Active Surveillance Prostate Cancer Video Chat, November 26th, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, and Blue Earth Diagnostics.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
Chris L. (Windsor, CA)
Gut microbiome & phytochemical rich diet: YouTube: https://www.youtube.com/watch?v=0vR0QL3oR2k
Chris L. (Windsor, CA)
Asco highlights: https://www.urotoday.com/conference-highlights/asco-gu-2025/asco-gu-2025-prostate-cancer/158203-asco-gu-2025-gut-health-and-prostate-cancer-the-influence-of-a-specific-phytochemical-rich-food-capsule-plus-or-minus-a-probiotic-prebiotic-blend-on-symptoms-and-progression-a-randomised-double-blind-placebo-controlled-trial.html
Eric- Atlanta
https://howardwolinsky.substack.com/p/breaking-transperineal-biopsies-find?utm_source=publication-search
Bill Harris (Los Angeles)
Hi Rick. Hope all is well
Eric- Atlanta
Seminar link and info: https://aspatients.org/event/transperineal-vs-transrectal-biopsy-2025/
Eric- Atlanta
“Key Clinical Trials Driving the Debate Recent trials have brought new insights: Dr. Jim Hu (PREVENT, 2024): Zero infections with TP vs 1.4% with TR, suggesting a reduced risk of sepsis. Dr. Alastair Lamb and Dr. Richard Bryant (TRANSLATE, 2025): TP detected 5–6% more clinically significant cancers (Grade Group ≥ 2) and often required no antibiotics. Dr. Badar Mian (PRoBE-PC, 2024): Both methods proved safe and effective, giving patients more choice. Together, these studies have reshaped how experts think about prostate biopsy safety.”
Ray E Santa Monica Ca
https://www.perplexity.ai/search/262e8d77-95e5-4fef-aa07-9b7a313c25f1
Ray E Santa Monica Ca
Above is a run down on TP vs Transrectal biopsy
Bill (VA)
Walter Reed now performing TP
AnCan – rick
AnCan Prostate Cancer Debate Aug 2022 Dr. George vs Dr. Kaye https://ancan.org/webinar-prostate-cancer-biopsies-the-great-debate/
Bill Harris (Los Angeles)
Bill Harris wmharris@gmail.com
Bill Harris (Los Angeles)
(new inherited mutation group
Low/Intermediate PCa Video Chat, November 24, 2025
Low/Intermediate PCa Video Chat, November 24, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Manage “buyer’s remorse” by trusting the decision. (bj)
Topics Discussed Before treatment (cryotherapy/radiation), get a second pathology opinion (e.g., Dr. Epstein/Dr. Zhou) to confirm Gleason scores; high Decipher scores (e.g., 87) with favorable pathology (Gleason 3+4) may not necessitate leaving Active Surveillance; consult Centers of Excellence. Verify facility accreditation (NCI/NCCN “Centers of Excellence”); manage “buyer’s remorse” by trusting the decision (e.g., MRI-guided SBRT over surgery); weigh recurrence risks of focal versus whole-gland treatment; assess if a PSMA PET scan is necessary for localized intermediate-risk disease; review data on Androgen Deprivation Therapy (ADT) with radiation; consider short-term ADT (6 months) only for multiple intermediate risk factors; consider radiation (SBRT) with whole pelvic coverage over surgery for suspected extra-prostatic disease (lymph nodes) to avoid salvage radiation; use a low Decipher score (e.g., 0.26) to support foregoing ADT with radiation for intermediate-risk cancer.
Chat
AnCan – Stuart sent a chat · 7:58 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
AnCan – Stuart sent a chat · 7:59 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/ Tel:516-760-2037 jepstein@imppllc.com
AnCan–John A sent a chat · 8:41 PM
I am grateful to Howie for the term “sixes over sevens”. I am going to create a new Gleason system using poker terms.
AnCan Bill sent a chat · 8:42 PM
Well, I wouldn’t want a full house!
