Hi-Risk/Recurrent/Advanced PrCa Video Chat, Dec 1, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: How do you pick a doctor for a second opinion?
Topics Discussed
bladder control during salvage RT sessions; surgery vs RT for Gent with IDC-P; who to trust for a 2n opinion; gratitude for AnCan’s support; embarking on chemo on ice – report after 1st round;… abd finishing chemo – what next?: recurrence after salvage RT 7 yrs calls for PSMA – but KP is slow on the uptake; T level falls in hours after starrting Orgovyx… really??
Chat
AnCan – rick
sent: 6:03 PM
877 582 7011
AnCan – rick
sent: 6:05 PM
Number for GoTo technical support
Bob Y — Los Angeles
sent: 6:21 PM
Gerry, How did you decide on surgery as the first line of treatment?
Jeff Marchi – San Francisco
sent: 6:27 PM
wiesner clamp
AnCan–John A
sent: 6:40 PM
MSKCC nomogram
AnCan – rick
sent: 6:40 PM
http://nomograms.mskcc.org/Prostate/index.aspx
Gerry & Cynthia
sent: 6:41 PM
thank you
AnCan–John A
sent: 6:44 PM
I see PSA, gleason, age, NCCN risk, and tumor stage on the arterra report
AnCan–John A
sent: 6:45 PM
and the bx slides of course
AnCan – rick
sent: 6:51 PM
Partin tables
Mark N
sent: 6:52 PM
Labcorp test 481220
TonyFig
sent: 6:53 PM
here is another similar labcorp test https://www.labcorp.com/tests/483555/vistaseq-prostate-panel
AnCan–John A
sent: 6:56 PM
If your focus is on inherited genetic risk factors, the Color gene test is likely more complete. If you are seeking tumor-specific genetic profiling or somatic mutations relevant to prostate cancer management, Labcorp #481220 might be more comprehensive.
Jeff Marchi – San Francisco
sent: 6:57 PM
Check out how running may stop prostate cancer from getting worse https://pmc.ncbi.nlm.nih.gov/articles/PMC12535562/
AnCan–John A
sent: 6:57 PM
All I can find so far on #483555 is it’s specially for prostate cancer
Eric James; Tyler TX
sent: 7:05 PM
has anyone had trouble with their camera working on Go To Meeting? Sometimes my camera works on these meetings and sometimes it doesn’t.
Jeff Marchi – San Francisco
sent: 7:06 PM
5 years, 4 different camers on PC, IPADs and iphone
Jeff Marchi – San Francisco
sent: 7:06 PM
never a problem
Jeff Marchi – San Francisco
sent: 7:06 PM
are you on a PC?
Eric James; Tyler TX
sent: 7:06 PM
yes
Jim Marshall, Veteran, Alexandria, VA
sent: 7:07 PM
When I cheaped out on buying Internet bandwidth. Jim
Jeff Marchi – San Francisco
sent: 7:07 PM
if camera doesn’t work go to gear at top right and check camera settings. is the right one selected
Eric James; Tyler TX
sent: 7:08 PM
I only have one camera. In the PC.
Eric James; Tyler TX
sent: 7:08 PM
I suppose I could try adding a new external camera
Gary Martin
sent: 7:08 PM
My PC camera did not work tonight for first time (after WIndows 11 update). Had to switch to external camera.
Jeff Marchi – San Francisco
sent: 7:08 PM
some windows 10 cameras don’t work with win 11
Mark N
sent: 7:09 PM
I had to restart my laptop to get it connect to my mic tonight
Eric James; Tyler TX
sent: 7:09 PM
I
Jeff Marchi – San Francisco
sent: 7:09 PM
restarting is a real fix many times
Jim Marshall, Veteran, Alexandria, VA
sent: 7:09 PM
When I do GOTO I make sure no other apps are running. Many folks leave a whole bunch of apps open which takes memory. Jim
Eric James; Tyler TX
sent: 7:09 PM
I’ve restarted, tried in Chrome and Outlook.
