Webinar: How and Why Prostate Cancer Genomic Tests Work

Webinar: How and Why Prostate Cancer Genomic Tests Work

How bad is my prostate cancer??? We’ve all asked ourselves that! Today there are tests to predict its gravity early in the diagnosis and after surgery.

How do these tests work?
… what’s inside the ‘black box’ that makes it an accurate crystal ball?
… and are all tests born equal?
… the test manufacturers won’t say BUT one doc who will is Dr. Todd Morgan – he’s looked inside all of them.

Dr. Morgan is Chief Urologist at the University of Michigan and leads the MUSIC* program.

He will discuss:

the difference between inherited and somatic testing
who should undergo genomic testing
how tests are able to predict
his upcoming randomized trial comparing the leading genomic tests, Decipher, Prolaris, and Oncotype DX
… and more including your questions

* Michigan Urological Surgery and Improvement Collaborative

Dr. Morgan has served on several national guideline committees, including the American Urological Association’s Advanced Prostate Cancer Guidelines, the National Comprehensive Cancer Network’s Prostate Cancer Early Detection Guidelines, the American Society for Clinical Oncology’s Localized Prostate Cancer Guidelines, and the ASCO Molecular Markers for Prostate Cancer Guidelines.

Watch here:

 

Special thanks to Bayer, Pfizer, Myovant Sciences, Foundation Medicine, Myriad Genetics, Janssen – Johnson & Johnson, Telix, and Blue Earth Diagnostics for sponsoring this webinar.

 

For information on our peer-led video chat PROSTATE CANCER VIRTUAL SUPPORT GROUPS, click here.

To SIGN UP for any of our Virtual Support groups, visit our Contact Us page.

Solo Arts Heal with Suzie Campbell

Solo Arts Heal with Suzie Campbell

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

I had the absolute pleasure of filling in for Rick, and interviewing July’s gust Suzie Campbell!

Suzie is a single mom living in Evanston, IL with her two children and a cat named Magic. A Loyola University Chicago alum with a degree in Sociology and Women’s Studies, she now works as an IT manager for a non-profit company. She started telling stories about her life after her hysterectomy at 35 years old and has been seen at storytelling shows such as Story Colliders, Is this a thing? and Filet of Solo. Suzie shares stories that often show that reproductive journeys are not always linear, sexuality is not always straightforward, and that seeking support for mental health treatment – especially in relation to motherhood – isn’t something shameful. She believes if more people talk about these ideas openly, the stigma around them will decrease over time.

Suzie performed “Get F***ed,” a story about sexuality, dating, and her hysterectomy as a newly single mom in her mid-30s.

Watch here:

 

Solo Arts Heal with Dan Baron

Solo Arts Heal with Dan Baron

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

We are back with Solo Arts Heal, after a month off. Welcome June’s guest, Dan Baron!

Dan has been writing about social issues that impact people in underserved communities for more than 30 years. He writes content, grant proposals, and strategic communication plans for nonprofits, universities, and public agencies. He has also worked as a journalist. His work has mostly been about listening to the stories people tell about their lives as they advocate for better schools, safer communities, jobs, health care, and many other issues—including their basic human right to just be who they are. 

Wait a minute… or more… Dan also realized long ago that he has many personal stories to tell, just like everyone else on the planet. He tells his life-changing story about being a 21-year-old college student overseas who suddenly has a manic episode. Dan is part of a growing community where people share stories that aim to be poignant, funny, bizarre, challenging, and real. 

Dan shared his totally unexpected, way-up, way-down, bipolar experience as a college student in the 1980s—and how he has navigated his mental health journey since.

 

Watch here:

 

DMV AnCan’rs Break Bread!

DMV AnCan’rs Break Bread!

DMV AnCan’rs Break Bread!

You’ve heard me say it before and it never gets old… nothing gives me more pleasure than AnCan participants getting together outside our groups to meet and greet.

When a new participant in our High Risk/Recurrent/Advanced Prostate Cancer Group revealed recently he was from N. Virginia, not only was he well received by fellow locals but the cry went up for all to meet for lunch before too long. Capt. Jim Marshall led the charge by arranging a lunch in Alexandria at the end of June. I’ll let him tell you more ….

