AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Don’t use a PA or NP to make treatment decisions; closely followed by – audit your medical records! (rd)
Topics Discussed
Deferring treatment on recurrence ain’t a great idea; newbie needs MSKCC referral and we personally endorse two docs; check your medical records – you might find something that never happened; exercise recs for man with heart issues; PROMISE shows no mutations; Payer forces switch of RT provider at last minute; here’s why you avoid a PA or NP if a treatment decision is next; does cribriform change treatment?; value of AI retrospective opinion – even if available; treatment veteran moves to Jevtana; why genetic counseling before germline test; abi-enz sequencing discussion
If any of you new people are Veterans, contact me at CaptJim@AnCan.Org Jim Marshall, USAF(Ret)
Luther
sent: 6:59 PM
enjoyed tonight’s Meeting and will register at conclusion of meeting
Adam
sent: 7:01 PM
Definitely wasn’t covering your ass. Thanks for another great session guys. I have to check out. Survey done!
John A
sent: 7:08 PM
thanks Adam
Steve Roux, North Michigan
sent: 7:10 PM
I visit my patient portal after every office/lab visit. There is a note at the top of the page to contact them if there are any errors. I have done that in the past to correct notes from my 1st med onc.
AnCan – rick
sent: 7:14 PM
Max heart rate – 220 minus age
Alfredo in Houston
sent: 7:16 PM
Steve, all the organizations that care for my wife and I use the same Electronic Medical Record, and they are able to share test results as well with our permission. We pay attention to our After Visit Summaries after every contact. Unfortunately, this is not true for all patients all over the USA
Julian – Houston
sent: 7:21 PM
have to leave early – Great discussion
Alfredo in Houston
sent: 7:30 PM
Agree with everything Rick just said! Unfortunately I have to go. Thanks to all y’all; See you next time.
Steve Roux, North Michigan
sent: 7:39 PM
hey guys – great meeting – I gotta run tho. See you next week!
Thomas M
sent: 8:06 PM
See you all next time, gents. Thanks.
Jim Marshall, Alexandria, VA
sent: 8:07 PM
Jim Marshall. 703-338-7341. CaptJim@ancan.org Veterans
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: T doesn’t drop after Eligard shot – Dr. Jeff asks if it was given sub-cu (right) or IM (wrong)?? – rd
Topics Discussed
Newbie navigated to GU MO for 2nd opinion; better VA care in SF than Sacto; extensive mets takes AnCan’r by surprise; finally starting HT after 11 yrs; PSA of 0.6 calls for PSMA scan and resumption of Tx; in reverse – 4 yrs of doublet may allow break; KP approves HDR brachy – but where?; ctDNA trial; compare SBRT + IMRT to all IMRT; orgo dropped for mono daro; getting up once a night should be paradise; spin wheels at KP or listen to AnCan; wait on GU MO until after salvage RT; DR. Jeff asks if Eligard shot was administered correctly when T doesn’t drop?
Chat Log
Len Sierra sent: 6:24 PM Sampat specializes in GI malignancies
Matt M – Sac sent: 6:31 PM radiation is part of the triplet therapy tree as well yes? Or can be one of the “three”? Oligometastatic is “low volume” metastasis correct? Generally less than 5?
Alfredo in Houston, TX sent: 6:36 PM Enzalutamide, sold under the brand name Xtandi
Richard Tolbert sent: 7:51 PM Hello Dr. Jeff, I had 19 radiation treatments. A 3 month Eligard shot when hospitalized. I am on both Orgovyx and Xtandi.
Matt M – Sac sent: 7:57 PM Hi Guys, Solid night. gotta bounce. See you down the road…
Steve Roux, North Michigan sent: 7:58 PM Good meeting this week, thanks guys! I need to check out for dinner and personal tasks. See you next week.!
Alfredo in Houston, TX sent: 8:49 PM Goodnight everyone and Thank You – I learn something at every session.
Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 16, 2024
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Germline BRCA2 Dx may impact treatment decisions (rd)
Topics Discussed
Younger high risk Gent with germline BRCA; is singlet enough for T3c (SVI); retrying daro; drug holiday endures for CHEK2 Gent; FINALLY starting HT 11 yrs after RP; HT effective; persevering w. Kwon… at least until next decision point; Testosterone discussion
Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 5, 2024
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editors Pick: Crazy increases in PSA suggests therapy is not working; Dr. Bob GRHS (rd)
Topics Discussed
Dr. Bob GRHS’; low level mCRPC – what next?; fermented foods; starting olaparib with somatic BRCA2; chemo holiday for our foamy gland man; long resistant gent starts mono or double HT in the Fall; Vit D and Metformin discussion; heart is solid – PSMA to follow; erratic, fluctuating PSA suggests Tx not working – needs 2nd opinion; Decipher not useful for this situation; stopped abi and prednisone on his schedule + psych issues; 2 gents start start HT for 1st time; Intermittent HT discussion; restarting mono LHRH.
HAHA. Yes. That’s exactly what I was thinking. But yes. The older crowd. I really want to make the under 60 zoom Thursday but I’ll be playing taxi cab during that time. Sigh.
CALCIUM SCORE PRESENCE of CAD (coronary artery disease) O No sign of CAD 1-10 Minimal signs of CAD 11-100 Mild signs of CAD 101-400 Moderate signs of CAD 401+ Extensive signs of CAD
Frank Fabish Columbus OH
sent: 8:33 PM
Thanks for listening guys. Got to run. thanks for the dialogue.
Michael McCabe
sent: 8:42 PM
Got to go guys, see everyone at next meeting
Steve Roux, MI
sent: 8:43 PM
GREAT Meeting guys – I need to take my rescue puppy out for a walk. Goodnight all!
THOMAS M
sent: 8:52 PM
I have used the “Cancer Care” booklet from the FLCCC Alliance, Dr. Paul Marik, MD. The discussion about vitamin D brought this to mind. It suggests repurposed uses of various supplements and pharmaceuticals for cancer treatment. Its worth a glance.
Gary P
sent: 8:55 PM
https://betterdayscounselingllc.com/
John A
sent: 9:10 PM
gotta stop now guys see you next week
Matt M
sent: 9:12 PM
gotta go boys, have a great week! I’ll be on some next onens…..
THOMAS M
sent: 9:22 PM
Time to scoot. Thanks all.
Dr. Jeff
sent: 9:39 PM
gotta sign off. Past my bedtime. see everyone next week
Men Speaking Freely is on for July 4 – we’re talking parent-child relationships with Dr. John Happy July 4th to all
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Dr. Jeff advises you read your medical records carefully – he’s found mistakes and typos in his! (rd)
Topics Discussed
Solution to chafing from sweats; put a GU med onc in place before you finish up at Fort Belvoir; Promise germline test; advocating for yourself at KP; play anxiety card to get Casodex buffer; couple of Gents update us; read your medical records carefully; PSA creeps – possible post-RP recurrence – when to get PSMA PET?; testing PSA in Panama and US; how does PSMA change as disease advances; responding well to HT; good immune system can slow disease
Hi, Dr. John. I’m 66. Inova Oncology Genetic testing ~ 2018. No BRCA. No prostate cancer history immediately family (father, uncles, cousin). Mother breast cancer (survived 30 years) died of uterine cancer (BRCA, I think). After an ADT vacation three years – 2020 > 2023. Orgovyx February 2024 and scheduled to stop end of July 2024. (Received continuous ADT 2017-2018. Had intermittent ADT 2018 through 2019.) Thank you, Doctor.
John A
sent: 5:49 PM
Color includes PTEN.
Richard Fiske
sent: 5:56 PM
Long Term AnCan title: BSd
dan straub
sent: 6:02 PM
I just received my COLOR genetic test results… it does NOT analyze P10 or RB1
