Veterans Video Chat, January 20, 2026

Veterans Video Chat, January 20, 2026

Veterans Video Chat, January 20, 2026

Veterans Video Chat, January 20, 2026

AnCan is grateful to the following sponsors for making this recording possible: Johnson and Johnson, Bayer, Novartis, Myriad Genetics, Telix, Blue Earth Diagnostics, and Foundation Medicine.

If you missed any recent recordings, you’ll find the full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/. Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.

AnCan  cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.

All AnCan’s groups are free and drop-in … join us in person sometime!

Join our other free and drop in groups:

Editor’s Pick: Advocating for yourself is not easy, but it’s pays off! (bj)

Topics Discussed
Dealing with an inconclusive or open to interpretation letter of support from your doctor; benefit of submitting a fully developed claim; submitting a VA claim for a secondary condition; importance of putting in the work—advocating for yourself is not as easy as we make it sound; verify all the evidence you submitted for your claim was considered; TERA assessed on each claim; converting military retirement benefits to Combat Related Special Compensation (CRSC); updates on travel claims for medical appointments.

Chat

TonyFig sent a chat · 8:35 PM
what is an ACE exam?

Bob Schwartz U.S.N. Venice, FL. sent a chat · 8:37 PM
ACE=Acceptable Clinical Evidence. It is a records review only.

AnCan – Boykin sent a chat · 8:38 PM
https://www.va.gov/resources/va-claim-exam/

AnCan – Boykin sent a chat · 9:04 PM
@Mark – Well said!

Eric Baker – Lafayette, IN sent a chat · 9:04 PM
Have to go!  Thank you everyone, see you next time!!

AnCan – Boykin sent a chat · 9:04 PM
Have a good evening, Eric!

Luther cowden sent a chat · 9:11 PM
Good night gentlemen, have to go.

Bruce Schrimpf sent a chat · 9:18 PM
Nice seeing all of you again, keep up the good fight!

Bruce Schrimpf sent a chat · 9:26 PM
The designations for “Armed Conflict” sound very broad indeed.

AnCan – Boykin sent a chat · 9:26 PM
veterans@ancan.org

Bob Schwartz U.S.N. Venice, FL. sent a chat · 9:26 PM
Another good mtg., have to go, see everyone next week.

AnCan – Boykin sent a chat · 9:27 PM
Have a good night, Bob!

Bruce Schrimpf sent a chat · 9:30 PM
I know!  BDS

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/19/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/19/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/19/26

 

AnCan is closing out its Annual Fundraising Campaign. If you haven’t donated yet, consider the priceless value we bring . Please donate – especially if you watch our recordings and are not on our Mailchimp list. https://ancan.org/donate/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Johnson and Johnson, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: After 15 years, Prostate cancer recurs for one Gent; and the 2nd time, 13 years later, for another.

Topics Discussed 

Newbie needs to switch to a GU MO; PrCa metastasizes after 15 yrs; singlet to doublet during RT; Pluvicto failing after 10x sessions – STEAP1 xaluritamig (AMG509 ) next but heads up!; early signs of 2nd recurrence; Eligard vs Firmagon (agonist vs antagonist LHRH); first GU med onc appointment coming up; managing hot flashes; Oxybutynin again; doc can’t get approval right so switches drug; PSMA shows Nodes may not need RT; abiraterone dosing;

Chat
  • Rick Davis sent: 6:10 PM

    PLEASE – no mention of the Championship Game tonight. Some peeps are recording it.

  • Rick Davis sent: 6:41 PM

  • Julian – Houston sent: 7:02 PM

    Need to leave – pass my bedtime. Catch you all next week!

  • Bob Schwartz U.S.N. Venice, FL. sent: 7:03 PM

    Another GOOD Mtg., have to go, see everyone next week.

  • Rick Davis sent: 7:26 PM

    Xaluritamig (AMG 509) is a novel bispecific T-cell engager (TCE) immunotherapy

  • Bob Y — Los Angeles sent: 7:27 PM

    Appreciate everyone. I, too, have to go. See you next week.

