Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 28, 2025
Made a donation yet? If not, now’s the time – PLEASE! It’s AnCan’s Annual Fundraiser – once a year is the only time we ask for donations.
We’ve received less than 10% from participants, viewers and those receiving the Reminder combined. Time to step up and show appreciation and gratitude if you watch these videos, find them helpful., and want them to continue. Donate now at https://ancan.org/donate/
IF YOU’RE WATCHING THIS VIDEO, PLEASE COMPLETE OUR SHORT, 7-MINUTE ANCAN 2024 SURVEY... https://docs.google.com/forms/d/e/1FAIpQLSfw2B3rZTMWIPqTmzLYBl1CdN9qRJSpt0f72CoK6J00zllzWw/viewform AnCan needs your feedback and we also hope to take the results to medical conferences. We will be closing out in the next couple of weeks, so no more procrastinating please!! Analysis is scheduled to start soon and we are at 454 response in total. Let’s break 500!
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: After 10 years (with a Gleason 10!) he’s ready for an ADT break. (bn)
Topics Discussed
Just three positive biopsy cores — but they’re in a bad place; five positive cores — but they’re all Gleason 3+3; he’s “an 81-year-old guy who’s been fighting cancer for 10 years” (with a Gleason 10!) and is thinking about a drug holiday; reminders from Rick: donations are still sadly low, and there’s still time to fill out the survey; re-irradiate old metastases that no longer show up in scans?; my docs don’t talk to each other — you’re calling that a team?; he’s never had a seizure till now — was it the Xtandi, and was it really a seizure?; should he fine-tune which statin he takes?; is prostate debulking useful for de novo men?; does he also need spot radiation in his bones if he’s also getting ADT?; those new bone pains might be caused by metastasis, not ADT; his urologist and the MSK nomogram are way apart on prognosis.
Chat Log
Len Sierra · 6:39 PM
https://www.mskcc.org/nomograms/prostate
AnCan – rick · 7:02 PM
PROMISE trial https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
AnCan – rick · 7:29 PM
Survey …. https://docs.google.com/forms/d/e/1FAIpQLSfw2B3rZTMWIPqTmzLYBl1CdN9qRJSpt0f72CoK6J00zllzWw/viewform
AnCan – rick · 7:30 PM
Donations https://ancan.org/donate/
AnCan – rick · 8:06 PM
Study Doug is ref: https://pmc.ncbi.nlm.nih.gov/articles/PMC3255347/#abstract1
Dr. Jeff · 8:09 PM
According to current research, rosuvastatin appears to be more effective than simvastatin in potentially preventing or managing prostate cancer based on studies showing a stronger association with reduced cancer progression and mortality, with some evidence suggesting that rosuvastatin may have a more potent anti-tumor effect compared to simvastatin; however, more research is needed to fully understand the specific differences between the two drugs in relation to prostate cancer. Several studies have indicated that rosuvastatin may be associated with a greater reduction in prostate cancer mortality compared to simvastatin. So there are different conclusions.
AnCan – rick · 8:15 PM
Allen Edel https://pcnrv.blogspot.com/2018/09/no-survival-benefit-to-debulking.html
Larry Schuller · 8:30 PM
Firmagon and Orgovyx are receptor antagonists. Lupron is an agonist. They interrupt the instructions to the testes to make testosterone but agonists have two problems. The first is a testosterone surge (which has to be endured or suppressed) for about amonth and the second is that when you stop, it takes longer for your testosterone to recover
AnCan – rick · 9:03 PM
gdeliguori@imppllc.com
Jim Marshall, Alexandria, VA · 9:04 PM
Ming Zhou – Ming.zhou@mountsinai.org
Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 20, 2025
Watching this- made a donation yet? If not, now’s the time – PLEASE! It’s AnCan’s Annual Fundraiser – once a year is the only time we ask for donations.
We’ve received less than 10% from participants, viewers and those receiving the Reminder combined. Time to step up and show appreciation and gratitude if you watch these videos, find them helpful., and want them to continue. Donate now at https://ancan.org/donate/
IF YOU’RE WATCHING THIS VIDEO, PLEASE COMPLETE OUR SHORT, 7-MINUTE ANCAN 2024 SURVEY... https://docs.google.com/forms/d/e/1FAIpQLSfw2B3rZTMWIPqTmzLYBl1CdN9qRJSpt0f72CoK6J00zllzWw/viewform AnCan needs your feedback and we also hope to take the results to medical conferences. We will be closing out in the next couple of weeks, so no more procrastinating please!! Analysis is scheduled to start soon and we are at 454 response in total. Let’s break 500!