Jeff Marchi – San Francisco
sent: 7:10 PM
did the camera work with zoom or other app
Jim Marshall, Veteran, Alexandria, VA
sent: 7:10 PM
Are you using the Browser Interface for Chrome. Jim
Eric James; Tyler TX
sent: 7:11 PM
It has always worked in the past with zoom
Eric James; Tyler TX
sent: 7:11 PM
I’ve opened in Chrome and Outlook. I don’t know what an interface is.
Jeff Marchi – San Francisco
sent: 7:11 PM
ask goto support 877 582 7011
Jeff Marchi – San Francisco
sent: 7:12 PM
you mean edge not outlook
Eric James; Tyler TX
sent: 7:12 PM
yes
Eric James; Tyler TX
sent: 7:13 PM
I’ll try calling go to support and possibly try an external camera
Larry Schuller
sent: 7:13 PM
Interface: where two systems or programs talk to each other/exchange signals
Eric James; Tyler TX
sent: 7:13 PM
thanks
Jeff Marchi – San Francisco
sent: 7:13 PM
electrolytes give more energy
Larry Schuller
sent: 7:14 PM
Exercise begets Energy…Putit on your car’s sunvisor. Put it on your refrigerator. Put it on your mirror
Jeff Marchi – San Francisco
sent: 7:15 PM
Check out how running may stop prostate cancer from getting worse https://pmc.ncbi.nlm.nih.gov/articles/PMC12535562/
Jeff Marchi – San Francisco
sent: 7:17 PM
i could not run a mile on the track until I started taking electrolytes that enabled me to build up my stamina so I didn’t need it any longer
Jeff Marchi – San Francisco
sent: 7:18 PM
i run a mile twice every day
Jim Stewart Reno, NV
sent: 7:24 PM
have to sign off. grandkid duty…good night all!!!
Hank Zajic Springfield VA
sent: 7:24 PM
Thank you all for tonight’s session. I have to drop off.
RJ Smith (Seattle)
sent: 7:25 PM
Thanks all for the great words of encouragement! I’ll give myself a few breaks and still try to push through as far as is reasonable (without going too far).
Mark N
sent: 7:28 PM
Signing off, thanks !!
Larry Schuller
sent: 7:28 PM
Wait for it to come back? Or get ahead of what you think MIGHT happen? Hard choice.
Len
sent: 7:43 PM
Gary Martin and Mods – the PEACE-1 trial has a group of patients receiving RT added to the systemic triple therapy (ADT + Docetaxel + Abiraterone). The full results regarding the role of RT in this specific quadruplet combination are “highly anticipated.”
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 17, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Assessing recurrence and IDC-P repeat this week.
Topics Discussed
Signs of recurrence after 8 years; lymphedema and RT; does Newbie understand his proposed RT – is it optimal?; signs of BRCA2 recurrence post RP; doublet or triplet for denovo Mx Gent with IDC-P; explaining types of HT treatment; likely PSMA negative Gent challenged to confirm recurrence; PSA spike & fall for IHT man; fatigue after ARSI is added; estradiol supplement experience; pushing exercise helps mitigate HT; IDC-P teatment challenge – RP vs RT; bisphosphonate vs denosumab as bone strengthener
Chat
Larry (Alaska)
sent: 6:17 PM
Was there a decipher test? indicating aggressiveness?
Larry (Alaska)
sent: 6:24 PM
I wonder how old those NIH studies Barbara and Joe are reading?
while that email may work I got a different address
Jeff Marchi – San Francisco
sent: 6:53 PM
Send an email to Ming.zhou@mountsinai.org to inquire about a second opinion and ask for his specific instructions for the process.
Jim Stewart Reno, NV
sent: 7:07 PM
have to sign off, thanks all and have a good night
Jon McPhee Toronto
sent: 7:33 PM
Have to go. Thanks for the meeting.