  • Len sent: 7:30 PM

    STEAP1 (Six-Transmembrane Epithelial Antigen of the Prostate 1) is detected in prostate cancer (PCa) primarily through tissue analysis (immunohistochemistry), showing overexpression in malignant cells, and via liquid biopsies (extracellular vesicles in plasma), using methods like nanoscale flow cytometry,

  • AnCan–John A sent: 7:31 PM

    thanks Len

  • Frank Ciambra sent: 7:32 PM

    thank you

  • Rick Davis sent: 7:32 PM

    Doubling time very unreliable at such low levels, Neil

  • dan-s sent: 7:40 PM

    I also have to scoot… thanks all.

  • Barbara and Joe sent: 7:54 PM

    are you saying lupron?

  • Jim Marshall, Veteran, Alexandria, VA sent: 7:55 PM

    Lupron & Eligard are the exact same drug. Jim

  • Rick Davis sent: 7:56 PM

    Are you asking about the Depot shots?

  • Rick Davis sent: 7:57 PM

    Oxybutynin…. good for hot flashes if you are on abi

  • Steve L sent: 7:57 PM

    Must leave at 7, Best to all.

  • Alain sent: 7:58 PM

    See you next time guys!

  • Barbara and Joe sent: 7:58 PM

    I was asking about a two tier therapy

  • Steve Lsent: 7:59 PM

    no , thank you.

  • Alfredo in Houston, TX sent: 8:00 PM

    I must disconnect shortly. Thanks to everyone; I learn something new from every session.

  • Rick Davis sent: 8:01 PM

    ADT + ARSI = doublet. ADT can be one of several drugs.

  • Thomas Matica sent: 8:02 PM

    Signing out. Thanks to everyone. Peace.

  • Len sent: 8:02 PM

    Dan – Trade name for oxybutynin is Ditropan.

  • Barry Blomquist sent: 8:06 PM

    Thanks guys!

  • Richard B, Silver Spring, MD sent: 8:09 PM

    As much as I would like to remain I need to bow out for the evening. I can save my question until next session. Always appreciate the information on these meeting. Good night!

  • Alfredo in Houston, TX sent: 8:09 PM

    good night

  • Dan – Schenectady, NY sent: 8:16 PM

    Thank you – have to go

  • Robert sent: 8:18 PM

     Thanks for another good meeting.

  • Ed L sent: 8:22 PM

    Thanks for the input. Good night.

  • Jon McPhee Toronto sent: 8:26 PM

    Bed time. Good meeting again. Night.

  • Bruce Schrimpf sent: 8:36 PM

    Thanks for the great meeting!

  • Barbara and Joe sent: 8:37 PM

    Thanks all

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/19/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/13/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/13/26

AnCan is closing out its Annual Fundraising Campaign. If you haven’t donated yet, consider the priceless value we bring . Please donate – especially if you watch our recordings and are not on our Mailchimp list. https://ancan.org/donate/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Johnson and Johnson, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Denovo metastatic BRCA2 Newbie stumps us all!

Topics Discussed

High volume denovo Mx Gent with BRCA germline can’t fiing a treatment that controls his T or his PSA; starting IMRT along with constipation; 2nd docetaxel easier with less fatigue than the first; liver returning to normal after 6x docetaxel; so back to full daro dose; T returns within 3 months of stopping 12 mo of orgovyx; BCBS turns down Prolia for -2.7 osteoprosis – did doc ask for wrong denosumab; ‘ciiling cap’ discussion; opting for new Plan Ds (drugs); Inherited Mutations discussed;

Chat
  • Alfredo in Houston, TX sent: 4:24 PM

  • Larry (Alaska) sent: 4:50 PM

    should we test for LH and FSH levels?

  • Alfredo in Houston, TX sent: 4:51 PM

    Dr. Jack, would an LH level be helpful in this case?

  •  Jeff Marchi – San Francisco sent: 4:52 PM

    small cell= neuroendocrine (not exactly: rd)

  • AnCan–John A sent: 4:55 PM

    advanceduropathology.com 5162807930 Dr Epstein prostate pathology expert

  • Alfredo in Houston, TX sent: 5:00 PM

    the relatively long half-life of injectable testosterone undecanoate means its effects can last for weeks, but probably not months

  • Jeff Marchi – San Francisco sent: 5:08 PM

    has anyone had VMAT radiation?

  • Gary Martin sent: 5:09 PM

    I had that prostate inflammation first and second round docetaxel. my oncologist did not know cause. Suggested UTI, which have the same symptom I had in round 1 and 2. I figured it was chemo working on prostate.

