AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: The most important thing is having a medical team that you trust. (bj)
Topics Discussed Transitioning from active surveillance and having issues with flomax; post-prostatectomy at 6-weeks and learning to deal with incontinence, work on pelvic floor physical therapy — kegel exercises; germline genetic screening — Prostate Cancer PROMISE Test; new diagnosis and getting a second opinion based on biopsy results, currently learning more to choose a treatment path — active surveillance is is a possibility, be wary of taking focal treatment outside of a trial, TULSA Pro, SBRT, HIFU, PROTON, Cyber Knife; DECIPHER gtest and GRID report; SBRT treatment update — got a DECIPHER test and GRID report; update using ArteraAI to confirm DECIPHER results in deciding a treatment option; important to have the information to chose a treatment plan; learning the in and outs of Veterans benefits; dealing with a “blind” biopsy and seeking a second opinion on biopsy result — consider starting over with a MRI to get a diagnosis; PROTON (IMRT) (gets a lot of hype) but it is older technology than PHOTON (SBRT); PROSTOX test provides information on radiation toxicity; Focus on getting the right doctor to help you make a decision versus laboring over the differences between radiation treatment options.
Chat Log
AnCan – rick
Promise https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
AnCan – rick
rd@ancan.org
AnCan – rick
Send Bx for 2nd opinion to either Dr. Epstein https://advanceduropathology.com/ or Dr. Zhou https://profiles.mountsinai.org/ming-zhou
Eric- Atlanta
15 year outcome study: https://www.nejm.org/doi/full/10.1056/NEJMoa2214122
AnCan – rick
Check results of the PACE-B Study
AnCan – rick
Pace-B abstract https://www.redjournal.org/article/S0360-3016(23)07822-7/abstract
AnCan – rick
Five-year BCF free rates are high in PACE-B participants. After median follow-up of six years, five-fraction-SBRT is non-inferior to CRT for BCF. SBRT reduces pts attendances, shortens treatment time and 5 fraction SBRT should be a new standard of care for pts with low/favourable intermediate risk LPCa.
Bill Allen
Tim- are you willing to share the contact at Vericyte?
Eric- Atlanta
A Veracyte Sr. Genomic Specialist contact:
Eric- Atlanta
toby.harrell@veracyte.com
Bill Allen
Thank you Eric.
Eric- Atlanta
Welcome. He’s very helpful.
AnCan – rick
AnCan Vets programs https://ancan.org/veterans/
James & Emily Anders
we are back on. We were bumped off
Bill Allen
Hi All- thanks for tonight. I have to go- have a good two weeks.
Eric- Atlanta
Andrew & Mark!! https://www.youtube.com/watch?v=nEuj4IjAQ3I
AnCan respectfuly notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Understand how Veterans Affairs (VA) personnel cuts impact your VA disability claims. (bj)
Topics Discussed
Toxic agent exposure and submitting claim for prostate cancer under the PACT answer; working with local VA agent to submit claim; understanding CMP exams and when the VA schedules them to check for residuals; understanding your benefits under TERA (toxic exposure risk activities (TERA) and how you qualify; collecting Special Monthly Compensation (SMC) for loss of use of a creative organ when you have a prostate cancer diagnosis; how military retirement pay may be impacted by receipt of VA disability benefits; barrett’s esophagus; how have cuts in the VA impacted the processing of claims; timely processing of VA claims — 5 months for timely claim; blood cancers included under the PACT act.
Chat Log
Bing Crosby
Have you had a PSMA Precision Image conducted
Cesar Lopez
Yes Bing, I was T2uN0M0
Bing Crosby
Has anyone ever mentioned any of the other treatment options like TULSA-Pro, HIFU, SBRT Radiation? All Urologists should be able to answer your questions about these treatment options?
Joseph
Unfortunately I need to go. I’ll catch you next time around.
Bing Crosby
Lots of new biomarkers (blood and urine tests) available to help with reducing the “what ifs” I highly recommend visiting https://www.pcmarkers.com and send this to your urologists
Bing Crosby
Always do a second opinion
AnCan – rick
Come visit us tomorrow at 7.30 pm in the https://www.gotomeet.me/AnswerCancer to meet Dr. Liss . 30 min presentation.
Mark WV
Sorry Have to go. Nite
AnCan – rick
Gents – don’t forget to tell your friends, this group is now recorded.
Bing Crosby
Gents…I have to bail out, and thank you for the super information. Jim I’ll connect with you tomorrow and look for your email. Rick, I’ll give a ring in the morning.