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Always a challenge to know when to resume treatment – 2 gents raise the issue (rd)
Topics Discussed
Decipher report causes unnecessary concern for Newbie with recurrence; lurker becomes Newbie – E2 doing the job but what about RT?; PSA doubles from low levels – test more frequently; great news… scans seem to show FDG and PSMA concordance; zero ctDNA measured in trial and nothing actionable; Dr. E monitors for other cancers with MUTYH driver; why no doublet for this Gent? sounds like GU MO waffle; PSMA suggests it’s time to debulk w. RT and maybe go wider; another example of undertreatment of Mx disease; does RT and ADT effect bone integrity – esp. hips?; PSA rise may be test error with 3 decimal places – don’t jump the gun!
If anyone is curious: Decipher GRID-Derived Gene Expression Signature Can Help Personalize Prostate Cancer Treatment https://investor.veracyte.com/news-releases/news-release-details/new-data-be-presented-2023-asco-gu-suggest-decipher-grid-derived
Lostsheep I believe
Larry Schuller sent: 7:03 PM
Franktalk.org
Larry Schuller email is ( contact rd@ancan.org for email) if anyone has questions about my research, implants, anything
Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 14, 2025
It’s AnCan’s Annual Fundraiser – just once a year is the only time we ask for donations. FYI, we’ve received a mere 70 donations from this group, even though we have almost 300 regular participants, and 700 who receive the Reminder. Time to step up and show appreciation and gratitude if you watch these videos and find them helpful. Donate now at https://ancan.org/donate/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Without T, it’s not much of a drug holiday — dare he get shots? (bn)
Topics Discussed
From Rick: 33,000 views on AnCan YouTube channel – why you should consider an AnCan donation, if you haven’t – we’re digging into AnCan survey responses – a cancer story that’s “a little eerie and pretty amazing”; 2-year drug holiday and still no testosterone — are testosterone shots a crazy idea? (lots of discussion on this); link between ADT and arithritis?; statin skeptic changes sides; getting agonizing bone pain on a white blood cell stimulator — Claritin might prevent it — better yet, see a palliative care doc; three Pluvicto treatments have driven his 200 PSA down to 1.7 — does he need more?; he’s got questons: why the bicalutamide – why no mutations in my somatic test? – are drug holidays a whipsaw? – and what’s your average lifetime if you have prostate cancer?; nine years into his illness, he offers a message of hope; can a biopsy show PSMA avidity?; after finishing Prolia, backing it up with bisphosphonates; reduction surgery for his ADT breasts — he loves the results; a runaround when he wants to watch his anemia, but the law’s on his side.
Chat Log
Luther · 6:39 PM
will do
AnCan – rick · 6:39 PM
Patient Guide to BAT – Antonarakis & Denmeade https://onlinelibrary.wiley.com/doi/full/10.1002/pros.24328#:~:text=BAT%20is%20a%20new%20treatment,the%20blood%20(Figure%203)
AnCan – rick · 6:40 PM
Denmeade webinar on BAT https://ancan.org/bipolar-androgen-therapy-bat-sam-denmeade-md/
marc valens · 6:41 PM
see y’all next week. It’s time for my Telehealth with my GU Medonc Dr Aggarwal
AnCan – rick · 6:42 PM
good luck
AnCan – rick · 6:54 PM
single nucleotide polymorphism SNP
AnCan – rick · 6:59 PM
Signatera ctDNA test https://www.natera.com/
AnCan – rick · 7:00 PM
the Signatera test has not been cleared or approved by the FDA. However, the FDA has granted the Signatera molecular residual disease (MRD) test three Breakthrough Device Designations for use across multiple cancer types
AnCan – rick · 7:01 PM
The test is available for clinical and research use and is covered by Medicare for patients with colorectal cancer, breast cancer, ovarian cancer and muscle invasive bladder cancer, as well as for immunotherapy monitoring of any solid tumor.Feb 26, 2024
AnCan – rick · 7:02 PM
https://www.natera.com/company/news/medicare-extends-coverage-of-nateras-signatera-mrd-test-to-ovarian-cancer-and-neoadjuvant-breast-cancer/#:~:text=About%20Signatera&text=The%20test%20is%20available%20for,monitoring%20of%20any%20solid%20tumor.