  • Julian – Houston sent: 5:13 PM

    Jeff, I have had VMAT radiation.

  • Jeff Marchi – San Francisco sent: 5:13 PM

    how well did it work? any side effects?

  • Jack sent: 5:14 PM

    Enzalutamide blocks androgen binding which disrupts the negative feedback loop that normally supresses testosterone this leads to compensatory increases in LH and subsequent increases in testosterone

  • Julian – Houston sent: 5:14 PM

    It worked quite well – I have been in remission for over 5 years. I am now having some radiation effects but not severe

  • AnCan – rick sent: 5:18 PM

  • Bruce Schrimpf sent: 5:20 PM

    I have not met or heard of him.

  • Gary Martin sent: 5:32 PM

    I had insurance denial of Prolia (bone strengthening)- anyone encounter denial of Prolia?

  • Julian – Houston sent: 5:34 PM

    Aetna no longer approves Prolia.

  • Larry (Alaska) sent: 5:36 PM

    Bone loss is largely drivenby estradiol deficiency (just as it is in post-menopausal women). Testosterone deprivation also lowers a man’snatural estradiol. A low-dose estradiol suppement can avoid the need for bune-building agents. Agents which are expensive and bring their own set of adverese side effects.

  • Larry (Alaska) sent: 5:43 PM

    Calcium + Magnesium:

    AI Says: Why Separation Helps Competition for Absorption: High levels of calcium can block magnesium absorption in the intestines, and vice-versa. Optimizing Intake: Spacing them out (2-4 hours apart is a common suggestion) minimizes this competition, allowing your body to absorb each mineral more effectively. When It’s Okay to Take Them Together Multivitamins: If they are in smaller, balanced amounts within a multivitamin, the interaction is usually not an issue. With Food: Taking them with food can also help with absorption and reduce digestive upset.

  • RJ Smith (Seattle) sent: 5:47 PM

    Cold Cap system is https://paxmanscalpcooling.com/

  • Julian – Houston sent: 5:52 PM

    Volumetric-modulated Arc Therapy (VMAT)

  • Alfredo in Houston, TX sent: 5:55 PM

    Well, here is a longish article, but it does seem to describe the difference between IMRT and VMAT, https://en.wikipedia.org/wiki/Radiation_therapy

  • Julian – Houston sent: 5:57 PM

  • Alfredo in Houston, TX sent: 5:58 PM

    I have to leave now, sending everyone good wishes for the new year. Good night! and thank you!

  • Alan Swope sent: 5:59 PM

    Thanks all. I have to leave. Good information.

  • Don Rogers sent: 5:59 PM

    look at Scriptco.com for generic drugs. Huge saving even with the $140 yearly fee.

  • Bruce Schrimpf sent: 6:01 PM

    Thanks for the good discussion!

Active Surveillance Prostate Cancer Video Chat, January 14th, 2026

Active Surveillance Prostate Cancer Video Chat, January 14th, 2026

Active Surveillance Prostate Cancer Video Chat, January 14th, 2026

 

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, and Blue Earth Diagnostics.

Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.

You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/. Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/.

Chat Log:

Phil-Toronto 8:05 PM
Prostate Cancer Journal Club for Patients tomorrow at 9:00am ” can Micro U/S replace MRI for PCa Diagnosis Matt Cooperberg Laurence Klotz meded.ucsf.edu

Martin 8:13 PM
Brian, my email is martinuthe14@gmail.com. I would love to hear about your acqua ablation. Thx!

BJ 8:24 PM
Hi guys anyone have a link for the mentioned webinar tomorrow?

Phil-Toronto 8:25 PM
meded.ucsf.edu. If you google the link it should take you to the registration for the webinar tomorrow

Phil-Toronto 8:36 PM
aquablation vs. HOLEP https://www.perplexity.ai/search/80078b6b-bae2-4382-96d6-4035a1f29ba0

BJ 8:40 PM
Dan P: You mentioned a book at the beginning. if you can put the name of it on the chat. Ty

AnCan – Rick 8:50 PM
Dr. Sanjay Punnen https://sylvester-doctors.umiamihealth.org/provider/sanoj-punnen/525775

BJ 9:01 PM
Need to drop off. Thanks all for sharing so much.

