Kenny Capps is a pretty remarkable individual … a runner his whole life, he was diagnosed with Multiple Myeloma in 2015. Only in his mid-40’s, Kenny was much concerned about Quality of Life during treatment. much like AnCan’s Founder, Rick Davis, Kenny returned to endurance exercise soon after the bone marrow transplants. In 2018, he ran the 1125 miles N. Carolina Mountain to Sea Trail in 54 days.
Kenny has now partnered with AnCan to establish our Blood Cancer Virtual Support Group with his non-profit, Throwing Bones. Throwing Bones is dedicated to improving quaity of life for people living with blood cancers through sponsoring healthy and active lifestyles. It recently launched an educational webinar series on Exrecise & Cancer, that you can hear at https://throwing-bones.org/cancer-active-education/ .
Just a few days later, Kenny recorded an intereview with Eshter Schorr, Patient Power Co-founder. While that has not yet been published, it is coming soon on http://www.patientpower.info/ I, for one, can’t wait!
Trevor Maxwell is a remarkable man. A young colorectal cancer survivor, he and Joe Bullock, another colorectal cancer survior, have formed Man Up To Cancer. This is a safe and suportive space for male surviors to speak about their condition.
Trevor comes to AnCan via our good friend at Inspire, John Novack, and also through our prostate cancer participant, Russ Smith who is active in Man Up To Cancer. Trevor’s recent video essay on situation is touching and piercing at the same time. Here is what he writes:
6.24.20
“When the storm of cancer hits, you need protection. Something to shield and strengthen you. My shield is an oak tree.”
This short film on YouTube (4 min) was produced and edited by my talented friend, Roger McCord. With stunning footage taken from ground level and from high above the coastline, the film captures the heartache and hope of my cancer journey.
The TALK is a series of webinars addessing how parents and kids of every age speak to each other about their health conditions. If you haven’t noticed, this is a topic that rarely get aired in public – AnCan hopes to address that over the next several months.
We started last Tuesday, June 30 with a discussion around prostate cancer, moderated by genitourinary medical oncologist extraordinaire, Dr. Alicia Morgans speaking with panel members that included pairs of father and child from ages 17 to 43. We also welcomed Dr. Ryan Berglund, a urologist at Clevaland Clinic and spokesperson for MENtion It, a men’s health awareness campaign sponsored by his institution. Dr. Berglund had excellent slides and a 2 minute video that we were unable to view due to a SNAFU by our co-presenters, UsTOO. But the magic of modern technology allows us to provide them to you here …. click here – the video is embedded in the 5th of 6 slides. And to watch the whole, outstanding presentation, click on the video above
Editor’s Pick: Long discussion on the impact of sugar, glucose and cancer
Topics Discussed
Sugar, glucose, insulin and PCa; what next after 2nd line anti-androgens fail?; is there a right # of chemo cycles?; taxane based chemo; diabetics and hormone therapy; Gleason 8 with ultra-low PSA; darolutamide; spot radiation; what’s an ‘oncologist’?; should have had a V-8???; IGRT; Truliicity; moving on from your urologist; blood transfusions; more on selecting the next treatment
AnCan is a huge proponent of inclkuding palliative care in your treatment plan and medical team!!
Palliative care is NOT about hospice or end-of-life ….. that is just a sub-set of palliative medicine. At AnCan we prefer to call it Symptom Management, the lingo used by UCSF. That is no coincidence as AnCan has an excellent longstanding relationship with the UCSF service. Dr. B.J. Miller is on our Advisory Board, and Dr.Mike Rabow, the Director of Symptom Management Service at UCSF, is a friend of the family too.
Last Friday, Dr. Rabow gave an excellent webinar on CureTalks titled Redefining Palliative Care – you can listen here. For those living with advanced cancer, auditing this webinar is a MUST in our view!
Some of you may already be aware of Janssen/J&J’s annual patient advocate conference, HealtheVoices, that is usually by invitation only based on a competitive application process. This year’s pandemic has sent the Conference virtual, and it is open to ALL! The conference covers the spectrum of conditions from mental to physical, and from cancer to rare diseases.
#HealtheVoicesLIVE 2020 is this Saturday, April 25 starting from 11 am – 8.30 pmEastern. You can find the full agenda and link to join HERE. Feel free to pop in and out during the day and tune in to presentations and events of interest to each of you.There are presentations, interviews and even small group breakouts allowing you to interact with leading national advocates for differing conditions.
Please note the links to join change for the morning and afternoon sessions:
To join the broadcast between 11 a.m. and 3:30 p.m. ET,click this link.
To join the broadcast between 3:30 p.m. and 8:30 p.m. ET,click this link.
For the best experience, join the meeting via Google Chrome
I will be presenting in the 3rd Hour; the session starts at 1.30 pm Eastern and I am due up first as part of 4 flash sessions followed by a Q&A. I will be offering tips on virtual moderation – a skill many patient advocates have had to quickly familiarize themselves with in the past few weeks. But as you all know, we’ve been at this game for many years!!
Please join me and HeV, enjoy the conference, learn a little, and above all – stay safe, well and have fun!
