole pelvis, diet and nutrition during and after treatment, favorable vs unfavorable intermediate risk prostate cancer, active surveillance, brachytherapy, TULSA-PRO, SBRT, IMRT, Decipher Grid, focal treatment, is PSA still the gospel, decision anxiety, Cribriform discussion, RTIRE study, Men Speaking Freely.
Chat Log
AnCan – rick
The PROMISE germline study https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
John A
Survey deadline is this Thursday everyone.
AnCan – rick
This link is now pinned to the top, so reposting – tx Eric. https://docs.google.com/forms/d/e/1FAIpQLSfw2B3rZTMWIPqTmzLYBl1CdN9qRJSpt0f72CoK6J00zllzWw/viewform
AnCan – rick
You can donate to AnCan here: https://ancan.org/donate/
AnCan – rick
David and Michael… do we have your email addresses for Reminders.
AnCan – rick
Watch out for the Recording of tonight’s session. You can sign up for a reminder when published via our blog https://ancan.org/blog/ or our YouTube Channel https://www.youtube.com/channel/UCOX221U27DhVDCe3Ozz2rDg
AnCan – rick
Next AS Group – Feb 5, 8.00 pm Eastern in this same room. Weekly for the first 4 Wednesdays.
AnCan – rick
Decipher GRID
AnCan – rick
You’re not alone, Mark!!
AnCan – rick
Cribriform discussion – 30 min webinar https://www.urotoday.com/video-lectures/a-journal-club-for-patients-with-prostate-cancer/video/mediaitem/4452-unfavorable-histology-classification-aims-to-reduce-unnecessary-treatment-journal-club-jesse-mckenney-cornelia-ding.html
AnCan – rick
Epstein’s new email for reread: gdeliguori@imppllc.com
Stuart
Ming Zhou – Ming.zhou@mountsinai.org
AnCan – rick
Men Speaking Freely https://ancan.org/speaking-freely/
Mark Perloe
Thanks Richard
Sandy
Thanks all. very helpful again tonight. Signing off
Joe M, Victoria BC
Gotta sign off — thanks all for a good meeting.
St. Pete High School’s Senior Service Project Supports AnCan
This past December, the seniors from St. Petersburg High School’s International Baccalaureate program came together to make a difference through their annual senior service project. The students organized a community run to raise funds for AnCan.
The event was a success, with over 50 participants joining in to support the cause. Together, they raised over $700 to contribute to AnCan’s mission of empowering people through connection, support, and shared experiences.
“We find pride and joy in the fact that we could bring our community together for a run and spread awareness about the great efforts of the AnCan foundation,” said one of the organizers.
AnCan is grateful to the students, participants, and everyone who contributed to this incredible effort. Initiatives like this not only provide financial support but also help spread awareness about the importance of peer-led support.
Thank you, St. Pete High School IB seniors, for your hard work, creativity, and commitment to making a difference.