AnCan – Rick 9:06 PM
Helfand webinar on AS on AnCan https://ancan.org/webinar-active-surveillance-beyond-with-dr-brian-helfand/

AnCan – Rick 9:13 PM
@RogerNorris…. PROSTATE, not prostrate.

Low/Intermediate PCa Video Chat, January 12, 2026

Low/Intermediate PCa Video Chat, January 12, 2026

Low/Intermediate PCa Video Chat, January 12, 2026

Low/Intermediate PCa Video Chat, January 12, 2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Johnson and Johnson, Telix, Blue Earth Diagnostics, and Foundation Medicine.

WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.

Join our other free and drop in groups:
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!

Editor’s Pick: Using DECIPHER genomic testing to assess cancer agressiveness. (bj)

Topics Discussed
Cancer discovery following an aquablation procedure for an enlarged prostate; post-procedure PSA and MRI testing to monitor remaining cancer; comparing transrectal and transperineal biopsy safety and access; importance of consulting genitourinary oncologists at major centers; using specialists like Dr. Epstein for pathology second opinions; weighing active surveillance against the risk of cancer progression; discussion of MR LINAC, proton, and photon radiation technologies; using PSMA PET scans to detect potential lymph node involvement; selecting high-volume urban medical centers over smaller clinics; using DECIPHER genomic testing to assess cancer agressiveness.

Chat

Stuart sent a chat · 8:01 PM
Dr. Ming Zhou – Mt Sinai Health System  Email: Ming.zhou@mountsinai.org      Telephone: (212)241-8881

Stuart sent a chat · 8:02 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/  Tel:516-760-2037    jepstein@imppllc.com

Steve in Malaysia sent a chat · 8:39 PM
What is an AI MRI?

Steve in Malaysia sent a chat · 8:42 PM
ok 👍

AnCan – rick sent a chat · 8:48 PM
Proton vs Photon  https://ascopubs.org/doi/abs/10.1200/JCO.23.01604?md5=efb3c3159aa147415d4f2ded3334efa3&cid=DM16707&bid=358786211

Gil Solomon sent a chat · 8:52 PM
Have to sign off for dinner.

Steve in Malaysia sent a chat · 8:57 PM
I need to finish packing for trip from Penang to California shortly so would appreciate some quick questions.

AnCan – rick sent a chat · 9:07 PM
Check our AnCan video with Dr. Scholz  on Prostate Snatchers. https://ancan.org/the-prostate-snatchers-still-lurking/

Steve sent a chat · 9:14 PM
Carter

AnCan – rick sent a chat · 9:25 PM
Steve – CHEK2 may in fact make you more sensitive to RT. Check with Dr. Kivel

Steve sent a chat · 9:28 PM
Thanks Rick!

David in Portland, OR sent a chat · 9:39 PM
“Most mutations in DNA repair genes such as BRCA1/2, PALB2, CHEK2, and RAD50/51 mutations do not increase radiation-induced cancers or radiation toxicity. BRCA1/2, PALB2, CHEK2, and RAD50/51 mutations should not affect radiation therapy decisions.” Source: https://www.redjournal.org/article/S0360-3016(19)33530-8/fulltext I also communicated with Joanne Wiedhaas last year directly about this topic, and she confirmed the above quote from the International Journal of Radiation Oncology.

Govinda – India sent a chat · 9:41 PM
Daily dosage of  Viagra was 5 mg daily. Of course this varies from person to person.

Steve in Malaysia sent a chat · 9:42 PM
I’m going to sign off… thanks guys

David in Portland, OR sent a chat · 9:42 PM
5 milligrams/day of tadalafil/Cialis gives me significant heartburn. Anybody else have this problem? Any fixes other than stopping the Cialis?

AnCan – rick sent a chat · 9:51 PM
Interesting David….    the general opinion is that HRR mutations make you more sensitive to RT toxicity. I think there’s a fair amount of literature.

Stuart sent a chat · 9:56 PM
Dr James Hu – Weill Cornell

Stuart sent a chat · 9:56 PM
Dr Nagar – MSKCC

Stuart sent a chat · 9:57 PM
or Michael J. Zelefsky, MD – NYU Langone

Steve sent a chat · 10:17 PM
Thanks David!