Larry (Alaska)
sent: 7:37 PM
AI just told me that 1- micro-ultrasound does not require a contrast dye and uses equipment that is more accessible than MRI. 2- Other than that, they seem to be seen as complementary rather than competing. MRI is better at detecting some lesions and micro-ultrasound better at others.
Stan Friedman
sent: 7:48 PM
Sorry. Need to sign off. Will update on my pluvicto treatments next week. Thanks.
Jim Marshall, Veteran, Alexandria, VA
sent: 7:53 PM
Chocolate is a veggie!!!!!! Jim
TonyFig
sent: 7:53 PM
Rick will get a 3 knot boost when rowing with caffeine
St
sent: 7:56 PM
my experience has been that the fatigue comes mainly from lack of estrogen, not from the lack of T. An E2 patch helped me enormously
Bob Y. Los Angeles
sent: 7:57 PM
I had a couple of short questions, but I have to leave now. I’ve had an MRI and a biopsy, Gleason 4+5. I’m waiting to get a PET Scan on Dec 5th. I was hoping to get the PET earlier and so I made an appt with a urologic oncologist, Timothy Daskivich for a 2nd opinion on Nov 26th. Now I’ll be going to see him without being able to show him the PET results. I’m wondering if that appt is still valuable.
Barbara and Joe
sent: 7:59 PM
why do you have to take something as toxic as prednisone with abiraterone?
Don Rogers
sent: 8:00 PM
got to go
Eric James; Tyler TX
sent: 8:00 PM
Barbara and Joe: side effects of abiraterone. Your body stops producing cortisol on abiraterone so it needs to be replaced with something similar.
AnCan–John A
sent: 8:00 PM
Barbara and Joe the body absolutely needs the corticosteroid.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:01 PM
Abi stops the Adrenal Glands which makes Cortisol. Presidnsone makes the Cortisol.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:02 PM
One needs Cortisol. Jim Marshall
AnCan – rick
sent: 8:10 PM
Estradiol seminar w. Steve S https://ancan.org/talking-estradiol-e2-for-recurrent-and-advanced-prostate-cancer/
Keith H. (southern Oregon)
sent: 8:15 PM
thanks for all this, I got to go, but grateful for expertise and this group.
Thomas Matica
sent: 8:21 PM
Short update. Can wait till next meeting. Got to run. Thanks everyone.
Barbara and Joe
sent: 8:23 PM
I hope it’s a low dose of predisone — it just about killed my mother with her rheumatoid arthritis.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:23 PM
5mg of Prednisone is used. Jim M
Jim Marshall, Veteran, Alexandria, VA
sent: 8:24 PM
Although once you stop it one still should taper off versus Cold Turkey. Jim
Steve White
sent: 8:28 PM
Have to drop…thanks again
Alfredo in Houston, TX
sent: 8:35 PM
I must drop off now, thank you everyone; stay well.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 15, 2025
UPCOMING PRESENTATION…Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern! “Interpreting Prostate Needle Biopsies in Today’s World” He’ll discuss Bx from early AS to advanced Pr Ca inc. AI – with plenty of time for Q&A. Register at https://ow.ly/PpoX50WVsJ4
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14. Sign up at https://ancan.org/contact-us/
Hear John Maxwell on Solo Arts Heal https://youtu.be/UQuMUm6HHqU and buy Hammering Nails for AnCan’s fundraiser https://www.amazon.com/Hammering-Nails-Poems-strange-topics/dp/B0BNJHYVG3?mc_cid=8e4adc6969&mc_eid=838454d636
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine. Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Whether old or young, consider carefully before opting for surgery with hi-risk disease (rd)
Topics Discussed
Older gent who did surgery now faces MDT, salvage RT and HT; contrast an under 50 gent who did surgery and lso needs salvage RT; and another 4+5 younger man debating RP; chemo resulted in pleural effusion damage; hearing loss and abi??; Novartis re-ups with 12 mos addtional Pluvicto; PSMA shows slight increase in tumor size and L3 met for our Mod; something else cud be going on beyond the prostate cancer
Hi-Risk/Recurrent/Advanced PCa Video Chat, May 19, 2025
It’s GreatNonProfits time of year for AnCan participants! Each year we need 10 new endorsements to retain our GreatNonProfits Seal, so if you’re relatively new &/or have not endorsed us previously, now’s the time. Just click https://greatnonprofits.org/org/ancan-foundation and tell the short version of why you love AnCan Foundation…. THANK YOU!
