Here’s our latest proposal for AnCan supporters to raise a few bucks on our behalf ……. follow Brit Paul Taylor’s lead and raise money for us with a US Version Rude Names fundraiser . And to heck with a moped … we have a few bigger bikes in this Group.
On July 22nd, we had so much fun once again with our very own Hannah Garrison (Artist, MS activist, and moderator for our MS virtual support group) lead our appropriately titled…”Art With Hannah Garrison“! It has a Saturday Night Live ring to it, don’t you think? She was requested to teach something relaxing and summer-y, and did she deliver!
We created an absolutely beautiful dusk beach setting, that is begging for a pineapple drink with a little umbrella in your hand. Last time we had an event to celebrate MS Awareness Month, but this time all were welcome. We saw members from our Blood Cancers, Prostate Cancer, Thyroid Cancer, MS Group, and more!
I promise this is SO easy and relaxing, so grab some supplies and have an hour of creative relaxation.
Supplies:
Acrylic paint or watercolor paint. (It will be watered down, so it doesn’t matter!) Colors – blue or aqua / dark blue / orange/ pink / purple. (colored pencils were also successfully used in this art project!)
Paint brush – round or flat.
Black crayon, but any dark color will be ok!
Water
Napkins
If you have any suggestions, or would like your art featured in the AnCan Art Gallery, please email me at alexa (at) ancan.org!
To SIGN UP for any of our AnCan Virtual Support groups, visit our Contact Us page.
On June 30th, we hosted a fascinating and informative webinar titled “Advocating for Rare Diseases“.
We had Katelyn Laws (Rare Disease Legislative Advocates Program Coordinator) give a great outline of what advocacy is, what types of advocacy there are, and how to do it. AnCan’s Sarcoidosis virtual support group moderator Cathleen Terrano moderated and sparked fascinating conversation with our panelists Ritchie Johnson (Renal Medullary Carcinoma), Charles Mickles (Young Onset Parkinson’s Disease), and Trina Massey Davis (Sarcoidosis).
I had the pleasure of jumping in for the Q&A segment, which was a wonderful (and real!) discussion many topics, such as discouragement when advocating, how to write out your story, and more.
Watch this phenomenal presentation here:
Special thanks to Myovant Sciences – Pfizer, and Foundation Medicine for sponsoring this webinar.
On June 17th, Rafael L. Perez MD (Professor of Medicine, and Director of the Sarcoidosis Program at the Jane and Leonard Korman Respiratory Institute of Thomas Jefferson University) spoke at our Sarcoidosis Virtual Support Group with a presentation titled “Sarcoidosis: To Treat or Not to Treat? That Is the Question”
We want to thank Dr. Perez for answering our attendees questions!
Watch here:
To view the slides from this presentation, click here.
For information on our peer-led video chat SARCOIDOSIS VIRTUAL SUPPORT GROUP, click here.
To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.
Have you checked out our page “All the Faces of AnCan” lately? We are always growing, and you might see some new faces! While we’ve discussed Dr. Herbert Geller (researcher and AnCan Advisory Board Member) previously on the blog, we have a special treat today. Dr. Geller was part of an esteemed panel explaining the science behind mRNA Covid-19 vaccines with CureTalks.
I find this description of what mRNA means and brief explanation from CureTalks to be extremely helpful.
Messenger RNA vaccines, also called mRNA vaccines, are some of the first COVID-19 vaccines authorized for use in the United States. mRNA vaccines are a new type of vaccine to protect against infectious diseases. They teach the cells of our body to make a protein that triggers an immune response. This immune response leads to the production of antibodies which protects us from getting infected if the real virus enters our body.
Be sure to check out this informative presentation, here!
To SIGN UP for any of our AnCan Virtual Support groups, visit our Contact Us page.