AnCan – rick sent a chat · 8:44 PM
McClure at Weill
AnCan – rick sent a chat · 8:46 PM
Vince Laudone and James Eastham at MSKCC
AnCan–John A sent a chat · 8:47 PM
Howie if you want I’ll read your complete Decipher report including GRID report
Mark Erickson sent a chat · 8:57 PM
can you please repeat how to tell if a group is a center of excellence
Larry (Alaska) sent a chat · 8:59 PM
There are 33 NCCN “Centers of Excellence” scattered across the country.
Larry (Alaska) sent a chat · 8:59 PM
https://www.nccn.org/home/member-institutions
AnCan–John A sent a chat · 8:59 PM
The accrediting groups are the NCCN National Comprehensive Cancer Network, or NCI National Cancer Institute. Go to the website and navigate to Centers of Excellence
AnCan–John A sent a chat · 9:00 PM
thx Larry
AnCan – rick sent a chat · 9:00 PM
877 582 7011
David in Portland, OR sent a chat · 9:01 PM
One picture=1,000 words. This map shows the location of all the NCCN member institutions: https://www.nccn.org/home/member-institutions/
AnCan – rick sent a chat · 9:02 PM
NCI Centers link http://www.cancer.gov/research/nci-role/cancer-centers/find
AnCan Bill sent a chat · 9:02 PM
Thank you Larry
Mark Erickson sent a chat · 9:02 PM
Thanks all
Larry (Alaska) sent a chat · 9:10 PM
I am a master or buyer’s remorse, seller’s remorse, second guessing and hindsight. But one makes a decision based on the best information you have and do not hesitate, dither or delay.
Ancan – Boykin sent a chat · 9:13 PM
Recognize that any treatment has consequences. Decide what you can live with. In the end, it’s a personal decision
Jim Stewart Reno, NV sent a chat · 9:22 PM
Have to sign off, Happy Thanksgiving everyone!!!!
Ancan – Boykin sent a chat · 9:23 PM
Happy Thanksgiving Jim!
AnCan Bill sent a chat · 9:23 PM
Take care Jim.
Bill (VA) sent a chat · 9:30 PM
First meeting I have understood what the focal/nano knife concern is on recurrence.
AnCan – rick sent a chat · 9:34 PM
Optimal Duration of Androgen Deprivation Therapy With Definitive Radiotherapy for Localized Prostate Cancer. https://ancan.us14.list-manage.com/track/click?u=ece3f3da90f82cb974b407396&id=06c8899f70&e=838454d636
AnCan – rick sent a chat · 9:35 PM
JAMA https://jamanetwork.com/journals/jamaoncology/fullarticle/2841671?guestAccessKey=d03b0908-90c8-497e-85cd-aebb43ec2a63&utm_medium=email&utm_source=postup_jn&utm_campaign=article_alert-jamaoncology&utm_content=olf-tfl_&utm_term=112025&mc_cid=0fa42784f6&mc_eid=838454d636
Mark Erickson sent a chat · 9:39 PM
Thanks everyone, Happy Thanksgiving
Ancan – Boykin sent a chat · 9:39 PM
Good Night Mark!
Larry (Alaska) sent a chat · 9:41 PM
Marc, it is a choice (in my mind) between 1) hit it hard and fast with risk of side effects or hit it minimally with s higher risk of recurrence
AnCan–John A sent a chat · 9:41 PM
‘night guys
David in Portland, OR sent a chat · 9:41 PM
Trip Trial compared six months to 30 months of ADT in randomized high risk patients who underwent beam plus brachy. It found no difference in outcomes. The incidence of biochemical recurrence rate at 7 years was 9%: https://www.redjournal.org/article/S0360-3016(23)07843-4/abstract
Bruce Schrimpf sent a chat · 9:56 PM
Great seeing and hearing from all of you! I plan on being with the high-risk group tomorrow. I will have an update tomorrow as I have recently returned from Mayo at Rochester.
Ancan – Boykin sent a chat · 9:57 PM
Good night Bruce!
