AnCan Friends Art Class – April Edition!

Hello friends! In case you missed April’s AnCan Friends Art Class, we wanted to share the recording with our amazing community. This project uses both crayons and watercolors for a crayon wax resist effect! Check it out below:

 

 

You’ll need crayons, watercolors, mixed media paper or watercolor paper, and either a round brush or a flat brush. I happened to use a size # 8 round brush.

In case you’re having trouble figuring out what colors to use, you’ll see a few different examples of paintings I’ve done in the past. Mostly I just had fun experimenting with the colors, and I hope you can do the same, too! We’re always so proud of the work that comes out of this class. Happy painting!!!

If you’d like to see past artworks from past art classes, check out the gallery here

Hannah,

AnCan Art Class Instructor

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 11, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 11, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 11, 2023

AnCan is grateful to the following sponsors for making this recording posssible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

AnCan Foundation deeply mourns our dear Board & Advisory Board Member, Moderator and Brains Trust Brother, Herb Geller. To read more click https://mailchi.mp/ancan/remembering-herbert-geller?e=838454d636

WEBINAR RECORDING: What is a Pelvic Floor Physical Therapist – & why you need one https://ancan.org/webinar-what-is-a-p…

All AnCan’s groups are free and drop-in … join us in person sometime!      You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/     Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/            Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: We are all devastated aboout Herb GRHS – it didn’t have to be this way!

Topics Discussed

Remembering Herbie; another octogenarian with mystery mets; man with a 7.5 Gleason(???) does well on recurrence; community oncologist provides sub-standard care; capaversitib trial failing – sequencing needed; chemo drops nadir – and more sequencing needed; is 8 months ADT enough for early salvage RT?; PSA drops and tumors shrink except for the new one!; Next Generation Somatic Sequencing IS available if your doc says so; monotherapy darolutamide does the trick; exercise + anxietyDr. S accepts our man and orders HT; PROMISE is the path of least resistance.

Chat Log

CF sent · 5:19 PM We will miss him.

rd sent · 5:20 PM Thank you for observing the silence. Herb details …. Hope you can open this …. https://mailchi.mp/ancan/remembering-herbert-geller?e=[UNIQID]

AnCan- rick sent · 5:23 PM Sponsors Bayer, Pfizer, Janssen, Myovant, Myriad, Telix, Foundation Medicine

sent · 5:36 PM What was Gleason after surgery?

Vic St. Louis, MO sent · 6:15 PM triplet therapy?????

Len Sierra sent · 6:16 PM Good call, Vic. He fits the profile for triplet therapy.

Vic St. Louis, MO sent · 6:17 PM since may 2021!!!

Larry Fish sent · 6:17 PM What kind of scans? Sounds like he may have lit up like a Christmas tree. Then there was probably something to biopsy- eg hip

Vic St. Louis, MO sent · 6:18 PM 10-4

Bob G sent · 6:22 PM Goodnight all. Thanks.

sent · 6:33 PM My name is MarkK and I just joined today. I am stage 4 to the bone and want someone like me to talk to This chat barely works so try spartybbmark@yahoo.com

sent · 6:38 PM Mark Cuban’s discount drug site sells Abbie for $145 for 120 pills. https://Costplusdrugs.com

Pat Martin sent · 6:39 PM I appreciate your input. Going to log off and get this shoe out of my butt that Rick put there See all next Tuesday

Julian – Houston sent · 6:44 PM Thanks everyone! Good discussion as always! Have a good evening.

AnCan- rick sent · 6:56 PM Allen Edel https://pcnrv.blogspot.com/

Len Sierra sent · 6:58 PM Tony, at the site Rick sent you, look for this discussion titled: “Duration of ADT needed with salvage radiation” from Feb 2023

AnCan- rick sent · 7:29 PM Patient Assistance Foundation

AnCan- rick sent · 7:31 PM PROMISE Trial https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

Herbert (‘Herb’) Miles Geller, PhD  1945-2023

Herbert (‘Herb’) Miles Geller, PhD 1945-2023

Herbert (‘Herb’) Miles Geller, PhD  1945-2023

1948-2023

I am writing with a very heavy heart to report the death of our dear Board Member, Advisory Board Member, Moderator, Participant and my good buddy, Herb Geller PhD G-d Rest His Soul.

The loss of dear Herb z”l is already reverberating around AnCan and will undoubtedly amplify as more learn of his demise. Herb touched many well beyond his Advanced Prostate Cancer ‘Brains Trust’, Moderators, Peers and Participants.  The Blood Cancer group got to know him well when he attended regularly on behalf of his brother. The Pancreatic Cancer folks met him when he showed up for his next door neighbor. Our Men Speaking Freely Group loved and respected him for sharing his fears and concerns. Members of our Advisory Board got to interact with Herb as did Medical Academics and others who participated in AnCan’s research projects.

Here are a few of the words I already see bandied around –

  • “kind, smart, caring, thoughtful”
  • “My heart is heavy and I’m at a loss for words. There is something I’m feeling that I can’t express sufficiently”
  •  “this is the deepest hurt since we lost Dominic (2015)”
  • “Thanks to each of you for your loving support of him and all of us for each other.”

Herb passed away from advanced prostate cancer that had evidently morphed into small cell/neuroendocrine like (NEC) disease. A late diagnosis just one day before he entered the NIH, his place of work, identified this. Herb was scheduled to undergo tests for his highly elevated endocrine markers, however the source was now evident on admission. The NIH never appeared to acknowledge or treat him for this diagnosis. It finally added a neuroendocrine oncologist to Herb’s team after 21 days after repeated AnCan prodding from the date of admission. Herb underwent research procedures related to Cushing’s Disease and its symptoms. In due course, AnCan will follow up as appropriate.