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/19/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/5/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/5/26

HAPPY NEW YEAR to all AnCan’s YouTube viewers.    AnCan is closing out its Annual Fundraising Campaign. If you haven’t donated yet, consider the priceless value we bring . Please donate – especially if you watch our recordings and are not on our Mailchimp list. https://ancan.org/donate/

 

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Johnson and Johnson, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

HEADSUP – another long session!

Editor’s Pick: Like London buses, topics come in clusters this week – post-surgery recurrence, and monotherapy daro

Topics Discussed

Recurrence 3+ months post-surgery is confusing given medical reports; sitting on hands post 2017 RRP has dire cinsequences; more rapid recurrence requires PSMA scan for younger Gent; low T post treatment raises question whether to force it castrate; oxybutinin manages hot sweats… ARSI makes no difference; Gent considers going from doublet to mono; recently diagnosed denovo Mx man learns he’s 5+4; should he keep one Pluvicto session in reserve?; get a DEXA scan before starting bone stregthener; can a layman read their PSMA scan?; is he ready for mono daro?; should a FAP (Fibroblast Activation Protein Inhibitor) scan be considered?; PSMA needed as PSA rises post IHT; connections between prostate and thyroid cancer; Gent resumes doublet but doesn’t watch PSA – more concerned with duration?!?

Chat
  •  Jim Stewart Reno, NV sent: 7:24 PM

    Family commitment have to sign off…Happy New Year everyone

  • Jim Marshall, Veteran, Alexandria, VA sent: 7:36 PM

    My solution for HOT FLASHES at night has been is even if the room is 55, I have a 12″ fan blowing directly on my face. This is done year round.

  • Paul Schomer sent: 7:50 PM

    I am not, no, Jim

  • RJ Smith (Seattle) sent: 7:50 PM

    NTD–will update next week on how Chemo#3 goes (docetaxel infusion tomorrow, fingers crossed).

  • Thomas Matica sent: 8:07 PM

    Leaving the meeting. Thanks to everyone. Happy New Year.

  • Jim Marshall, Veteran, Alexandria, VA sent: 8:11 PM

    Eric – When you are fatigued, go out and exericse despite the body telling you NOT!!!!

  • S. Datta sent: 8:14 PM

    FAPI (Fibroblast Activation Protein Inhibitor)

  • Larry Schuller – Alaska sent: 8:18 PM

    It is not crazy to want your testosterone back. Intermittent ADT can do that and it is showing promise as a tactic. Bipolar ADT (BAT) is a little crazier, but has some promise also. If you want to go wild, check out Dr Robert Gatenby’s work at Moffit in Florida. Intersesting stuff there.

  • John G. sent: 8:19 PM

  • AnCan – rick sent: 8:20 PM

  • Jeffrey Green sent: 8:23 PM

    Jay Mills Chatanooga- Though I didn’t follow the whole conversation, I heard you say something to the effect of, “I may have mets all over the place, in addition to what shows on PSMA.”

  • Barry Blomquist sent: 8:28 PM

    Have to jump – thanks everyone. Happy New Year

  • Eric Curtis sent: 8:30 PM

    Thanks all – gotta go

  • Jeffrey Green sent: 8:31 PM

    Got to start winding down here. Thanks for all you guys. See you next time.

  • Len sent: 8:34 PM

    Source is AI: Bidirectional Risk: Men diagnosed with thyroid cancer have a roughly 28% to 30% higher risk of later being diagnosed with prostate cancer compared to the general population. Conversely, men with prostate cancer are more likely to be diagnosed with thyroid cancer.

  • Robert sent: 8:35 PM

    Thanks Len. I read the same thing.

  • dan-s sent: 8:49 PM

    Thanks all… another good session. Have to sign off for the evening. Happy New Year…

  • Jay T in MN sent: 8:50 PM

    My hospital was charging the insurance company about $20,000.

  • gary peters sent: 8:50 PM

    I did not know this about thyroid C and PC. Thank you.

  • Jon McPhee Toronto sent: 8:50 PM

    Do a PSA test once a month. Cheap. PSMA/PET is expensive and harder to get.

  • Jay T in MN sent: 8:51 PM

    I “only” had to pay $1000 for my portion of PET PMSA