NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14.
Sign up at https://ancan.org/contact-us/
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: What’s the right group for me? (rd)
Topics Discussed
Older Newbie on longer term HT is concerned about bone health; post-RRP Gent at high risk considers preemptive radiation; a ‘regular’ preparing to complete HT wonders which group he belongs to; balancing estradiol and testosterone levels; reluctantly considering intermittent hormone therapy; challenges with an out-of-state GU med onc; treatment update and AnCan gratitude; chemo contunues with tests and GU MO encouraging; Gent takes AnCan advice switching to MSKCC.
Chat Log
Steve L
sent: 5:23 PM
No response needed but I want to share that I have lost 18 pounds since my pulmonary embolism cleared. Unfortunately I had gained 48 pounds during the nearly 12 months it took to clear. So 30 plus to go.
Larry (Alaska)
sent: 5:26 PM
Bone strengthening: Bone loss on ADT is considered to be because of too-low estradiol level (same reason post-menopausal women) caused by depression of estradiol that accompanies suppressing testosterone. A man needs a certain level of estradiol which can be supplemented by patches or gel taken through the skin. Standard-of-Care bone strengtheners have side effect that estradiol does not.
Good input, Larry. I agree completely. Lots of docs pitch a fit about it, often based on very old work with non-bioidentical estrogens, orally administered.
Larry (Alaska) sent: 5:42 PM
Look up the “PATCH” study which compared E2 to Lupron over 15 years time
Jeff Marchi – San Francisco sent: 5:44 PM
UCSF bone health seminar May 2025 Therapy – for all men on hormonal therapy • Calcium 1200mg daily • Vitamin D 400 units daily • Denosumab or Zoledronic Acid for mCRPC or Osteoporosis
Thomas Matica sent: 5:49 PM
K2 works in conjunction with vitamin D (D3 preferred) aiding with absorption of the vitamin D. Good idea to take both.
Larry (Alaska) sent: 5:50 PM
AND weight-bearing exercise strengthens bones. Take it as seriously as you take your other medications!!!!!!
Jim Marshall, Veteran, Alexandria, VA sent: 5:51 PM
Vitamin K is great except for those of us on Blood Thinners. Jim M
Brian Haack – Eagle, ID sent: 5:54 PM
Gotta run. Great discussion!
Lee Baylin, Baltimore sent: 6:08 PM
good night all
Steve L sent: 6:12 PM
My radiation was not an initial treatment but 42 months after my De novo diagnosis and after numerous treatments. My prostate had been substantially reduced in size prior to the radiation.
Steve White sent: 6:16 PM
Need to run. Thanks for the discussion
Jim Akin, Bradenton, FL sent: 6:26 PM
Larry, try using app ChatGPT in your research. That is an AI app.
Jeff Marchi – San Francisco sent: 6:28 PM
At U of Chicago Russell Szmulewitz, MD – UChicago Medicine Or at Northwestern David J VanderWeele :
Larry (Alaska) sent: 6:30 PM
Jim, I have used the heck out of AI, especially “Perplexity” and extensively studied the source materials it cites. A number os AI engines are very good. Check out also David Diaz’s book “How to use AI to fight your prostate cancer” available through AMAZON Thanks for the suggestion, Jim.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 23, 2025
UPCOMING PRESENTATION
Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern!
“Interpreting Prostate Needle Biopsies in Today’s World”
Bx explained from early AS to advanced Pr Ca inc. AI – with lotsa time for Q&A.
Register at https://ow.ly/PpoX50WVsJ4
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14.
Sign up at https://ancan.org/contact-us/
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Hiding in plain sight, a new tumor docs failed to mention. (bn)
Topics Discussed
Upcoming AnCan group; newly diagnosed with a spot on his spine — consider zapping both prostate and tumor; what’s happening with Medicare and telehealth?; a Pluvicto update after his first treatment; after focal therapy, docs kept quiet about a new tumor, and it may now be escaping the prostate; lots of metastasis, PSA in the thousands, but he got doublet therapy, not triplet; a 0.04 PSA rise isn’t worrisome; he’s offered Clomid to raise testosterone (why not just take testosterone?); massive sweating spells that far exceed hot flashes; prior mastectomy complicates planned radiation for sore nipples; thanks to John Maxwell for giving AnCan the proceeds of his poetry collection during September; great experience from Dr. Guercio in Rochester; ready to shift his care to a top NYC hospital.