AnCan – rick · 7:56 PM
Usually a bisphosphonate infusion like Zometa – zoledronic acid
It’s AnCan’s Annual Fundraiser time – just once a year is the only time we ask for donations. If you watch these videos and find them helpful, please step up ad donate – https://ancan.org/donate/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: A transperineal biopsy with sedation may be a safer alternative to a transrectal biopsy. (bj)
Topics Discussed
Frequent urination, low testosterone, CAT scan, Transrectal and Transperineal biopsies, Gleason Score, second opinion, MRI and MRI guided biopsies, PSA, simple prostatectomy (turp), ArteraAI Postate Test, active surveillance, Pi-RADS 4, PSA Velocity, urinary incontinence, Barrigel Spacer, Decipher and genetic testing, Promise Study, focal treatment, Prostate Screening Epi-Switch test.
Chat Log
Stuart
ming.zhou@mountsinai.org
John A
Ming Zhou, Mt Sinai or Johns Hopkins GU Pathology
AnCan – rick
Survey…. please complete! https://docs.google.com/forms/d/e/1FAIpQLSfw2B3rZTMWIPqTmzLYBl1CdN9qRJSpt0f72CoK6J00zllzWw/viewform
Bill Franklin
Well, I’m not looking for any new friends 😁 but I’m always happy to talk to anyone that wants information about AnCan or any other way I can help you out. bfranklin@ancan.org
Bill Franklin
Aim High
Sandy
above From Sandy Sund
AnCan – rick
Congrats to you, Paul N
Bob Weber
Thanks for all the information and guidance. As a result I have provided numerous recommendations on FB. I have taken the survey and will be donating this month. Both Mark and Rick have provided responses to my inquiries. I
AnCan – rick
AnCan Promise link https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
AnCan – rick
@BobWeber – THANK YOU!
AnCan – rick
Here’s the UCSF Journal Club presentation on intraductal/cribriform, Stephen – please watch, and please pass along to Dr. Scholz with our complements. https://www.urotoday.com/video-lectures/a-journal-club-for-patients-with-prostate-cancer/video/mediaitem/4452-unfavorable-histology-classification-aims-to-reduce-unnecessary-treatment-journal-club-jesse-mckenney-cornelia-ding.html
Stephen (Vancouver)
Thankyou Rick, will check it out and try to pass it on to Dr. Scholz
Bill Franklin
Got to drop. Everyone have a good night!
Louis
I have to drop off as well. Thanks all. Have a good night.
Shirrell -Alabama
I am dropping as well. I hope everyone has a good evening and the LA area guys stay safe!
Joe M, Victoria BC
Gotta go –dinner time. Thanks to all.
Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 6, 2024
It’s AnCan’s Annual Fundraiser – just once a year is the only time we ask for donations. FYI, we’ve received a mere 70 donations from this group, even though we have almost 300 regular participants, and 700 who receive the Reminder. Time to step up and show appreciation and gratitude if you watch these videos and find them helpful. Donate now at https://ancan.org/donate/
IF YOU’RE WATCHING THIS VIDEO, PLEASE COMPLETE OUR SHORT, 7-MINUTE ANCAN 2024 SURVEY… https://docs.google.com/forms/d/e/1FA… AnCan needs your feedback and we also hope to take the results to medical conferences. We will be closing out in the next couple of weeks, so no more procrastinating please!
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: ctDNA can play an important role when scans don’t see cancer and PSA is rising (rd)
Topics Discussed
Denovo Mx gent on triplet therapy needs some tweaks; newly diagnosed intraductal, cribriform man needs 2nd opinion on pathology; ultrasensitive PSA creeping up; ctDNA is just the job when we can’t see recurrence any other way; as suspected, signs of small cell, neuroendocrine like cancer; cancer is very stable, but new shoulder may be in order; PSA patterns after RT and coming off ADT; prednisone taper smoother with pred. resumption, but iron could be an issue; is testicular pain from ADT/HT common?; how feasible is T. replacement with advanced PCa?
Gotta go guys. Thanks again for the new info and welcome to the new guys! Will catch the rest of the meeting on the cast. Remember that: ANYTHING IS POSSIBLE!!
Harry, I can tell you that Dr. Thomas Hope at UCSF says that there is no reason for anyone to be ordering conventional bone scans in the era of PSMA-PET.
Peter M sent: 7:53 PM
Good night gents!
Doug D sent: 8:00 PM
Luther, Nno, I will be seeing Maxwell Poole
Thomas sent: 8:09 PM
Thanks for the feedback, gents. Got to scoot. Next time.
Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 31, 2024
IF YOU’RE WATCHING THIS VIDEO, PLEASE COMPLETE OUR SHORT, 7-MINUTE ANCAN 2024 SURVEY…
AnCan needs your feedback and we also hope to take the results to medical conferences.