Hi-Risk/Recurrent/Advanced PCa Video Chat, March 25, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s pick: A visit from Dr. Paul Schellhammer, first diagnosed with PCa in 2000. (bn)
Topics Discussed
Since 2000, he’s had every treatment on offer, including estradiol since 2008, but not docetaxel — and VA now is letting him skip it and get Pluvicto; experts say PSMA whole-body SUV is an important predictor — but where is it in the reports?; he’s opted for brachy and surgery and orgovyx and hoping PSA falls soon; doublet vacation quickly brings less fatigue and more enthusiasm; Pluvicto seemed a dud, but then PSA started plummeting around the fourth treatment – though blood marrow took a hit, and some lingering dry mouth 9 months later; don’t stay on zoledronic acid too long — get off and go back on; be careful with darolutamide and certain statins; American Cancer Society can help with lodging if you travel to treatment; despite high-risk cancer, he’s getting only Lupron — and wants to know why; drug holiday began Sept 2023 and he’s still celebrating; chemo “much tougher than I even thought it was” — but PSA went from 325 to 0.82; darolutamide monotherapy works, but timing is everything; how do you get darolutamide monotherapy when it’s not in the guidelines?; bloody urine can appear 18 months or more after radiation treatment.
Chat Log
AnCan – rick · 6:12 PM
dr.john@ancan.org
Larry (Alaska) · 6:44 PM
Patches, gel are OK; but don’t forget injections which I find to be more convenient
AnCan – rick · 7:49 PM
https://www.cityofhope.org/alan-bryce
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: When deciding on a treatment plan, the most important thing a patient can do is having a medical team that you trust. Be wary of letting anxiety and uncertainty push drive selection of a treatment plan. Use the time you have to make an informed decision. (bj)
Topics Discussed New diagnosis and trying to decide between active surveillance and treatment based on high PSA and biopsy results; the importance of getting a second “reading” opinion on biopsy results; recommendations for genetic tests — to include the Prostate Cancer PROMISE, DECIPHER, and ArteraAI; seeking an opinion on a treatment plan after getting a random biopsy — getting a biopsy before the MRI; dealing with the anxiety and uncertainty associated with selecting a treatment plan; the importance of having a medical team that you can trust; EpiSwitch prostate screening; when to get a PSMA Pet Scan?; thiabendazole utility — better treatment options exist; healthy habits include diets that emphasize plants (i.e. low- or no meat) and exercise (150 – 210 minutes a week spread across 5 – 7 sessions, minimum session of 30 minutes).
Chat Log
AnCan – rick
PROMISE test https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
AnCan – “Col” Boykin Jordan
Artera – https://artera.ai/for-patients
AnCan – “Col” Boykin Jordan
DECIPHER https://decipherbio.com/decipher-prostate/patients/decipher-prostate-overview/
Mark Perloe
Yes
AnCan – rick
FYI… Ep-STINE
Mark Perloe
just two retgurns
Mark Perloe
just one more.
AnCan – rick
Here’s the microultrasound article Friends, and I’ve sent it to Michael https://jamanetwork.com/journals/jama/fullarticle/2831985
AnCan – “Col” Boykin Jordan
EpiSwitch Prostate Screening https://www.urologytimes.com/view/episwitch-prostate-screening-blood-test-launches-on-us-market
Bill Allen
Mark- just to be clear-mI should speak w Dr D’Amico regarding Artera AI – is that spelling correct ?
Steve R
Regarding the Promise test: Did I understand your preference was to not share results with the doctor? Why or why not?
Bill Allen
Thank you Dr John.
AnCan – rick
Yup – just gets much more complicated and time consuming to get result. You can share when you get the results if needed
AnCan – “Col” Boykin Jordan
NCCN Prostate Cancer Guidelines https://www.nccn.org/guidelines/guidelines-detail?category=1&id=1459
AnCan respectfuly notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Understanding toxic exposure risk activities (TERA) and what its gets you in secondary medical insurance coverage and how do you qualify. (bj)
Topics Discussed
Understanding toxic exposure risk activities (TERA) and what its gets you in secondary medical insurance coverage and how do you qualify; collecting Special Monthly Compensation (SMC) for loss of use of a creative organ when you have a prostate cancer diagnosis; heart disease and Vietnam veterans and getting access to Pluvicto; dealing with biochemical recurrence of prostate cancer and submission of claim; learning how to become your own agent and advocate for submitting VA claims; free lodging when traveling for cancer treatment available through the American Cancer Society (ACS); 90% VA disability rating but paid at 100% based on Total Disability Individual Unemployability (TDIU); what is the criteria for VA disability pension for surviving spouses; understanding the claims process.