Chat Log
Ben Nathanson · 6:16 PM
NY Times: In Chicago, a New Approach to Gay and Bisexual Men With Prostate Cancer https://www.nytimes.com/2021/12/07/health/prostate-gay-sex-cancer.html?unlocked_article_code=1.oE8.Ij-J.lRa7OMYAXY5h&smid=url-share Allen Edel: Gay men should never have a prostatectomy https://www.prostatecancer.news/2021/
AnCan – rick · 6:29 PM
Kevin courtney is the GU med onc
AnCan – rick · 6:29 PM
at UTSW that I ws truying to recall.
Alfredo in Houston · 6:31 PM
https://profiles.utsouthwestern.edu/profile/131906/kevin-courtney.html
Alfredo in Houston · 6:32 PM
https://www.houstonmethodist.org/doctor/eleni-efstathiou/
AnCan – rick · 6:39 PM
PROMISE Trial https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Alfredo in Houston · 7:03 PM
https://www.uofmhealth.org/profile/2980/todd-matthew-morgan-md
AnCan – rick · 7:27 PM
Interpreting Prostate Needle Biopsies in Today’s World” with global expert Dr.Jonathan Epstein , Advanced Uropathology Register at https://ow.ly/PpoX50WVsJ4 – free.
Jim Marshall, Veteran, Alexandria, VA · 7:28 PM
https://ancan.us14.list-manage.com/track/click?u=ece3f3da90f82cb974b407396&id=9b15081950&e=7e455a27bb For Veterans Speaking Freely. Jim
Don Rogers · 8:08 PM
anastrozole 1 mg twice a week
AnCan – rick · 8:23 PM
casodex
Frank Ciambra · 8:35 PM
i just did my 7th pluvicto last wednesday i am recovering well and ave atrip planned to see my son and his family this weekend and will be jammig music tommorow night
Frank Ciambra · 8:38 PM
im going to see my son who recently retirrd from the teams in va beach mygrandsons have bb tornaments this weekend
AnCan – rick · 8:42 PM
Dr. McHugh, Dr. Rathkopf, Dr. Autio
AnCan – rick · 8:44 PM
geenitourinary (GU) medical oncologist
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 15, 2025
UPCOMING PRESENTATION…Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern! “Interpreting Prostate Needle Biopsies in Today’s World” He’ll discuss Bx from early AS to advanced Pr Ca inc. AI – with plenty of time for Q&A. Register at https://ow.ly/PpoX50WVsJ4
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14. Sign up at https://ancan.org/contact-us/
Hear John Maxwell on Solo Arts Heal https://youtu.be/UQuMUm6HHqU and buy Hammering Nails for AnCan’s fundraiser https://www.amazon.com/Hammering-Nails-Poems-strange-topics/dp/B0BNJHYVG3?mc_cid=8e4adc6969&mc_eid=838454d636
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine. Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Whether old or young, consider carefully before opting for surgery with hi-risk disease (rd)
Topics Discussed
Older gent who did surgery now faces MDT, salvage RT and HT; contrast an under 50 gent who did surgery and lso needs salvage RT; and another 4+5 younger man debating RP; chemo resulted in pleural effusion damage; hearing loss and abi??; Novartis re-ups with 12 mos addtional Pluvicto; PSMA shows slight increase in tumor size and L3 met for our Mod; something else cud be going on beyond the prostate cancer
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 9, 2025
UPCOMING PRESENTATIONS
MRI 2nd Opinions….. ProstateID solves the challenge It’s challenging. to get MRI 2nd Opinions… ProstateID solves it. Affordable & AI-validated Wed. Sep 17th at 6.30 pm Eastern in the AnCan Barniskis Room https://www.gotomeet.me/AnswerCancer Developer, Randall Jones, PhD explains the technology and its uses.
Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern! “Interpreting Prostate Needle Biopsies in Today’s World” He’ll discuss Bx from early AS to advanced Pr Ca inc. AI – with plenty of time for Q&A. Register at https://ow.ly/PpoX50WVsJ4
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14. Sign up at https://ancan.org/contact-us/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Ice hockey Newbie wants to consider intermittent hormone therapyrd)
Topics Discussed
Does an AUS interfree with RT?; hockey player want to consider IHT; urinary issues post RT; anti-morphing strategies; PSMA helps find possible salivary tumor; constipation pain from opiates; blood transfusion helps; osteopenia may warrant Prolia; is sleep apnea the cause of cachexic symptoms?; is cycling OK during RT?; mono Nubeqa working well; B12 and magnesiun for restless leg; John Maxwell on Solo Arts Heal;
Chat Log
John Maxwell – Chicago sent: 3:11 PM
Last week I was blessed to be interviewed by Hannah on Solo Healing Arts where I discussed my prostate cancer journey and lifelong journey as a poet and my book “Hammering Nails” Find the links to the Interview and to buy my book above. All net proceeds from the sale of my book during September 2025 will be donated to ANCAN.