AnCan – Stuart sent a chat · 10:05 PM
https://www.mskcc.org/nomograms/prostate
Tom O NJ sent a chat · 10:11 PM
Happy Thanksgiving All !!
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 25, 2025
Happy Thanksgiving to all our AnCan particpants, especially if not on our mailing list. We’d have to ask why not, when you can sign up at https://ancan.org/contact-us/ and recive our great Newsletter/Reminder.
CORRECTION (rd)
I want to apologize and make a correction for someting I said in last Tuesday’s support group. At the end we were discussing adding a couple of Pluvicto treatments to Metastatic Directed Therapy. However this was for a man who had progressed rather than having just been diagnosed oligometastatic as in the LUNAR trial reported in the Reminder last week. I mentioned he might be eligible in the USA as Pluvicto is approved for metastatic hormone sensitive prostate cancer. This is not the case, and I misspoke. PSMAddtion was positively reported for mHSPC use at the recent ESMO conference – thank you Dr. Paul for this link. To date, it has not been FDA approved. I knew of the trial and got ahead of the game; although I was confusing it with PSMAFore.
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Robust discussion around testoterone early on – and thoughts about combining therapies at the end.
Topics Discussed
how long to stay on HT leads to rich discussion on testosterone; did salvage cryo bring his PSA down? And he needs a GU MO QB; cupplementing T with Clomid is new to AnCan; casting around for intial treatment; ststarting Prolia that’s NO lifetime drug; tachycardia and AFib; recovering from 6x dicetaxel; b est treatment options for Stage T3 ; holding steady; allowing PSA to rise to find source of oligo-Mx; can we add Pluvicto to MDT later in the cycle?
Chat
Frank Ciambra sent: 5:10 PM
my wife is a nurse working in cardiology ,im going to share this witth her
John M – Chicago sent: 5:11 PM
Don I am doing great. Feeling stronger. Exercise is the KEY. Everything progressing according to plan. I’m going to my sons house to be with him, his wife and my grandson. What about you?
Jim Marshall, Veteran, Alexandria, VA sent: 5:27 PM
AFib – Join the club with others. Jim Marshall
Julian – Houston sent: 5:29 PM
I had AFIB then had cardiac ablation in March 25 and then it went away!
Jim Marshall, Veteran, Alexandria, VA sent: 5:30 PM
AFib is Mutually exclusive with Vitamin K. Jim Marshall;
Jim Marshall, Veteran, Alexandria, VA sent: 5:32 PM
Have AFib and take Blood Thinner, Pradaxa, Metropolol Tartrate and a Statin – Pravastatin. Jim Marshall
AnCan – rick sent: 5:33 PM
abir-A-terone
Jim Marshall, Veteran, Alexandria, VA sent: 5:34 PM
Lupron/Eligard and Abi have warnings for those who have heart issues. Jim Marshall
Alfredo in Houston, TX sent: 5:37 PM
Vitamin K potentially interferes with anticoagulants (blood thinners). And you also get vitamin K in your diet from leafy greens. Everyone please remember to discuss ALL supplements with your physician AND pharmacist.
TonyFig sent: 5:39 PM
There is a strong link between sleep apnea bringing on A-Fib.
Alfredo in Houston, TX sent: 5:41 PM
I am being called to supper now, so I must leave — but not before wishing a Happy Thanksgiving to everyone. Good night
AnCan–John A sent: 5:48 PM
stereotactic body radiation therapy
Julian – Houston sent: 5:53 PM
Happy Thanksgiving to all!!!
TonyFig sent: 5:56 PM
Blood Thinner – a naturopath approach for anticoagulation can be quite risky as it may not present consistent and reliable levels to address A-Fib episodes or other cardiac issues. I discussed this with cardiac surgeons as well as a heart biologic replacement valve supplier. I would not take the risk of naturopath solution for this application.
Nattokanese, Vit E, Ginger, Omega Oils in high dose, Cayene Pepper Tumeric, etc
John M – Chicago sent: 6:04 PM
Have a great Thanksgiving everyone!