It’s AnCan’s Annual Fundraiser time – just once a year is the only time we ask for donations. If you watch these videos and find them helpful, please step up ad donate – https://ancan.org/donate/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan’s Annual Fundraiser is NOW – we only bother you once a year. Not even an email on Giving Tuesday! PLEASE support us generously – pharma sponsorship is down this year and AnCan needs grassroots participants to compensate. Please treat us generously. https://ancan.org/donate/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Many ideas for dealing with cramps, pain, and neuropathy; outsmarting the system to get a PSMA PET scan. (bn)
Topics Discussed
Reminders: our survey, and our once-a-year appeal; he’s newly diagnosed and already being pushed to enter a clinical trial; American emigre in Israel holds a bad genetic hand — we suggest a visit to Dr. E when he’s stateside; what’s the point of an FDG PET scan if my PSMA PET was negative?; persistent back pain and bad hand and leg cramps has many potential causes — could a palliative care doc help? — and we have suggestions on the cramps and pain; success with Dr. Guancial; advice on palliatives for neuropathy; fever and extreme pain after a Lupron shot — it’s Orgovyx for him from now on; living it up with friends now that his radiation’s done; a disastrous second chemo round – RSV, a urinary tract infection, and he’s lost his voice; Pylarify vs gallium 68 scans — does the difference matter?; struggling to get community care approval from the VA; Kaiser doc tries to deny him a PSMA PET, but our man’s got a plan; getting a GU medonc referral through the VA.
Chat Log
Dr. Jeff · 6:29 PM
A MUGA scan can provide information about: The heart’s pumping efficiency, Blood flow, The size of the heart’s chambers, The motion of the heart’s walls, and The amount of blood pumped out of the heart with each beat.
John A · 6:36 PM
That Cancer Center website seems like a radiation facility
TonyFig · 6:57 PM
A reminder for Dave and Jessica that this meeting is recorded so you can review the tremendous amount of information shared.
Joel Blanchette, Reston, VA · 7:21 PM
I also have PTEN and TP53.
Ethan Boger · 7:35 PM
Thanks Joel and Rick. I already clicked on the link. Will make contact after the holiday.
Ethan Boger · 7:38 PM
Thanks for allowing me to share my story. This is a great group. God bless.
Ethan Boger · 7:41 PM
Is that to me? Ethan? No, I served in the israeli army.BTW, my son lives in Alexandria.
Ethan Boger · 7:45 PM
Lots of good folk here. Interesting discussions. Looking forward to joining future meetings if I can figure out how to stay up (it’s 0245 over here right now!)
Ethan Boger · 7:49 PM
Yes I will.
marc valens · 8:09 PM
cbd salve massaged in to my feet and lower leg gave me some relief for my painful neuropathy
Ethan Boger · 8:13 PM
Thank you thank you – my Yiddish is a bit rusty but am Yisrael chai is good old Hebrew.
Ethan Boger · 8:16 PM
😀😃
Doug D · 8:23 PM
I was late to the meeting because I was at my initial appointment with a PCP, Dr Kinne, at the VA in Hillsboro, Oregon (near Portland). Good news is that she referred me to Julie Graff or one of her colleagues. Bad news is that she cannot guarantee that my appointment will be with Dr. Graff.
Thank you very much for your information and inspiration. Best to all in the New Year.
It’s AnCan’s Annual Fundraiser time – just once a year is the only time we ask for donations. If you watch these videos and find them helpful, please step up ad donate – https://ancan.org/donate/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: What technologies and practices are now considered state of art for prostate cancer treatment? (bj)
Topics Discussed
Post radiation treatment (40 grey/five sessions) update – five weeks out no side effects; Are rectal spacers needed?; Three commonly used rectal spacers are (1) Barrigel, (2) SpaceOAR, and (3) BioProtect; What is state of the art in prostate Cancer treatments?
Chat Log
AnCan – rick
Sorry I’m late Gents – was in our Pancreas Cancer Group. They switched their regular date this month.
Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 16, 2024
***NEXT MEETING – TUESDAY, DEC. 31 @ 6.00 PM EASTERN*** No meeting on Xmas Eve!
IF YOU’RE WATCHING THIS VIDEO, PLEASE COMPLETE OUR SHORT, 7-MINUTE ANCAN 2024 SURVEY…
AnCan needs your feedback and we also hope to take the results to medical conferences.