I’m at the start of my ADT journey. I have been on Orgovyx for 6 months. I plan to stay on for the full 24 months. When I do stop taking Orgovyx how quickly does my testosterone return?
John M — Guys on Orgovyx will recover T levels faster than those on Lupron/Eligard, etc. However, everyone is different and how fast your T levels recover will depend on your baseline T, how old you are, and how long you’ve been on Orgovyx.
AnCan – rick sent: 4:01 PM
John M …. the rule of thumb is twice the length of time you were on. It depends on age…. With orgo, it could well be shorter. It was shorter for me on Lupron – 9 mo. Should say the rule of thumb used to be…..
Paul D in Little Rock sent: 4:40 PM
Thanks everyone I have another meeting and have to sign off. See you again soon. I was able to sign up for the Promise tests, which are on the way. I appreciate the lead to that resource. Paul
sorry I had trouble logging in… another good mtg; but I have to leave as bldg is closing
Jeff Marchi – San Francisco sent: 4:59 PM
Low cortisol could cause fatigue
John M – Chicago sent: 5:09 PM
Link to my Solo Arts Heal ANCAN Podcast and biik purchase are above. Net proceeds from all book sales in September will be donated to ANCAN
AnCan – rick sent: 5:10 PM
CoQ10 for cramps Theraworx for leg cramps
AnCan Bill sent: 5:16 PM
I had a Karate Sensei that swore by mustard for cramp relief. Like the kind of mustard packets you get at a fast food joint. He recommended sucking one down when students got a cramp. He kept them in the Dojo. I don’t know if it was just the power of suggestion but it seemed to work.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 29, 2025
MARKET RESEARCH STUDIES: AnCan has a new market research opportunity for you and your Care Partners through our collaboration with Pinpoint Patient Recruiting. It’s seeking to fill 2 different studies with:
Men &/or Carers – both can apply but with separate applications
Must be US based
Men confirmed hormone sensitive with or without mets OR castrate resistant
Active treatment is NOT required – you can be on a drug holiday
You’ll intially earn $125 for a 60-minute virtual online interview. Researchers want to understand your experiences living with prostate cancer and your opinions on treatment and care.
There’s another $50 if you provide evidence from your medical records of your confirmed diagnosis – screenshots suffice.
If you opt in for a second interview, another $125 is available. Your Carers also have the opportunity to earn $125 for a 60 minute interview. By our reckoning, that’s upto $425!
The researchers are particulalry interested in reaching diverse minorities – especially African Americans and Hispanics.
If you’ve already been contacted directly by Pinpoint from a prior study and been accepted, please let us know at rd@ancan.org.
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Editor’s Pick: Is radiation worse than surgery in intraductal? (bn)
Topics Discussed
Intraductal, but leaning toward radiation because of comorbidities and surgical risks; hot-flash news flash: a salute to Dr. Wassersug and his ADT book; cancer doc waiting for a 1.0 PSA is less scary than it seems; anyone have heart problems on abiraterone? (answer: lots of us); Marc V. awaits liver biopsy results and mulls future steps; bloodwork problems go away when he switches to one abi with a meal from two abis without; hopes for spotting recurrence early with a blood test for residual disease — but it’s still early in the pipeline; actinium trial turns him down but is vague about why; lymph nodes light up PSMA PET, but MRI says nothing’s there; liver and spleen mets appear to be a false alarm; our disagreements with Mayo’s Dr. Kwon; happy about monthly results that show his PSA still dropping; anyone know how to get back on your feet after chemo’s Mack truck takes you down?
Chat Log
Hank Zajic Springfield VA · 6:32 PM
Deville was my Radiation Oncologist. He works out of SiIbley. First rate!
Hank Zajic Springfield VA · 7:06 PM
Richard Wassersug’s book is Androgen Deprivation Therapy 3rd Edition, published in 2023. You can also find him/ his work at the website LifeonADT. I found the book (and his course) an excellent “manual” that describes the therapy approaches, side effects and practical things to help get ahead of impacts. For a novice, looking down the barrel for the first time (so to speak) I found it a terrific resource.
AnCan – rick · 7:09 PM
Dr. Javid Moslehi https://www.ucsfhealth.org/providers/javid-moslehi
Jim Marshall, Veteran, Alexandria, VA · 8:11 PM
When esophogeal cells are damaged, they are replaced by Stomach cells. Known as Barrett’s Esophagusgiving at 15% chance of developing cancer in the throat. Jim
AnCan – rick · 8:39 PM
Embr watch https://embrlabs.com/