On Friday, June 30th, the DMV (District of Columbia/ Maryland/ Virginia) Brotherhood of AnCan’s High Risk/ Recurrent/ Advanced Prostate Cancer Virtual Group got together for a luncheon here in Alexandria, VA. We met at the Historic “Table Talk” Diner founded in 1976 that has changed little even in the age of rising property values and upscaling everything. On the first row of the photo L-R, is Joel Blanchette, Gary Peters and then standing L-R, myself Jim Marshall, George Rovder, Jimmy Greenfield, Cliff Collins and Richard Cramond.

It was a great opportunity to compare notes on our life situations and treatments but more important to get to know each other. It turns out I learned General Joel actually jumped out of airplanes in the younger days of his military career. Gary is a retired Federal Lawyer. George worked at the US State Dept. George’s husband is a Canadian and they are heading off camping over the 4th . Jimmy G, as we all know, is into music, can work up a real sweat (exercise) when his (new) band one gets going. In his younger days Jimmy was a full-time music teacher for kids and loved it – he still teaches young and old alike. Cliff was a Professor in the Air Force and regularly does 65-mile bike rides. Richard and I worked in close proximity in the 1970s in the forerunner of Space Force; satellites and things. As far as me, I can be found trimming a Peach Tree and also doing my daily 2-3-mile bike rides; consider I have a 15-year head start on Cliff.

We are looking forward to making this a recurring meeting during the year.

Jim Marshall

If any other AnCan’rs in any of our groups want to organize a ‘meet and greet’, please let us know and we’ll help with the contact information …. MSrs in Michigan???

Webinar: How and Why Prostate Cancer Genomic Tests Work

Webinar: PARP-Inhibitors and Prostate Cancer – Gotta Have a Mutation???

Parp-Inhibitors have long been on AnCan’s radar since our dear departed Boardie, Dr. Bill Burhans, found himself with olaparib in his lab in 2015 and convinced his tumor board to prescribe it along with abiraterone for his BRCA2 mutation.

Question is …

What’s a PARP-Inhibitor, and what does it do?

Who benefits from a PARP?

Do PARP-I’s work for everybody?

How can a PARP-I be used for prostate cancer?

AnCan brings you two experts to discuss. Dr. Pamela Munster of the UCSF BRCA Research Institute with her unique peer perspective, and Dr. Neal Shore who just released the TALAPRO-2 Study using a PARP with Xtandi.

 

Watch here:

 

 

Special thanks to Bayer, Pfizer, Myovant Sciences, Foundation Medicine, Myriad Genetics, Janssen – Johnson & Johnson, Telix, and Blue Earth Diagnostics for sponsoring this webinar.

 

 

For information on our peer-led video chat PROSTATE CANCER VIRTUAL SUPPORT GROUPS, click here.

To SIGN UP for any of our Virtual Support groups, visit our Contact Us page.

ICE  Checklist … in case you go cold!

ICE Checklist … in case you go cold!

ICE Checklist … in case you go cold!

Last month’s Under 60 Stage 3 & 4 Prostate Cancer meeting was small, intimate and produced a true gem from Down Under to benefit all AnCan’rs …

For the life of me, I forget what raised the topic … maybe a Death with Dignity discussion – but Aussie AnCan’r, Steve Cavill told us about the ICE “In Case of Emergency” Checklist Document that he and his wife Leonie, who occasionally attends our Care Partners Group, have both completed. Steve and Leonie reside in the suburbs of Melbourne and are currently heading towards mid-Winter.

This ICE Checklist takes much, if not all, the difficulty out of placing your key information in one place. Like your vital passwords to your laptop, phone or bank accounts; names of key individuals in your life and more. You know .. all that information making it possible for someone to piece your life together if you’re suddenly no longer with us.

Frankly it’s information we should all compile no matter how old. With this checklist guide at hand to march us through it, there can be few excuses. Just remember, this version of the ICE checklist was created in Oz, so it may not be fully applicable Stateside.  If one of our US volunteers has time to ‘Americanize’ it, I feel sure it will be greatly appreciated – we have very few solicitors in the US and a few too many attorneys!

Here’s the checklist document in Word format ICE Document Template  Now do your part …. and a BIG THANK YOU, Steve Cavill!!