It’s AnCan’s Annual Fundraiser time – just once a year is the only time we ask for donations. If you watch these videos and find them helpful, please step up ad donate – https://ancan.org/donate/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan’s Annual Fundraiser is NOW – we only bother you once a year. Not even an email on Giving Tuesday! PLEASE support us generously – pharma sponsorship is down this year and AnCan needs grassroots participants to compensate. Please treat us generously. https://ancan.org/donate/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
4+3, 4+5, cribriform?? – how much ADT??; no drug holiday just yet; sleep issues from abi steroids; how much pred with abi?; undetectable 2 years out; undetectable on mono daro with T at 101; estradiol patch helps mitigate ADT side effects; statins good idea after all; Dr. Snuffy was ahead of his time; can lesion on clavicle be handled with RT alone – check with VA GU med onc; mCRPC with PSA at 3.5 and negative PSMA – do a FDG PET!
(Apologies from rd for the outburst – hopefully we can get participants to take time in the meeting rather than use private messages when they have a query)
Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 10, 2024
IF YOU’RE WATCHING THIS VIDEO, PLEASE COMPLETE OUR SHORT, 7-MINUTE ANCAN 2024 SURVEY…
AnCan needs your feedback and we also hope to take the results to medical conferences.
It’s AnCan’s Annual Fundraiser time – just once a year is the only time we ask for donations. If you watch these videos and find them helpful, please step up ad donate – https://ancan.org/donate/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan’s Annual Fundraiser is nigh – we only bother you once a year. Not even an email on Giving Tuesday! PLEASE support us generously – pharma sponsorship is down this year and AnCan needs grassroots participants to compensate. Please treat us generously. https://ancan.org/donate/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Lots of options — statins and more — for cholesterol. (bn)
Topics Discussed
No meeting Christmas Eve — we’ll meet Dec. 31 instead; check your mailbox for AnCan’s once-a-year fundraising appeal; please complete the survey if you haven’t; moderator Ben Nathanson is on the cover of the new Cancer Health magazine; THC and CBD greatly helps a Pluvicto patient — “Oh, my God, you have no idea”; one problem after another with his artificial sphincter; positive experience with a penile implant; many statin options if you need one; 30 days is way too short a taper after 2 years on prednisone; new on ADT and dealing with constipation; Embr Wave may be taming his hot flashes; low PSA but hip pain has him worried; estradiol patch has pros and cons.
Chat Log
Alfredo in Texas · 7:06 PM
https://en.wikipedia.org/wiki/Fenofibrate
AnCan – rick · 7:08 PM
colestipol
Alfredo in Texas · 7:08 PM
the injectable drugs I mentioned are called Praluent and Repatha they are a category called PCSK9 inhibitors
Alfredo in Texas · 7:08 PM
again, those would be discussed with a cardiologist
AnCan – rick · 7:12 PM
Great discussion on statins – let’s see if Ben makes this his Editor’s Pick. Wud be mine
Alfredo in Texas · 7:23 PM
Endocrinology Welcome to the endocrine, diabetes, and metabolism service of Alexander T. Augusta Military Medical Center. We are proud to offer the highest quality care to our military personnel, retirees and their families. Our professional team offers patient- and family-centered inpatient care in the field of endocrinology, diabetes, and metabolism. Services Offered Our highly-trained staff provides adult inpatient and outpatient initial consultation and follow-up of patients with endocrine disorders, thyroid fine needle aspiration biopsies, diagnosis and treatment of thyroid cancer, complex diagnostic metabolic testing with physician interpretation and infusion of a medication for osteoporosis. We provide osteoporosis/osteopenia screening and interpretation through dual-energy X-ray absorptiometry (DEXA) scanning. Contact Us Phone Main 571-231-1402/1403 Appointments 1-855-227-6331 Hours Monday–Friday: 7:30 a.m. to 4 p.m. Weekends and Holidays: Closed Location Meadows Pavilion, Floor 1, Reception
PATCH study has cncluded and about to publish final results. Presentation at ESMO in September recommended that is should be an option for standard of care, unequivocally
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Editor’s Pick: Do you really need radiation or surgery? Consider Active Surveillance! (rd)
Topics Discussed
Is this 72 yr old Gent a candidate for AS?; and this 75 yr old may be, but can he handle AS?; let’s dis-myth focal therapy (sorry for the lisp!); pick the right VA for the best treatment; John pulls the trigger with Dr. Nagar; post-Tx numbers deserve further discussion with Provider and maybe more frequent PSAs; BE YOUR OWN BEST ADVOOCATE!
Gents – we have a men-only discussion group to speak about everything EXCEPT treatment. Men Speaking Freely, 1st & 3rd Tuesdays. https://ancan.org/speaking-freely/