Dennis Correia sent: 6:07 PM
Happy Thanksgiving all
Barry Blomquist sent: 6:07 PM
Have to jump – Happy Thanksgiving to everyone and thank you all!
dan-s sent: 6:09 PM
Thanks all – Happy Thanksgiving
Jerry Pelfrey sent: 6:10 PM
Time to go. Everyone have a wonderful Thanksgiving.
Larry (Alaska) sent: 6:14 PM
Suggesting Pluvicto as first-line treatment instead of ADT as first-line?
AnCan is grateful to the following sponsors for making this recording possible: Johnson and Johnson, Bayer, Novartis, Myriad Genetics, Telix, Blue Earth Diagnostics, and Foundation Medicine.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Maintaining a 100% temporary rating during active treatment and active surveillance (bj)
Topics Discussed Qualifying for the PACT Act versus proving service connection for other toxic exposures (e.g., Fort Knox); using biopsy reports and surgery records as proof of claim; filing an Intent to File to establish back pay dates; Special Monthly Compensation (SMC-K) for loss of use of a creative organ; how new claims affect existing 100% Permanent and Total status (SMC-S); maintaining a 100% temporary rating during active treatment and active surveillance; defining durable remission and managing recurrences; C&P exam criteria for urinary residuals and pad usage; obtaining Nexus letters for non-presumptive claims; understanding TERA (Toxic Exposure Risk Activity) for healthcare eligibility; utilizing VA healthcare as secondary insurance and billing procedures; ChampVA and education benefits for dependents; submitting supplemental claims and crafting personal statements.
Chat
James Schneider sent a chat · 8:18 PM
I am also diagnosed with Type 2 diabetes. It appears PACT also covers type 2. Does that affect me.
Ancan – Boykin sent a chat · 8:21 PM
VA Intent to File https://www.va.gov/supporting-forms-for-claims/intent-to-file-form-21-0966/introduction
Eric Baker – Lafayette sent a chat · 8:31 PM
Will 3-month testing be viewed the same way after biochemical recurrence treatment (radiation)?
Larry Schuller – Alaska sent a chat · 8:47 PM
Heavy pads or light pads?
Larry Schuller – Alaska sent a chat · 8:53 PM
I get pads (light and heavy) from the VA. But the heavy ones are inferior to stor-bought ones.
Larry Schuller – Alaska sent a chat · 8:55 PM
Does refusal of one aspect of treatment affect my claim or rating? Radiation has been recommended to me as the only potential for “cure” but I have, so far, declined. With that, the expectation is that I probably would be on ADT for the rest of my life.
Eric Baker – Lafayette sent a chat · 9:01 PM
I am unsure if I will be able to have any additional $ for my treatments for any long period of time, but most importantly, if I receive no additional $, can my cancer still be considered service related or rated from my service?
Richard B, Silver Spring, MD sent a chat · 9:03 PM
The light pads I use are Depends Shields. They are much more comfortable plus extremely easy to change and replace.
Hank Zajic Springfield VA sent a chat · 9:09 PM
I have to sign off but for the new guys in particular, “Welcome!” My testimonial is that Jim Marshall is THE BEST! I am the sort of person who gets pretty intimidated by unfamiliar paperwork. Jim is an absolute combination “Bulldog”, “Seeing Eye Dog”, and “My Best Friend!”. He has been a huge help to me crafting my claim, making sure I do not make dumb rookie mistakes.
Richard B, Silver Spring, MD sent a chat · 9:56 PM
I have to step away for the evening. Thanks to all for the comments and especially Jim. I salute you Captain Jim
Ancan – Boykin sent a chat · 9:59 PM
VA Health Care Costs https://www.va.gov/resources/your-health-care-costs/
Ancan – Boykin sent a chat · 9:59 PM
VA Priority Groups https://www.va.gov/health-care/eligibility/priority-groups/
AnCan – rick sent a chat · 10:01 PM
I’m going to step away Gents…. lomg day! Happy TG to all
Ancan – Boykin sent a chat · 10:01 PM
Goodnight Rick!
