On June 29th, we hosted an exceptionally relevant webinar titled “Is Active Surveillance Safe for Black Men?”. Dr. Willie Underwood (Board Certified Urologist, Executive Director of Buffalo Center for Health Equity, and American Medical Association Board of Trustees member) and Anthony Henry (First Vice President of The Walnut Foundation) joined us for this important conversation.
Dr. Brandon Mahal was scheduled to join us, however he is actively volunteering at the Miami collapse area. Thank you Dr. Mahal for helping, and we hope to see you soon!
We want to sincerely thank Dr. Underwood and Anthony for answering questions, and providing their perspectives.
Watch this fascinating presentation here:
Special thanks to Myovant Sciences – Pfizer, Foundation Medicine, and Advanced Accelerator Applications for sponsoring this webinar.
On June 2nd, Dr. Michael Schweizer (Assistant Professor, Division of Medical Oncology University of Washington School of Medicine) spoke at our Active Surveillance Virtual Support Group with a presentation titled “Meds: A potential new path to keep men on AS?”
As a medical oncologist of the Fred Hutch Cancer Center in Seattle, he usually sees no patients on active surveillance for low- to favorable intermediate-risk prostate cancer. But this changed when he conducted a study of how apalutamide, a drug used in men with more advanced cancer, on men on AS.
Dr. Schweizer said: “My goal is to help reduce the morbidity and mortality associated with diseases like prostate cancer through developing novel drug therapies.” He plans to study the impact of other meds on men on AS to offer a new way of managing AS.
We want to thank Dr. Schweizer for answering questions!
Watch here:
To view the slides from this presentation, click here.
For information on our peer-led video chat ACTIVE SURVEILLANCE PROSTATE CANCER VIRTUAL SUPPORT GROUP, click here.
To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.
Hi-Risk/Recurrent/Advanced PCa Video Support – Men & Caregivers Recording, June 14, 2021
Editor’s Pick What are the options when 27 cycles of chemo to treat recurrent disease gets tough to handle? (rd)
Topics Discussed
Initial treatment options for locally advanced Dx; what next after 27x chemo sessions w. PSA of 900; is ATM mutation suited to olaparib?; continuing cyclophosphamide; plan beyond the next Tx; Lupron + abiraterone + prednisone; rechallenging abi on edema after after break; Embr wrist gizmo may help with hot flashes; RO does not understand ‘pelvic girdle’RT; treating the primary tumor; what’s considered SBRT?
Chat Log
Jake Hannam (to Everyone): 3:30 PM: Axumin
Pat Martin (to Everyone): 3:31 PM: Much more available as the half-life is far longer than the Gallium isotope.
AnCan – rick (to Everyone): 3:32 PM: herb@ancan.org
Jake Hannam (to Organizer(s) Only): 3:40 PM: olaparib for atm?
Jim Marshall – Alexandria, VA (to Everyone): 3:49 PM: Love to know about ATM too, for I have a bad ATM gene. Jim Marshall
David Muslin (to Everyone): 4:35 PM: Margaret, Director of Customer Experience, Embrlabs.com Embr Labs Support email addressee support@embrlabs.com
James Barnes (to Everyone): 4:42 PM: HI David I am doing well thanks. Certainly dealing with the hot flashes asd well. My remedy is placing something cold on my wrists and inside the elbow and then my forehead which seems to make the flashes pass quickly.
AnCan – rick (to Everyone): 4:42 PM: https://www.prostatecancer.news/2021/05/new-guidelines-for-salvage-radiation.html https://www.prostatecancer.news/2018/10/whole-pelvic-salvage-radiation-short.html
Joel Blanchette – Reston, VA (to Everyone): 4:44 PM: The pelvic girdle is a ring-like bony structure, located in the lower part of the trunk. It connects the axial skeleton to the lower limbs. In this article, we shall look at the anatomy of the pelvic girdle – its bony landmarks, functions, and its clinical relevance.
Pat Martin (to Everyone): 4:46 PM: I asked my RO for an idea of where he was rdiating…he brought me into his office and showed me the graph of my pelvic area and the shape of the radiation scope.
Julian Morales (to Everyone): 4:47 PM: good to know – I am getting ready to start my radiation.
David Muslin (to Everyone): 4:59 PM: Have great night guys. Thanks for sharing and caring as always
George (to Everyone): 5:00 PM: thank you all. very good for me.
COMPLETELY FREE, you’ll find fun activities (trivia, dance party, scavenger hunts, prizes), meet new friends, and hear from top experts about topics relevant to you. Fertility, dating, mental health, and so much more.
You’ll also see AnCan’s own Wendy Garvin Mayo at the Practical Resources for Caregivers session on Sunday, and Alexa Jett(me) will be out and about representing any and everything AnCan. Don’t forget to say hi!
Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, May 17, 2021
Editor’s Pick: When the standard of care works and has not been tried, should the doc recommend an unproven trial? Also, is it true to say you’ll never come off ADT? (rd)
Topics Discussed
Standard of Care vs Trials; Actinium 225 vs Lu 177 PSMA trials …. personal experiences; are lung nodules really PCa?; Vets PSMA trial; what’s NGS?; shortness of breath and Xgeva; darolutamide/rosuvastatin interaction; using a heart rate monitor to exercise; ADT and metabolic syndrome/ lipid panel; enz/abi switch works; telling cancer pain from inflammation; enzalutamide holiday; is lifetime ADT really the case?; 1.7 PSA allows for Axumin scan; when to do Provenge; brachy+IMRT+HT; neuropathy remedies; RT for recurrence
Chat Log
Paul Freda (Private): 5:30 PM:
Rick How long after beginning a drug like Xtandi should one wait to do a blood test to see if it is working ?
rick – ancan (to Paul Freda): 5:32 PM: 30 days
Paul Freda (Private): 5:32 PM: OK thanks
rick – ancan (to Everyone): 5:51 PM: Homogeneity of Mx PCa …. https://www.fredhutch.org/en/news/center-news/2016/02/metastatic-prostate-cancer-and-precision-oncology.html
rick – ancan (to Everyone): 5:51 PM: http://www.eurekalert.org/pub_releases/2016-02/fhcr-poc022516.php
rick – ancan (to Everyone): 5:57 PM: joeg@ancan.org
Bruce Bocian (to Everyone): 5:58 PM: My son is a Major in the Corps!
sylvester mann (to Everyone): 6:05 PM: Thanks to everyone but I must leave. Best regards.
Joel Blanchette – Reston, VA (to Everyone): 6:06 PM: Contact: Alex Alas 310-478-3711 ext 41399 Alexander.Alas@va.gov West LA VA Hospital Contact.
rick – ancan (to Everyone): 6:06 PM: Tx Joel!
Bruce Bocian (to Everyone): 6:11 PM: My bike is in a cycle-ops, works b
rick – ancan (to Everyone): 7:03 PM: gabapentin/Neurontin
rick – ancan (to Everyone): 7:04 PM: Lyrica/pregabalin