Never one to give up the opportunity to sail anything from a small dinghy to an ocean-going yacht, Dr. Herb Geller was a nationally recognized expert in neuro-biology; a profile is available on the NIH site. Herbie loved a a good Scotch, in Skye or anywhere else. On his request, AnCan did its best to sneak in a wee dram just to wet his lip in the final days but the ‘powers that be’ prevented us. I’ll have one for you tonight, Herb!  And, we’ll make sure both your AnCan posters get written up for submission with credit to you.

Herb is survived by his wife of 55 years, Nancy, Director of the Office of Biostatistics for the National Heart, Lung and Blood Institute at the NIH. Also his younger brother, Ken, an eminent Supreme Court Advocate kennethsgeller@gmail.com.  We wish Herb’s family and many friends, especially his “AnCan Family”, much comfort. May Herb’s memory always be a blessing – it certainly will be here at AnCan.

For our Jewish readers, Herb’s z”l Hebrew name is Chanan Moshe ben Aaron v’Sara; he died on 25th Nisan.

O&U, rd

Herbert Geller Obituary (2023) – Washington, DC – The Washington Post

AnCan Art Friends Art Class – March 16, 2023 – Sunset Clouds

Art Friends

Hey Friends! If you missed last Thursday’s art class, then I have the recording for you right here! Share it far and wide, and don’t forget to email your pictures to Alexa (Alexa at AnCan.org).

Supplies:

  • Canvas Size 12in x 12in or similar. Feel free to use a rectangle as well
  • Acrylic Paints: White, Blue (or whatever other Sky & sea color you want), Orange, Yellow, optional Purple
  • Palette Knife
  • Brush: 3/4in or similar
  • Optional tiny brush OR tooth pick OR cotton swab for optional birds
  • Water
  • Napkins

 

Watch here:

Have fun with this and please don’t hesitate to reach out to Hannah@AnCan.org with any additional comments & questions. Happy painting!

Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 24, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 24, 2023

 

Dr. Mark Scholz revisits his indictment of prostate cancer overtreatment in next Monday’s webinar, “Invasion of the Prostate Snatchers – 13 years later!” He’ll also field questions about all stages of prostate treatment — send questions now to Joe Gallo, joeg@ancan.org. Jan 30, 8.00 pm Eastern; register at https://bit.ly/3jN3wAk. Registrants will also get a link to the recording.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern
https://ancan.org/men-speaking-freely/
Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: Radiation, surgery — or none of the above? (bn)

Topics Discussed

Gleason 9 at age 82, and both surgery and radiation look hazardous; cooling doc’s jets on immediate treatment; “triplet” therapy has a piece missing; do mets show up on PSMA PET even at low PSA?; UCSD or UCSF for Palm Springs resident?; biopsy for “unimpressive” lung nodule?; Crohn’s plus radiation therapy ends in severe rectal damage; triple good news on iron, neuro, cardio; puzzling over “0.9” score for P53 mutation; PSMA and genetic testing seem his best options; long after prostatectomy, urinary problems; pain gone after Herb Geller’s spine surgery; which doc for blood in urine?; new genetic test from Myriad; American Cancer Society’s numbers game.

Chat Log

Ben Nathanson · 6:15 PM For anyone interested in the trial drug Pat Martin mentioned last week (capivasertib), I’ve written about how it works: https://bennathanson.substack.com/p/caught-in-the-akt

Paul Freda · 6:45 PM If anyone has had experience with a spot on their Pancreas (NOT Prostate), please contact me. Paul Freda pfreda@gmail.com Thank you.

Jim Marshall, Alexandria, VA · 6:55 PM If anyone is considering ADT, ensure you ask for and get a Baseline TESTOSTERONE number. This will be helpful for when you come off of ADT. You will know how high you hope the the level testosterone should return to.

Les Schjelderup · 6:57 PM Agree with Jim.

Joe Gallo · 6:57 PM Adding to Jim Marshall – before ADT also get a DEXA Scan (bone density scan)

Julian – Houston · 7:03 PM Totally agree! This was the protocol I followed.

Joel Blanchette, Miami Beach, FL · 7:07 PM I am at 4 on Orgovyx

Frank Fabish Columbus OH · 7:09 PM Guys I got to get going. On Sunday Gail and I will be heading to Orlando for Myovant annual meeting to present our stories as a patient ambassador and caregiver ambassador for Orgovyx. I will update all in first Zoom in February.

Alan Moskowitz · 7:10 PM I was at 15 after 2 months of Xtandi and Lupron.

Joe Gallo · 7:14 PM WEBINAR – ‘The Invasion of the Prostate Snatchers: 13 years Later’: An Evening with Dr. Mark Scholz It’s for those of us on Active Surveillance (AS), those considering AS, as well as everyone else with more advanced prostate cancer, and everyone in between. Dr. Mark Scholz, co-author of the groundbreaking 2010 book: “The Invasion of The Prostate Snatchers”, will be joining to discuss where we are 13 years later. Spoiler alert: Things are better but the invaders still are snatching and nuking large numbers of prostates unnecessarily. Join us for this fantastic evening Monday, Jan 30, 2023 8:00 PM – 9:30 PM EST Registration URL https://attendee.gotowebinar.com/register/3476369222172706645

Harrison M. (Myriad Genetics) · 7:42 PM the number is reported at around 10-15% men

Harrison M. (Myriad Genetics) · 7:44 PM Tamsulosin

AnCan – rick · 7:44 PM tamsulosin, Flomax