Ancan – Boykin sent a chat · 10:01 PM
Happy TG!
AnCan – rick sent a chat · 10:02 PM
For the Vet’s Art Class on Dec 11, please sign up here by Dec 4. https://docs.google.com/forms/d/e/1FAIpQLSdwAhTXll3J57XovzRzE6es-qmUEDQUDB22N5gpCHCJvyCBgg/viewform
Mark WV sent a chat · 10:08 PM
good nite from WV
Ancan – Boykin sent a chat · 10:09 PM
Goodnight Mark!
Bob Schwartz U.S.N. Venice, FL. sent a chat · 10:10 PM
Have to go, take care all.
Eric Baker – Lafayette sent a chat · 10:11 PM
Thank you all for your assistance this evening! Have a great thanksgiving!!!
Low/Intermediate PCa Video Chat, November 10, 2025
Low/Intermediate PCa Video Chat, November 10, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Cancel rushed surgery and get a second pathology opinion. (bj)
Topics Discussed Get a second independent opinion on biopsy results before making a treatment decision; validate Gleason 3 + 3 by getting a second opinion on biopsy slides and transfer care to active surveillance friendly medical team; cancel rushed surgery appointment and get a second pathology opinion before choosing a treatment option; schedule post-surgical PSA sooner than 14 weeks and get germline testing given your family history of the BRCA gene; wait for the results of the Decipher genomic test to inform treatment decision; rectal bleeding 9 months post-treatment is likely hemorrhoids rather than radiation proctitis; seek a second opinion to clarify whether lesion is located at prostate base or mid-gland.
Chat
AnCan – Stuart sent a chat · 8:01 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
AnCan – Stuart sent a chat · 8:01 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/ Tel:516-760-2037 jepstein@imppllc.com
AnCan – rick sent a chat · 8:07 PM
GoTo 877 852 7011
AnCan – rick sent a chat · 8:15 PM
To sign up for Reminders…. https://ancan.org/contact-us/
AnCan – rick sent a chat · 8:16 PM
We don’t discuss any form of prostate cancer recurrence in this group – please join us in our Recurrence Group
AnCan – rick sent a chat · 8:21 PM
PROMISE genomic test – still accepting new men https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Tom O NJ sent a chat · 8:48 PM
Thanks Larry …I will bring that up with care team.
AnCan – rick sent a chat · 8:49 PM
Dr. Penson https://www.vanderbilthealth.com/doctors/penson-david
AnCan – rick sent a chat · 8:55 PM
Dr. Scarpato https://www.vumc.org/urology/person/kristen-scarpato-md-mph
David in Portland, OR sent a chat · 9:26 PM
Hi Larry, I’ve seen Garzotto give a speech. I believe it was at the OHSU Prostate Conference in 2024. But I’ve never dealt with him one-on-one. So unfortunately I can’t really give you an informed opinion about him. —David
David in Portland, OR sent a chat · 9:31 PM
Larry, Here’s the link to that 2024 OHSU conference. Garzotto’s speech begins 1hr 7min 49sec from the beginning: https://echo360.org/media/a7fc719f-36a0-4f46-acb8-239fcdde5578/public
AnCan – rick sent a chat · 9:45 PM
hemarhoids https://jamanetwork.com/journals/jama/fullarticle/2841054?guestAccessKey=784cce3c-7365-4ddb-8c1e-4af4c653511e&utm_medium=email&utm_source=postup_jn&utm_campaign=article_alert-jama&utm_content=olf-tfl_&utm_term=110625
AnCan – rick sent a chat · 9:51 PM
Dr. Greene https://uvahealth.com/findadoctor/Kirsten-Greene-1023119013
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 17, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Assessing recurrence and IDC-P repeat this week.
