AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: You rarely get out of cancer Scott-free; and treatment decisions complicated by other chronic conditions (rd)
Topics Discussed
Evaluating treatment plan options (radiation, surgery, and hormone therapy) and quality of life issues associated with treatments; Participating in the RTIRE trial for treatment; Understanding different medical reports and tests for prostate cancer; Getting a third opinion to decide between surgery and radiation while seeking the best quality of life outcomes; Life after treatment and having the right mindset; Choosing a treatment option when other chronic conditions/diseases exist; What makes focal treatment a good option.
Chat Log
Jim Stewart Reno, NV sent: 6:25 PM
have to pick up grandkids so signing off….see you all next time!!
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Gleason 10 de novo going strong 9 years later; sons need baseline PSAs starting at age 35 (bn)
Topics Discussed
De novo Gleason 10 got up-front triplet therapy — and his PSA is still low 9 years later; make sure your mutations are right for Pluvicto; Gemtesa helped him manage a full bladder for radiation; cellulitis isn’t uncommon in radiation therapy, bleach baths may help; the many steps of Mark Finn’s journey to hospice — when is it time to throw in the towel?; SBRT has replaced brachytherapy for many radoncs; there’s not just one kind of rectal spacer for radiation — there are three; important to get the right team, focused on genitourinary care, for radiation; “exercise enthusiastically — kills hot flashes — my personal experience”; PSA undetectable — why all these scans?; thumbs down on Walter Reed for prostatectomies; if you have kids, have them get a baseline PSA at age 35; a son’s PSA of 2.7 at age 39 is “definitely not normal” and an MRI is in the works; entrolled in a trial targeting SPOP mutation — side effects aren’t bad, but also no PSA improvement.
AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborateevery 4th Wednesday of the month for Solo Arts Heal.
We were so happy to welcome AnCan’s own, Dan Dressen!
Dan is a moderator for our Active Surveillance Prostate Cancer support group, and also a talented musician from Southern Idaho, with a passion for Americana music. With roots in Minnesota and a stint in both Southern and Northern California, Dan has honed his skills on the guitar since the age 14.
In 1975, while at the University of Minnesota, he filled in as student coordinator at the Whole Coffeehouse. The Whole, as it was know, brought in music that attracted audiences locally, regionally and nationally and he still follows the music and musicians from that time period.
Now today and for over a decade, he has been entertaining at open mic nights, sharing his unique blend of country-inspired tunes with audiences in various venues on West Coast. Married to his wife Lila for 35 years, Dan is joined by their two feline friends Willow and Webster. Drawing inspiration from songwriters such as Guy Clark, Tom Russell, John Prine, and Robin & Linda Williams, Dan brings his own distinct voice to the Americana genre.
You’ll hear warm songs, fantastic stories, and great conversation. Dan has learned the importance of being “active” when taking charge of one’s health journey, and will also share the importance of being your own best advocate. (an AnCan favorite!)
Hi-Risk/Recurrent/Advanced PCa Video Chat, July 9, 2024
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Note: Adderall conquers his ADT fatigue — what’s the downside? (bn)
Topics Discussed
Adderall is rescuing him from ADT fatigue — but easy does it; a friend insists his darolutamide led to sepsis; shortening IMRT with SBRT — and which goes first?; topping off the bladder for radiation — a clamp (Lundberg or Wiesner) can prevent accidents; spacer gel for rectal protection in radiation — doctor skill seems to matter; his doc is talking about BAT, but chemo seems a better first option; acute fevers have come and gone since April 2021 — finally, antibiotics and a possible explanation; starts ADT and finds he can finally sleep through the night; solifenacin (new to us) to reduce nighttime bathroom trips; his PSA isn’t responding to ADT — a consult with Dr. E might be wise; we prefer other genomic tests to Guardant; if you’re on a lutamide, watch out for supplements that interact with CYP3A4; he’ll keep the holiday in his drug holiday and put off PSA testing till he’s back; be aware of costs in a clinical trial.l
Chat Log
(Once again, GoTo did not capture the entire log — our apologies)
AnCan – rick · 6:45 PM
We’ve been talking BAT here for many years. Here’s a webinar with Sam Denmeade from 2017 https://ancan.org/bipolar-androgen-therapy-bat-sam-denmeade-md/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELOME all to our FIRST recorded Low/Intermediate Prostate Cancer Group. It proved to be an excellent and lively session with about half our time devoted to radiation therapy and half to radical prostatectomy/ surgery. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: With seminal vesicles positive for cancer in post-surgical pathology, what’s next?(rd)
Topics Discussed
PROSTOX test determines longer term sensitivity to radiation; SBRT vs hypofractionation; Dr. Greco is the go-to RO in the DC are; what does your Rad Onc do for you between sessions?; MIRAGE RT trial to report soon – how effective is MRI Guidance?; does cancer in your SVI post-surgery require follow up treatment?; MSKCC nomograms help guide decisions; with 3+4, when to follow up post-RP; 3+4 man decides to treat with RT; can you get a consult out of state.
Chat Log
sent: 5:14 PM
Dr. Mark. I cannot talk now. My question is not important. I can ask it at our next meeting.
sent: 5:18 PM
Rick. Can you please provide the link to that study you’ve mentioned.
Highlights of the top prostate cancer papers from the recent ASCO annual conference were presented by AnCan moderators in a special 75-minute session preceding the 7/1/2024 High Risk / Recurrent / Advanced prostate cancer meeting. Moderators Rick Davis, John Antonucci, Len Sierra, and Ben Nathanson spoke, followed by a 30-minute audience Q&A.