President Biden’s Diagnosis
Exceptionally, the Moderators dedicated a few minutes at the beginning of the session to discuss Joe Biden’s denovometastatic hormone sensitive prostate cancer diagnosis disclosed late last week. AnCan recognizes that most of our particpants directly relate. Start around the 20 minute mark if you prefer to skip Rick Davis’ statement and reactions to President Biden’s diagnosis from those present.
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix, Blue Earth Diagnostic and Foundation Medicine.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: President Biden’s diagnosis; and, ctDNA testing (rd)
Topics Discussed
President Biden’s mHSPC Dx; younger T3b Newbie faces treatment decision; is ctDNA testing available to patients?; 3rd Pluvicto treatemtn brings heavy side effects; what to expect 2 months after starting a drug holiday; Orgovyx appeal continues; Gent with seizure/cardio issuestakes drug holiday and needs a cardio-oncologist; lowPSAl, pre-chemo Gent starts Pluvicto; should Gent with adrenal insufficiency add 5 mg prednisone?
Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 5, 2024
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editors Pick: Crazy increases in PSA suggests therapy is not working; Dr. Bob GRHS (rd)
Topics Discussed
Dr. Bob GRHS’; low level mCRPC – what next?; fermented foods; starting olaparib with somatic BRCA2; chemo holiday for our foamy gland man; long resistant gent starts mono or double HT in the Fall; Vit D and Metformin discussion; heart is solid – PSMA to follow; erratic, fluctuating PSA suggests Tx not working – needs 2nd opinion; Decipher not useful for this situation; stopped abi and prednisone on his schedule + psych issues; 2 gents start start HT for 1st time; Intermittent HT discussion; restarting mono LHRH.
HAHA. Yes. That’s exactly what I was thinking. But yes. The older crowd. I really want to make the under 60 zoom Thursday but I’ll be playing taxi cab during that time. Sigh.
CALCIUM SCORE PRESENCE of CAD (coronary artery disease) O No sign of CAD 1-10 Minimal signs of CAD 11-100 Mild signs of CAD 101-400 Moderate signs of CAD 401+ Extensive signs of CAD
Frank Fabish Columbus OH
sent: 8:33 PM
Thanks for listening guys. Got to run. thanks for the dialogue.
Michael McCabe
sent: 8:42 PM
Got to go guys, see everyone at next meeting
Steve Roux, MI
sent: 8:43 PM
GREAT Meeting guys – I need to take my rescue puppy out for a walk. Goodnight all!
THOMAS M
sent: 8:52 PM
I have used the “Cancer Care” booklet from the FLCCC Alliance, Dr. Paul Marik, MD. The discussion about vitamin D brought this to mind. It suggests repurposed uses of various supplements and pharmaceuticals for cancer treatment. Its worth a glance.
Gary P
sent: 8:55 PM
https://betterdayscounselingllc.com/
John A
sent: 9:10 PM
gotta stop now guys see you next week
Matt M
sent: 9:12 PM
gotta go boys, have a great week! I’ll be on some next onens…..
THOMAS M
sent: 9:22 PM
Time to scoot. Thanks all.
Dr. Jeff
sent: 9:39 PM
gotta sign off. Past my bedtime. see everyone next week