Topics Discussed
Signs of recurrence after 8 years; lymphedema and RT; does Newbie understand his proposed RT – is it optimal?; signs of BRCA2 recurrence post RP; doublet or triplet for denovo Mx Gent with IDC-P; explaining types of HT treatment; likely PSMA negative Gent challenged to confirm recurrence; PSA spike & fall for IHT man; fatigue after ARSI is added; estradiol supplement experience; pushing exercise helps mitigate HT; IDC-P teatment challenge – RP vs RT; bisphosphonate vs denosumab as bone strengthener
Chat
Larry (Alaska)
sent: 6:17 PM
Was there a decipher test? indicating aggressiveness?
Larry (Alaska)
sent: 6:24 PM
I wonder how old those NIH studies Barbara and Joe are reading?
while that email may work I got a different address
Jeff Marchi – San Francisco
sent: 6:53 PM
Send an email to Ming.zhou@mountsinai.org to inquire about a second opinion and ask for his specific instructions for the process.
Jim Stewart Reno, NV
sent: 7:07 PM
have to sign off, thanks all and have a good night
Jon McPhee Toronto
sent: 7:33 PM
Have to go. Thanks for the meeting.
Larry (Alaska)
sent: 7:37 PM
AI just told me that 1- micro-ultrasound does not require a contrast dye and uses equipment that is more accessible than MRI. 2- Other than that, they seem to be seen as complementary rather than competing. MRI is better at detecting some lesions and micro-ultrasound better at others.
Stan Friedman
sent: 7:48 PM
Sorry. Need to sign off. Will update on my pluvicto treatments next week. Thanks.
Jim Marshall, Veteran, Alexandria, VA
sent: 7:53 PM
Chocolate is a veggie!!!!!! Jim
TonyFig
sent: 7:53 PM
Rick will get a 3 knot boost when rowing with caffeine
St
sent: 7:56 PM
my experience has been that the fatigue comes mainly from lack of estrogen, not from the lack of T. An E2 patch helped me enormously
Bob Y. Los Angeles
sent: 7:57 PM
I had a couple of short questions, but I have to leave now. I’ve had an MRI and a biopsy, Gleason 4+5. I’m waiting to get a PET Scan on Dec 5th. I was hoping to get the PET earlier and so I made an appt with a urologic oncologist, Timothy Daskivich for a 2nd opinion on Nov 26th. Now I’ll be going to see him without being able to show him the PET results. I’m wondering if that appt is still valuable.
Barbara and Joe
sent: 7:59 PM
why do you have to take something as toxic as prednisone with abiraterone?
Don Rogers
sent: 8:00 PM
got to go
Eric James; Tyler TX
sent: 8:00 PM
Barbara and Joe: side effects of abiraterone. Your body stops producing cortisol on abiraterone so it needs to be replaced with something similar.
AnCan–John A
sent: 8:00 PM
Barbara and Joe the body absolutely needs the corticosteroid.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:01 PM
Abi stops the Adrenal Glands which makes Cortisol. Presidnsone makes the Cortisol.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:02 PM
One needs Cortisol. Jim Marshall
AnCan – rick
sent: 8:10 PM
Estradiol seminar w. Steve S https://ancan.org/talking-estradiol-e2-for-recurrent-and-advanced-prostate-cancer/
Keith H. (southern Oregon)
sent: 8:15 PM
thanks for all this, I got to go, but grateful for expertise and this group.
Thomas Matica
sent: 8:21 PM
Short update. Can wait till next meeting. Got to run. Thanks everyone.
Barbara and Joe
sent: 8:23 PM
I hope it’s a low dose of predisone — it just about killed my mother with her rheumatoid arthritis.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:23 PM
5mg of Prednisone is used. Jim M
Jim Marshall, Veteran, Alexandria, VA
sent: 8:24 PM
Although once you stop it one still should taper off versus Cold Turkey. Jim
Steve White
sent: 8:28 PM
Have to drop…thanks again
Alfredo in Houston, TX
sent: 8:35 PM
I must drop off now, thank you everyone; stay well.