Topics we covered:
* Sequence your tumor before Pluvicto
* More tough news if you’ve got the bad mutations…
* With a BRCA mutatoin, get that PARP-I quickly!
* Readily available solution to hot flashes if you’re on abi
* State-of-the-art personalized medicine and imaging
* Cushioning the blows of ADT
* A flop for metformin
* Who should get treatment holidays?
* Is alpha radiation the top dog?
* Pressing AR’s self-destruct
* An angle on neuroendocrine
* Predicting winners at immunotherapy
* Who’ll connect at BAT?
* Doublet faceoff: ADT+ chemo vs ADT+ARPI
* In triplet trials, who really needed chemo?
* Ranking PARP inhibitors for bone-marrow complications
Men Speaking Freely is on for July 4 – we’re talking parent-child relationships with Dr. John Happy July 4th to all
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Dr. Jeff advises you read your medical records carefully – he’s found mistakes and typos in his! (rd)
Topics Discussed
Solution to chafing from sweats; put a GU med onc in place before you finish up at Fort Belvoir; Promise germline test; advocating for yourself at KP; play anxiety card to get Casodex buffer; couple of Gents update us; read your medical records carefully; PSA creeps – possible post-RP recurrence – when to get PSMA PET?; testing PSA in Panama and US; how does PSMA change as disease advances; responding well to HT; good immune system can slow disease
Hi, Dr. John. I’m 66. Inova Oncology Genetic testing ~ 2018. No BRCA. No prostate cancer history immediately family (father, uncles, cousin). Mother breast cancer (survived 30 years) died of uterine cancer (BRCA, I think). After an ADT vacation three years – 2020 > 2023. Orgovyx February 2024 and scheduled to stop end of July 2024. (Received continuous ADT 2017-2018. Had intermittent ADT 2018 through 2019.) Thank you, Doctor.
John A
sent: 5:49 PM
Color includes PTEN.
Richard Fiske
sent: 5:56 PM
Long Term AnCan title: BSd
dan straub
sent: 6:02 PM
I just received my COLOR genetic test results… it does NOT analyze P10 or RB1
Editor’s Note: We know you’ve missed receiving email notifications about our blog posts. Now that we are up and running on the new system via mailchimp (the same system you receive our group reminders on), here are the posts may have missed. They are categorized for your connivence. Enjoy!
Hi-Risk/Recurrent/Advanced PCa Video Chat Recordings
Hi-Risk/Recurrent/Advanced PCa Video Chat, June 25, 2024
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: After a 10x PSA rise on Pluvicto, it’s time for new therapy — and a new genetic test (bn)
Topics Discussed
Poised to start ADT, de novo Floridian has two good choices for GU medonc; with PSA of 700 and a cancer “that’s really gotten out of hand,” he starts chemo but it sends him to the ICU; tenfold rise in PSA puts an end to his Pluvicto treatment — he needs a fresh genetic test before changing course; a go-ahead for spot therapy, so he’s headed to a free NYC hotel room; wheeze raises concern about his lung mets, but multiple tests find nothing; switching from treadmill to recumbent bike, max heart rate sags; back pain woes on Provenge; recurrence after prostatectomy but PSMA PET is giving no guidance; don’t pick a hospital, pick a doctor — and we like Dr. E; medoncs won’t talk with him because he’s not metastatic, so choose a great radonc for now.
Chat Log
Unknown · 6:16 PM
Promise study …. https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Paul Freda Lake Worth FL · 6:29 PM
Genutourinary Medical Oncologist, Abraham Schwartzberg, Jupiter and Palm Beach Florida. I can highly recommend as I have been with him for 9 years.
Dr. Jeff · 7:06 PM
Six-transmembrane epithelial antigen of prostate 1= STEAP1
Julian – Houston · 7:07 PM
STEAP: A prostate-specific cell-surface antigen highly expressed in human prostate tumors, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC24469/
Joel Blanchette, Reston, VA · 7:19 PM
Hope Lodge
Joel Blanchette, Reston, VA · 7:20 PM
Hope lodge is in 30 cities
Geoffrey Nourse – Denver · 7:42 PM
So doctors I am meeting with over the next 3 weeks to discuss my T4N1M1 diagnosed 6/5/24.
Dr. Corbin Eule – Anschutz (Denver) 6/27
Dr. Michael Serzan – Dana Farber (Boston) 7/15
Dr. Karen Autio – MSK (NYC) 7/16
Working to get in to Dr. Eugene Kwon – Mayo (Rochester)
On Orgovyx (4 days in) and will be starting Nebeqa and xgeva (osteo).
PSA 21 –> 35 in last 30 days
Baselined all blood work – normal except PSA (35)
Genetic tests in progress.
Anyone work with these doctors and have any opinions of them?
Joel Blanchette, Reston, VA · 7:51 PM
Posluma
Frank Fabish · 8:02 PM
Thanks guys. See you Monday.
Steve Roux, MI · 8:08 PM
Thanks guys. Great Meeting! See you next time!
Unknown · 8:11 PM
Retig not taking patients w my profile rising psa post rep
We are so excited to announce our Renal Medullary Carcinoma Support Group partners are on an esteemed panel for World Sickle Cell Day representing RMC! This events features Ritchie Johnson of Chris ‘CJ’ Johnson Foundation (US) and Nicola Casey of The Ricky Casey Trust (UK) and several other international perspectives on Sickle Cell Trait/Disease. Every time SCT and RMC are discussed together, progress is made in our community. We are so glad these incredible ladies are talking about it! We encourage you to attend this event and learn more.
